Table 1
Items and domains of the developed questionnaire (Study 1).
| ITEM | DOMAIN |
|---|---|
| 1) At the beginning of my pathway, I received clear information about the different stages of the care process. | 3. Information: Quality and clarity of information provided to patients |
| 2) The professionals proposed and provided services considering my needs and the specifics of my case. | 2. Needs Assessment and People-Centred Care: Assessment of patients’ needs and the degree to which care is centred around the patient. |
| 3) The professionals I consulted supported me “step by step” throughout my pathway. | 4. Relationship, Counselling, and Quality of Communication: The quality of interpersonal relationships, emotional support, and communication between patients and healthcare providers. |
| 4) In case of need, I could rely on the professionals who were my reference points. | 7. Organisational Aspect: The efficiency and effectiveness of the care pathway’s organisational structure. |
| 5) The professionals paid attention to pain management. | 2. Needs Assessment and People-Centred Care: Assessment of patient needs and the degree to which care is centred around the patient. |
| 6) I received adequate information about my health condition and therapeutic options, including related risks and benefits. | 3. Information: Quality and clarity of information provided to patients. |
| 7) I received adequate information on how to manage my daily life regarding the illness. | 3. Information: Quality and clarity of information provided to patients. |
| 8) I received information and referrals to patient associations or groups I could turn to. | 3. Information: Quality and clarity of information provided to patients. 5. Patient Involvement: The extent to which patients are involved in their care decisions. |
| 9) The informational material received was useful. | 3. Information: Quality and clarity of information provided to patients. |
| 10) When I went for tests or consultations, I waited long beyond the scheduled appointment time. | 7. Organisational Aspect: The efficiency and effectiveness of the care pathway’s organisational structure. |
| 11) The professionals were sensitive to my needs. | 2. Needs Assessment and People-Centred Care: Assessment of patient needs and the degree to which care is centred around the patient. |
| 12) The professionals paid attention to my need for psychological and emotional support. | 2. Needs Assessment and People-Centred Care: Assessment of patient needs and the degree to which care is centred around the patient. |
| 13) I was involved in my diagnosis and treatment pathway. | 5. Patient Involvement: The extent to which patients are involved in their care decisions. |
| 14) My family members or caregivers were involved in my treatment pathway. | 5. Patient Involvement: The extent to which patients are involved in their care decisions. |
| 15) All professionals were adequately informed about my care pathway without the need to provide or repeat additional information. | 6. Cooperation Among Professionals: The level of collaboration and integration among healthcare professionals. |
| 16) The received opinions from various professionals on the same issues were consistent, without conflicting or contradictory information. | 8. Continuum of Care: Consistency and care coordination throughout the patient’s treatment journey. |
| 17) The professionals directly scheduled tests, examinations, and consultations for me during my hospital stay. | 1. Access: Evaluation of the ease with which patients can access healthcare services and their initial reception. |
| 18) When I needed community services to continue my care, they facilitated my access. | 1. Access: Evaluation of the ease with which patients can access healthcare services and their initial reception. 8. Continuum of Care: Consistency and care coordination throughout the patient’s treatment journey. |
| 19) My family doctor and the specialists who treated me collaborate. | 6. Cooperation Among Professionals: The level of collaboration and integration among healthcare professionals. 8. Continuum of Care: Consistency and care coordination throughout the patient’s treatment journey. |
| 20) When scheduled services (e.g., consultations, tests, therapies) were not provided, I was explained. | 4. Relationship, Counselling, and Quality of Communication: The quality of interpersonal relationships, emotional support, and communication between patients and healthcare providers. |
| 21) Overall, my diagnosis and treatment pathways are well organised. | 7. Organisational Aspect: The efficiency and effectiveness of the care pathway’s organisational structure. |
Table 2
Distribution of the participants by organisation and CP for the EFA.
| CARE PATHWAY | ORGANISATION 1 | ORGANISATION 2 | ORGANISATION 3 | TOTAL |
|---|---|---|---|---|
| Breast cancer | 64 | 28 | 18 | 110 |
| Stroke | 14 | 0 | 0 | 14 |
| Prostate cancer | 0 | 25 | 43 | 68 |
| Ovarian cancer | 0 | 0 | 3 | 3 |
| Pancreatic cancer | 0 | 0 | 7 | 7 |
| Colorectal cancer | 0 | 0 | 13 | 13 |
| Lung cancer | 0 | 0 | 16 | 16 |
| Liver cancer | 0 | 0 | 3 | 3 |
| Melanoma | 0 | 0 | 15 | 15 |
| Glioma | 0 | 0 | 10 | 10 |
| Head and neck cancer | 0 | 0 | 15 | 15 |
| Thyroid cancer | 0 | 0 | 10 | 10 |
| Total | 78 | 53 | 153 | 284 |
Table 3
Items’ means, standard deviations, and factor loadings from the EFA.
