Development and Validation of a People-Centred Scale for Evaluating Care Pathway Experiences
References
- Pearson SD, Goulart-Fisher D, Lee TH. Critical Pathways as a Strategy for Improving Care: Problems and Potential. Ann Intern Med. 1995;123:941–948. DOI: 10.7326/0003-4819-123-12-199512150-00008
- Every NR, Hochman J, Becker R, et al. Critical Pathways. Circulation. 2000;101:461–465. DOI: 10.1161/01.CIR.101.4.461
- Panella M, Marchisio S, Di Stanislao F. Reducing clinical variations with clinical pathways: do pathways work? Int J Qual Health Care. 2003;15:509–521. DOI: 10.1093/intqhc/mzg057
- E-P-A Definition of care pathway. Eur Pathw Assoc n.d.
https://e-p-a.org/care-pathways/ (accessed October 30, 2024). - Seys D, Coeckelberghs E, Sermeus W, et al. Overview on the target population and methods used in care pathway projects: A narrative review. Int J Clin Pract. 2021;75:
e14565 . DOI: 10.1111/ijcp.14565 - Vanhaecht K, Panella M, van Zelm R, et al. An overview on the history and concept of care pathways as complex interventions. Int J Care Pathw. 2010;14:117–123. DOI: 10.1258/jicp.2010.010019
- Smith E, Ross FM. Service user involvement and integrated care pathways. Int J Health Care Qual Assur. 2007;20:195–214. DOI: 10.1108/09526860710743345
- Wind A, van der Linden C, Hartman E, et al. Patient involvement in clinical pathway development, implementation and evaluation – A scoping review of international literature. Patient Educ Couns. 2022;105:1441–1448. DOI: 10.1016/j.pec.2021.10.007
- Pulvirenti M, McMillan J, Lawn S. Empowerment, patient centred care and self-management. Health Expect. 2014;17:303–310. DOI: 10.1111/j.1369-7625.2011.00757.x
- Barry MJ, Edgman-Levitan S. Shared Decision Making — The Pinnacle of Patient-Centered Care. N Engl J Med. n.d.;366:780–781. DOI: 10.1056/NEJMp1109283
- Stepanian N, Larsen MH, Mendelsohn JB, et al. Empowerment interventions designed for persons living with chronic disease – a systematic review and meta-analysis of the components and efficacy of format on patient-reported outcomes. BMC Health Serv Res. 2023;23:
911 . DOI: 10.1186/s12913-023-09895-6 - Wang H, Jia J, Fan Y, et al. Impact of inpatient self-efficacy and trust in physicians on inpatient satisfaction with medical services: the mediating role of patient participation in medical decision-making. Front Psychol. 2024;
15 . DOI: 10.3389/fpsyg.2024.1364319 - World Health Organization.
WHO global strategy on people-centred and integrated health services: interim report . Geneva: World Health Organization; 2015. - Sepucha KR, Levin CA, Uzogara EE, et al. Developing instruments to measure the quality of decisions: Early results for a set of symptom-driven decisions. 4th Int Conf Shar Decis Mak. 2008;73:504–510. DOI: 10.1016/j.pec.2008.07.009
- Gill PS. Patient engagement: an investigation at a primary care clinic. Int J Gen Med. 2013;6:85–98. DOI: 10.2147/IJGM.S42226
- Bru-Luna LM, Martí-Vilar M, Merino-Soto C, et al. Person-centered care assessment tool with a focus on quality healthcare: a systematic review of psychometric properties. BMC Psychol. 2024;12:
217 . DOI: 10.1186/s40359-024-01716-7 - Bombard Y, Baker GR, Orlando E, et al. Engaging patients to improve quality of care: a systematic review. Implement Sci. 2018;13:
98 . DOI: 10.1186/s13012-018-0784-z - World Health Organization. Framework on integrated, people-centred health services; 2016.
