References
- Anfara, V. A., & Mertz, N. T. (Eds.) (2015). Theoretical frameworks in qualitative research (Second edition). SAGE.
- Bambra, C. (2022). Placing intersectional inequalities in health. Health & Place, 75,
102761 . 10.1016/j.healthplace.2022.102761 - Barlow, J., Harrison, K., & Shaw, K. (1998). The Experience of Parenting in the Context of Juvenile Chronic Arthritis. Clinical Child Psychology and Psychiatry, 3(3), 445–463. 10.1177/1359104598033008
- Beeler, D., Paré-Blagoev, E. J., Jacobson, L. A., & Ruble, K. (2021). Educating Childhood Cancer Survivors: A Qualitative Analysis of Parents Mobilizing Social and Cultural Capital. Journal of Cancer Education, 36(4), 819–825. 10.1007/s13187-020-01709-1
- Booth, A. (2015). What do young people want from their school nursing service? A consultation to inform service development. Education and Health, 33(3), 71–76.
- Bowtell, E. C., Aroni, R., Green, J., & Sawyer, S. M. (2018). Contrasting disclosure practices and experiences of school support for Australian adolescents with cancer, cystic fibrosis and anorexia nervosa: Parent perspectives. International Journal of Inclusive Education, 22(2), 176–191. 10.1080/13603116.2017.1362049
- Braun, V., Clarke, V., Boulton, E., Davey, L., & McEvoy, C. (2021). The online survey as a qualitative research tool. International Journal of Social Research Methodology, 24(6), 641–654. 10.1080/13645579.2020.1805550
- Buchan, J., Jane, B., Shembavnekar, N., & Charlesworth, A. (2020). Building the NHS nursing workforce in England. The Health Foundation. 10.37829/HF-2020-RC14
- Children and Families Act 2014 c.6 Part 5. (2014).
https://www.legislation.gov.uk/ukpga/2014/6/part/5/crossheading/pupils-with-medical-conditions - Children’s Commissioner. (2016). School nurses: Children’s access to school nurses to improve wellbeing and protect them from harm. Children’s Commissioner for England.
https://assets.childrenscommissioner.gov.uk/wpuploads/2017/06/School-Nurses-report-Childrens-Commissioners-Office.pdf - Chinn, D., & Abraham, E. (2016). Using ‘candidacy’ as a framework for understanding access to mainstream psychological treatment for people with intellectual disabilities and common mental health problems within the English Improving Access to Psychological Therapies service. Journal of Intellectual Disability Research, 60(6), 571–582. 10.1111/jir.12274
- Coelho, H., Price, A., Kiff, F., Trigg, L., Robinson, S., Thompson Coon, J., & Anderson, R. (2022). Experiences of children and young people from ethnic minorities in accessing mental health care and support: Rapid scoping review. Health and Social Care Delivery Research, 10(22), 1–74. 10.3310/XKWE8437
- Cohn, L. N., Pechlivanoglou, P., Lee, Y., Mahant, S., Orkin, J., Marson, A., & Cohen, E. (2020). Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis. The Journal of Pediatrics, 218, 166–177.e2. 10.1016/j.jpeds.2019.10.068
- Cousino, M. K., & Hazen, R. A. (2013). Parenting Stress Among Caregivers of Children With Chronic Illness: A Systematic Review. Journal of Pediatric Psychology, 38(8), 809–828. 10.1093/jpepsy/jst049
- Creighton, L. (2012, June 20). One of the gang? SEN magazine.
https://senmagazine.co.uk/content/care/medical/epilepsy/1084/how-ca-we-help-those-with-epilepsy-in-the-classroom/ - Dennis, S., Noon, T., & Liaw, S. T. (2016). Is there a role for a primary health nurse in a learning support team in a disadvantaged high school? Evaluation of a pilot study. Australian Journal of Primary Health, 22(6),
530 . 10.1071/PY15166 - Department for Education. (2015). Supporting pupils at school with medical conditions: Statutory guidance for governing bodies of maintained schools and proprietors of academies in England. Department for Education.
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/803956/supporting-pupils-at-school-with-medical-conditions.pdf - Department for Education. (2022). Working together to improve school attendance: Guidance for maintained schools, academies, independent schools, and local authorities. Department for Educatino.
https://assets.publishing.service.gov.uk/media/66bf300da44f1c4c23e5bd1b/Working_together_to_improve_school_attendance_-_August_2024.pdf - Department for Education. (2023, December). Arranging education for children who cannot attend school because of health needs. Department for Education.
https://assets.publishing.service.gov.uk/media/657995f0254aaa000d050bff/Arranging_education_for_children_who_cannot_attend_school_because_of_health_needs.pdf - Department for Education, & The Rt Hon Gillian Keegan MP. (2024, January 8). Major national drive to improve school attendance.