| FACTOR | ITEM | M | SD | 1 | 2 | 3 | 4 |
|---|---|---|---|---|---|---|---|
| Person-Centrality | Item 1 | 3.80 | 0.50 | 0.87 | |||
| Item 2 | 3.85 | 0.41 | 0.79 | ||||
| Item 3 | 3.83 | 0.42 | 0.66 | ||||
| Item 4 | 3.79 | 0.43 | 0.64 | ||||
| Item 5 | 3.80 | 0.44 | 0.55 | ||||
| Item 6 | 3.80 | 0.41 | 0.42 | ||||
| Item 7 | 3.72 | 0.51 | 0.42 | ||||
| Responsiveness | Item 8 | 3.72 | 0.55 | 0.83 | |||
| Item 9 | 3.72 | 0.55 | 0.79 | ||||
| Item 10 | 3.79 | 0.47 | 0.38 | ||||
| Integration | Item 11 | 3.59 | 0.80 | 0.78 | |||
| Item 12 | 3.64 | 0.55 | 0.78 | ||||
| Item 13 | 3.72 | 0.50 | 0.38 | ||||
| Organisation | Item 14 | 2.53 | 1.17 | 0.83 | |||
| Item 15 | 3.89 | 0.38 | 0.47 |
[i] N = 284. Extraction Method: Principal Component Analysis with Promax Rotation.
Table 4
Distribution of the participants by Organisation and CP for the CFA.
| CARE PATHWAY | ORGANISATION 1 | ORGANISATION 2 | ORGANISATION 3 | TOTAL |
|---|---|---|---|---|
| Breast cancer | 35 | 17 | 5 | 57 |
| Stroke | 5 | 0 | 0 | 5 |
| Prostate cancer | 0 | 12 | 22 | 34 |
| Ovarian cancer | 0 | 0 | 2 | 2 |
| Pancreatic cancer | 0 | 0 | 4 | 4 |
| Colorectal cancer | 0 | 0 | 5 | 5 |
| Lung cancer | 0 | 0 | 7 | 7 |
| Melanoma | 0 | 0 | 15 | 15 |
| Glioma | 0 | 0 | 10 | 10 |
| Head and neck cancer | 0 | 0 | 6 | 6 |
| Thyroid cancer | 0 | 0 | 5 | 5 |
| Total | 40 | 29 | 81 | 150 |
Table 5
Variables’ correlation for external validity.
| VARIABLES | CP OVERALL EVALUATION | SATISFACTION WITH THE CP | SELF-REPORT HEALTH STATUS |
|---|---|---|---|
| Person-Centrality | 0.200* | 0.698** | 0.256** |
| Responsiveness | 0.115 | 0.611** | 0.217** |
| Integration | 0.158 | 0.617** | 0.195* |
| Organisation | –0.052 | –0.054 | –0.071 |
[i] *Correlation significant at a 0.05 level; **Correlation significant at a 0.01 level.
Table 1S
Final Set of items of the developed questionnaire.
| ITEMS | |
|---|---|
| ITALIAN | ENGLISH |
| All’inizio del mio percorso ho ricevuto informazioni chiare sulle diverse fasi dell’iter di cura. | At the beginning of my pathway, I received clear information about the different stages of the care process. |
| I professionisti mi hanno proposto e fornito le prestazioni tenendo conto dei miei bisogni. | The professionals proposed and provided services considering my needs and the specifics of my case. |
| In ogni fase del mio percorso, mi sono sentito/a supportato/a dai professionisti a cui mi sono rivolto/a. | The professionals I consulted supported me “step by step” throughout my pathway. |
| In caso di necessità ho potuto contare sui professionisti di riferimento. | In case of need, I could rely on the professionals who were my reference points. |
| I professionisti hanno prestato attenzione alla gestione del dolore. | The professionals paid attention to pain management. |
| Ho ricevuto informazioni adeguate sulla mia condizione di salute, sulle possibilità terapeutiche compresi i relativi rischi e benefici. | I received adequate information about my health condition and therapeutic options, including related risks and benefits. |
| Ho ricevuto informazioni adeguate su come gestire la mia vita di tutti i giorni in relazione alla malattia. | I received adequate information on how to manage my daily life regarding the illness. |
| Quando sono andato a fare degli esami o delle visite, ho aspettato molto tempo rispetto all’orario dell’appuntamento. | During tests or consultations, I often had to wait well past my scheduled appointment time. |
| I professionisti si sono mostrati sensibili nei miei confronti. | The professionals were sensitive to my needs. |
| I professionisti hanno posto attenzione al mio bisogno di supporto psicologico ed emotivo. | The professionals paid attention to my need for psychological and emotional support. |
| Sono stato coinvolta/o nel mio percorso di diagnosi e di cura. | I was involved in my diagnosis and treatment pathway. |
| I miei familiari o persone di riferimento sono stati coinvolti dai professionisti nel mio percorso di cura. | My family members or caregivers were involved in my treatment pathway. |
| Tutti i professionisti erano adeguatamente informati rispetto al mio percorso di cura, senza necessità da parte mia di fornire o ripetere informazioni. | All professionals were adequately informed about my care pathway without the need to provide or repeat additional information. |
| I pareri che ho ricevuto dai vari professionisti di questo percorso sui medesimi argomenti sono sempre stati concordi e non contradditori. | The received opinions from various professionals on the same issues were consistent, without conflicting or contradictory information. |
| I professionisti mi hanno prenotato direttamente gli accertamenti, gli esami, le visite durante il percorso in ospedale. | The professionals directly scheduled tests, examinations, and consultations for me during my hospital stay. |