- Olsen CF, Bergland A, Bye A, et al. Crossing knowledge boundaries: health care providers’ perceptions and experiences of what is important to achieve more person-centered patient pathways for older people. BMC Health Serv Res. 2021;21:
310 . DOI: 10.1186/s12913-021-06312-8 - Ceccarelli G, Foglia E, Ferrario L, et al. Care pathways production and review checklist: results from an HTA evaluation. Recenti Prog Med. 2022;113:177–188. DOI: 10.1701/3761.37483
- Gartner J-B, Abasse KS, Bergeron F, et al. Definition and conceptualization of the patient-centered care pathway, a proposed integrative framework for consensus: a Concept analysis and systematic review. BMC Health Serv Res. 2022;22:
558 . DOI: 10.1186/s12913-022-07960-0 - Cherif E, Martin-Verdier E, Rochette C. Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers. BMC Health Serv Res. 2020;20:
735 . DOI: 10.1186/s12913-020-05569-9 - Ocloo J, Goodrich J, Tanaka H, et al. The importance of power, context and agency in improving patient experience through a patient and family centred care approach. Health Res Policy Syst. 2020;18:
10 . DOI: 10.1186/s12961-019-0487-1 - van der Vlegel-Brouwer W, van Kemenade E, Stein KV, et al. Research in Integrated Care: The Need for More Emergent, People-Centred Approaches. Int J Integr Care. 2020;20:
5 . DOI: 10.5334/ijic.5627 - De Luc K. Care pathways: an evaluation of their effectiveness. J Adv Nurs. 2000;32:485–496. DOI: 10.1046/j.1365-2648.2000.01500.x
- Rucci P, Foglino S, Bravi F, et al. Validation of the OPportunity for Treatment In ONcology (OPTION) questionnaire measuring continuity of care. Eur J Cancer Care (Engl). 2018;27:
e12765 . DOI: 10.1111/ecc.12765 - Zakkar M. Patient experience: determinants and manifestations. Int J Health Gov. 2019;24:143–154. DOI: 10.1108/IJHG-09-2018-0046
- Foglino S, Bravi F, Carretta E, et al. The relationship between integrated care and cancer patient experience: A scoping review of the evidence. Health Policy. 2016;120:55–63. DOI: 10.1016/j.healthpol.2015.12.004
- Bravi F, Ruscio ED, Frassoldati A, et al. Patient and Health Care Professional Perspectives: A Case Study of the Lung Cancer Integrated Care Pathway. Int J Integr Care. 2018;18:
7 . DOI: 10.5334/ijic.3972 - Wodskou PM, Høst D, Godtfredsen NS, et al. A qualitative study of integrated care from the perspectives of patients with chronic obstructive pulmonary disease and their relatives. BMC Health Serv Res. 2014;14:
471 . DOI: 10.1186/1472-6963-14-471 - Vanhaecht K, De Witte K, Depreitere R, et al. Development and validation of a care process self-evaluation tool. Health Serv Manage Res. 2007;20:189–202. DOI: 10.1258/095148407781395964
- Kozlowska O, Tallett A, Bond S, et al. Developing and exploring the validity of a patient reported experience measure for adult inpatient diabetes care. Diabet Med. 2024;41:
e15266 . DOI: 10.1111/dme.15266 - Jamieson Gilmore K, Corazza I, Coletta L, et al. The uses of Patient Reported Experience Measures in health systems: A systematic narrative review. Health Policy. 2023;128:1–10. DOI: 10.1016/j.healthpol.2022.07.008
- O’Neill D, Noortman R, Burghoorn, AW, et al. The Patient Experience Driver Toolkit: Centering Patients in the Design of New Care Pathways. Int J Human–Computer Interact. 2025:1–19. DOI: 10.1080/10447318.2025.2490400
- Picker Institute Europe. A person centred health service. Our vision for the NHS; 2024.
- Boulkedid R, Abdoul H, Loustau M, et al. Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review. PloS One. 2011;6:
e20476 . DOI: 10.1371/journal.pone.0020476 - Dalkey NC.
The Delphi Method: An Experimental Study of Group Opinion . Santa Monica, CA: The Rand Corporation; 1969. DOI: 10.1016/S0016-3287(69)80025-X - Grimm KJ, Widaman KF.