https://www.gov.uk/government/news/major-national-drive-to-improve-school-attendance - Dixon-Woods, M., Cavers, D., Agarwal, S., Annandale, E., Arthur, A., Harvey, J., Hsu, R., Katbamna, S., Olsen, R., Smith, L., Riley, R., & Sutton, A. J. (2006). Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Medical Research Methodology, 6(1),
35 . 10.1186/1471-2288-6-35 - Dyson, S. M., Abuateya, H., Atkin, K., Culley, L. A., Dyson, S. E., & Rowley, D. T. (2008). Local authorities and the education of young people with sickle cell disorders in England. International Studies in Sociology of Education, 18(1), 47–60. 10.1080/09620210802196168
- Dyson, S. M., Abuateya, H., Atkin, K., Culley, L., Dyson, S. E., Rowley, D., & Members of the Sickle Cell and Education (SCED) Group. (2010). Reported school experiences of young people living with sickle cell disorder in England. British Educational Research Journal, 36(1), 125–142. 10.1080/01411920902878941
- Equality Act. (2010). c.15 Part 6. Retrieved 16 April 2024, from
https://www.legislation.gov.uk/ukpga/2010/15/part/6 - Finlay-Jones, A., Sampson, R., Parkinson, A., Prentice, K., Bebbington, K., Treadgold, C., Frank, B., Bates, A., Freeman, J., Lucas, J., Dart, J., Davis, E., Lingam, R., & McKenzie, A. (2023). Priority setting for children and young people with chronic conditions and disabilities. Health Expectations, 26(4), 1562–1574. 10.1111/hex.13761
- Fisher, R., Beech, J., Alderwick, H., Price, E., Ansari, A., Dixon-Woods, M., & Sinnott, C. (2024, March 5). Rethinking access to general practices: It’s not all about supply. Health Foundation.
https://www.health.org.uk/sites/default/files/pdf/2024-03/Rethinking%20access%20to%20general%20practice_0.pdf - HCSA. (2017). Health Conditions in School Alliance investigation into schools’ compliance with Department for Education statutory duty for supporting pupils with medical conditions in school. Health Conditions in Schools Alliance.
http://www.medicalconditionsatschool.org.uk/documents/Final%20FOI%20findings%202017.doc - HCSA. (n.d.). Individual Healthcare Plan (IHP).
http://www.medicalconditionsatschool.org.uk/ - Herlitz, L., Ashford, E., Baldwin, J., Powell, C., & Woodman, J. (2024). Care-experienced young people’s views and experiences of accessing general practice and dental services and attending health reviews in England: A qualitative study. BMC Primary Care, 25(1),
318 . 10.1186/s12875-024-02569-0 - Herlitz, L., Ashford, E., Powell, C., Herbert, K., Morris, S., & Woodman, J. (2024). Access to primary care for children and young people (CYP) in the UK: A scoping review of CYP’s, caregivers’ and healthcare professionals’ views and experiences of facilitators and barriers. BMJ Open, 14(5),
e081620 . 10.1136/bmjopen-2023-081620 - Hinton, D., & Kirk, S. (2015). Teachers’ perspectives of supporting pupils with long-term health conditions in mainstream schools: A narrative review of the literature. Health & Social Care in the Community, 23(2), 107–120. 10.1111/hsc.12104
- Holmström, M. R., Häggström, M., & Söderberg, S. (2018). Being Facilitators in a Challenging Context-School Personnel’s Experiences of Caring for Youth with Diabetes Type 1. Journal of Pediatric Nursing, 43, e114–e119. 10.1016/j.pedn.2018.08.007
- Hopwood, V., Pini, S., Spencer, B. K. C., & Kitchen, C. (2024). Qualitative Study Examining Attendance for Secondary School Pupils With Long-Term Physical Health Conditions. Continuity in Education, 5(1), 79–89. 10.5334/cie.111
- Jay, M. A., Herlitz, L., Deighton, J., Gilbert, R., & Blackburn, R. (2024). Cumulative incidence of chronic health conditions recorded in hospital inpatient admissions from birth to age 16 in England. International Journal of Epidemiology, 53(5),
dyae138 . 10.1093/ije/dyae138 - Jay, M. A., Sanders-Ellis, D., Blackburn, R., Deighton, J., & Gilbert, R. (2023). Umbrella systematic review finds limited evidence that school absence explains the association between chronic health conditions and lower academic attainment. Frontiers in Public Health, 11,
1122769 . 10.3389/fpubh.2023.1122769 - Jones, H., Pinto, A., Evans, S., Ford, S., O’Driscoll, M., Buckley, S., Ashmore, C., Daly, A., & MacDonald, A. (2021). Provision and Supervision of Food and Protein Substitute in School for Children with PKU: Parent Experiences. Nutrients, 13(11),
3863 . 10.3390/nu13113863 - Kelada, L., Molloy, C. J., Hibbert, P., Wiles, L. K., Gardner, C., Klineberg, E., Braithwaite, J., & Jaffe, A. (2021). Child and caregiver experiences and perceptions of asthma self-management. Npj Primary Care Respiratory Medicine, 31(1), 1–7. 10.1038/s41533-021-00253-9
- Kish, A. M., Newcombe, P. A., & Haslam, D. M. (2018). Working and caring for a child with chronic illness: A review of current literature. Child: Care, Health and Development, 44(3), 343–354. 10.1111/cch.12546
- Logan, D. E., Catanese, S. P., Coakley, R. M., & Scharff, L. (2007). Chronic Pain in the Classroom: Teachers? Attributions About the Causes of Chronic Pain. Journal of School Health, 77(5), 248–256. 10.1111/j.1746-1561.2007.00200.x
- Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., & Marshall, G. M. (2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta-review: Educational implications of chronic illness. Child: Care, Health and Development, 43(5), 645–662. 10.1111/cch.12475
- Lumivero. (2017). NVivo (version 12).
www.lumivero.com - McCann, D., Bull, R., & Winzenberg, T. (2012). The daily patterns of time use for parents of children with complex needs: A systematic review. Journal of Child Health Care, 16(1), 26–52. 10.1177/1367493511420186
- McGlynn, M. C., Gilliam, A., Pierson, S. K., & Hulbert, M. L. (2023). Education Liaison improves implementation of school accommodations for students with sickle cell disease. Pediatric Blood & Cancer, 70(10),
e30602 . 10.1002/pbc.30602 - McLoone, J. K., Wakefield, C. E., Butow, P., Fleming, C., & Cohn, R. J. (2011, October 19). Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors’ and Their Families’ Perspectives [Research-article].
Https://Home.Liebertpub.Com/Jayao . 10.1089/jayao.2011.0006 - Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook (2nd ed). Sage Publications.
- Nkosi, B., Seeley, J., Ngwenya, N., Mchunu, S. L., Gumede, D., Ferguson, J., & Doyle, A. M. (2019). Exploring adolescents and young people’s candidacy for utilising health services in a rural district, South Africa. BMC Health Services Research, 19(1),
195 . 10.1186/s12913-019-3960-1 - Normansell, R., Drennan, V. M., & Oakeshott, P. (2016). Exploring access and attitudes to regular sexually transmitted infection screening: The views of young, multi-ethnic, inner-city, female students. Health Expectations, 19(2), 322–330. 10.1111/hex.12354
- Paré-Blagoev, E. J., Ruble, K., Bryant, C., & Jacobson, L. (2019). Schooling in survivorship: Understanding caregiver challenges when survivors return to school. Psycho-Oncology, 28(4), 847–853. 10.1002/pon.5026
- Sanford, C., Saurman, E., Dennis, S., & Lyle, D. (2020). ‘We’re definitely that link’: The role of school-based primary health care registered nurses in a rural community. Australian Journal of Primary Health, 27(2), 76–82. 10.1071/PY20149
- Spencer, B. K. C., Hugh-Jones, S., Cottrell, D., & Pini, S. (2023). The INSCHOOL project: Young people with long-term physical health conditions: An in-depth qualitative study of their needs at school. Journal of Adolescence,
jad.12278 . 10.1002/jad.12278 - Spencer, B. K. C., Wright, J., Flemming, K., Cottrell, D., & Pini, S. (2023). School lives of adolescent school students living with chronic physical health conditions: A qualitative evidence synthesis. Archives of Disease in Childhood, 108(3), 225–229. 10.1136/archdischild-2022-324874
- Stavrou Stavros & Demetriou Loucia. (2021). Views of Secondary Education Teachers in Cyprus, Regarding the Information They Receive for Pupils with Chronic Diseases in Their Classes. Social Education Research, 149–157. 10.37256/ser.222021827
- Uhm, J., Choi, M., & Lee, H. (2020). School nurses’ perceptions regarding barriers and facilitators in caring for children with chronic diseases in school settings: A mixed studies review. Nursing & Health Sciences, 22(4), 868–880. 10.1111/nhs.12786
- Vanclooster, S., Benoot, C., Bilsen, J., Peremans, L., & Jansen, A. (2018). Stakeholders’ Perspectives on Communication and Collaboration Following School Reintegration of a Seriously Ill Child: A Literature Review. Child & Youth Care Forum, 47(4), 583–612. 10.1007/s10566-018-9443-4
- Williams, D., Buck, D., Babalola, G., & Maguire, D. (2022, June 17). What are health inequalities? The King’s Fund.
https://www.kingsfund.org.uk/insight-and-analysis/long-reads/what-are-health-inequalities