Construct validity . APA Handb. Res. Methods Psychol. Vol 1 Found. Plan. Meas. Psychom., Washington, DC, US: American Psychological Association; 2012, p. 621–642. DOI: 10.1037/13619-033 - Carradori T, Bravi F, Butera DS, et al. Continuity of care in oncology. Quantitative analysis of data from patients treated in two different settings in Emilia—lRomagna. Recenti Prog Med. 2017;108:288–293. DOI: 10.1701/2715.27716
- Mazzini E, Cerullo L, Mazzi G, et al. The Experience of Accreditation of the Reggio Emilia Research Hospital with the OECI Model. Tumori J. 2015;101:S42–S46. DOI: 10.5301/tj.5000466
- Servizio Prevenzione collettiva e Sanità pubblica. Il Protocollo Diagnostico-Terapeutico e Assistenziale per il carcinoma mammario della Regione Emilia-Romagna. Regione Emilia-Romagna; 2018.
- Regione Emilia-Romagna. Guida per i valutatori alla verifica dei Percorsi Diagnostico Terapeutici Assistenziali (PDTA) nell’ambito delle visite di accreditamento; 2013.
- Gale NK, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13:
117 . DOI: 10.1186/1471-2288-13-117 - Braun V, Clarke V.
Thematic Analysis. A Practical Guide . London: SAGE Publications; 2021. - Boateng GO, Neilands TB, Frongillo EA, et al. Best Practices for Developing and Validating Scales for Health, Social, and Behavioral Research: A Primer. Front Public Health. 2018;6. DOI: 10.3389/fpubh.2018.00149
- Hair JF, Black WC, Babin BJ, et al.
Multivariate data analysis . Eighth edition. Andover, Hampshire, United Kingdom: Cengage; 2019. - MacKenzie SB, Podsakoff PM, Podsakoff NP. Construct Measurement and Validation Procedures in MIS and Behavioral Research: Integrating New and Existing Techniques. MIS Q. 2011;35:293–334. DOI: 10.2307/23044045
- Mirzaei A, Carter SR, Patanwala AE, et al. Missing data in surveys: Key concepts, approaches, and applications. Res Soc Adm Pharm. 2022;18:2308–2316. DOI: 10.1016/j.sapharm.2021.03.009
- Worthington RL, Whittaker TA. Scale Development Research: A Content Analysis and Recommendations for Best Practices. Couns Psychol. 2006;34:806–838. DOI: 10.1177/0011000006288127
- Hu L, Bentler PM. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Struct Equ Model. 1999;6:1–55. DOI: 10.1080/10705519909540118
- George D, Mallery P.
SPSS for Windows step by step: a simple guide and reference 11.0 update . 4th ed. Boston: Allyn and Bacon; 2003. - Batalden M, Batalden P, Margolis P, et al. Coproduction of healthcare service. BMJ Qual Amp Saf. 2016;25:
509 . DOI: 10.1136/bmjqs-2015-004315 - Hsu C-C, Sandford BA. Minimizing Non-Response in The Delphi Process: How to Respond to Non-Response. Pract Assess Res Eval. 2007;12:1–6.
- Bravo P, Edwards A, Barr PJ, et al. Conceptualising patient empowerment: a mixed methods study. BMC Health Serv Res. 2015;15:
252 . DOI: 10.1186/s12913-015-0907-z - Barlow J, Wright C, Sheasby J, et al. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48:177–187. DOI: 10.1016/S0738-3991(02)00032-0
- Ferrand YB, Siemens J, Weathers D, et al. Patient Satisfaction With Healthcare Services A Critical Review. Qual Manag J. 2016;23:6–22. DOI: 10.1080/10686967.2016.11918486
DOI: https://doi.org/10.5334/ijic.9134 | Journal eISSN: 1568-4156
Language: English
Page range: 13 - 13
Submitted on: Feb 1, 2025
Accepted on: May 7, 2026
Published on: May 22, 2026
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year
Keywords:
© 2026 Vittoria Sturlese, Gerardo Petruzziello, Stefano Benini, Lucetta Nisticò, Davide Allegri, Anna Pavani, Carlo Descovich, Sergio Cinocca, Federica Lugaresi, Elisa Mazzini, Luca Ghirotto, Domenica Gazineo, Loredana Cerullo, published by Ubiquity Press
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