References
- Barnard-Brak, L., Stevens, T., & Carpenter, J. (2017). Care coordination with schools: The role of family-centered care for children with special health care needs. Maternal and Child Health Journal, 21, 1073–1078. DOI: 10.1007/s10995-016-2203-x
- Barraclough, C., & Machek, G. (2010). School psychologists’ role concerns children with chronic illnesses in schools. Journal of Applied School Psychology, 26, 132–148. DOI: 10.1080/15377901003712694
- Berger, C., Valenzuela, J., Tsikis, J., & Fletcher, C. (2018). School professionals’ knowledge and beliefs about youth with chronic illness. Journal of School Health, 88(8), 615–623. DOI: 10.1111/josh.12646
- Blizzard, A. M., Weiss, C. L., Wideman, R., & Stephan, S. H. (2016). Caregiver perspectives during the post inpatient hospital transition: A mixed methods approach. Child Youth Care Forum, 45(5), 759–780. DOI: 10.1007/s10566-016-9358-x
- Boff, L. M., McGuire, A. L., & Raphael, J. L. (2021). Hospital-based education for hospitalized children: Current practice and future direction. Hospital Pediatrics, 11(5), e75–e77. DOI: 10.1542/hpeds.2020-004556
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. DOI: 10.1191/1478088706qp063oa
- Brown, M. B., Bolen, L. M., Brinkman, T. M., Carreira, K., & Cole, S. (2011). A collaborative strategy with medical providers to improve training for teachers of children with cancer. Journal of Educational and Psychological Consultation, 21(2), 149–165. DOI: 10.1080/10474412.2011.571478
- Bucholz, E. M., Toomey, S. L., & Schuster, M. A. (2019). Trends in pediatric hospitalizations and readmissions: 2010–2016. Pediatrics, 143(2), Article
e20181958 . DOI: 10.1542/peds.2018-1958 - Caggiano, G., Brunetti, L. I. G., Ho, K., Piovani, A., & Quaranta, A. (2021). Hospital school program: The right to education for long-term care children. International Journal of Environmental Research and Public Health, 18(21), 1–9. DOI: 10.3390/ijerph182111435
- Canter, K. S., & Roberts, M. C. (2012). A systematic and quantitative review of interventions to facilitate school reentry for children with chronic health conditions. Journal of Pediatric Psychology, 37(10), 1065–1075. DOI: 10.1093/jpepsy/jss071
- Champaloux, S. W., & Young, D. R. (2015). Childhood chronic health conditions and educational attainment: A social ecological approach. Journal of Adolescent Health, 56(1), 98–105. DOI: 10.1016/j.jadohealth.2014.07.016
- Clay, D. L., Cortina, S., Harper, D. C., Cocco, K. M., & Drotar, D. (2004). Schoolteachers’ experiences with childhood chronic illness. Children’s Health Care, 33(3), 227–239. DOI: 10.1207/s15326888chc3303_5
- Clemens, E. V., Welfare, L. E., & Williams, A. M. (2011). Elements of successful reentry after psychiatric hospitalization. Preventing School Failure, 55(4), 202–213. DOI: 10.1080/1045988X.2010.532521
- Colbert, A. M., Edlynn, E., Mueller, V., Ariefdjohan, M., & Lindwall, J. (2020). Evaluating health-related quality of life and school attendance in a multidisciplinary school program for youth with significant medical needs. Journal of Clinical Psychology in Medical Settings, 27(2), 416–428. DOI: 10.1007/s10880-019-09675-7
- Committee on School Health, American Academy of Pediatrics. (2000). Home, hospital, and other non-school-based instruction for children and adolescents who are medically unable to attend school. Pediatrics, 106(5), 1154–1155. DOI: 10.1542/peds.106.5.1154
- Daikeler, J., Bošnjak, M., & Manfreda, K. L. (2020). Web versus other survey modes: An updated and extended meta-analysis comparing response rates. Journal of Survey Statistics and Methodology, 8(3), 513–539. DOI: 10.1093/jssam/smz008
- De Young, A. C., Kenardy, J. A., Cobham, V. E., & Kimble, R. (2012). Prevalence, comorbidity and course of trauma reaction in young burn-injured children. Journal of Child Psychology and Psychiatry, 53(1), 56–63. DOI: 10.1111/j.1469-7610.2011.02431.x
- Family Education Rights Privacy Act. (20 U.S.C. § 1232g; 34 CFR Part 99). Retrieved from
https://www2.ed.gov/policy/gen/guid/fpco/ferpa/index.html - Fremont, E. (2019). Perceived health and a new measure of positive youth development in adolescents with chronic conditions. School Psychology, 34(6), 637–645. DOI: 10.1037/spq0000313
- Ghandour, R. M., Hirai, A. H., & Kenney, M. K. (2022). Children and youth with special healthcare needs: A profile. Pediatrics, 149(s7), Article
e2021056150D . DOI: 10.1542/peds.2021-056150D - Groh, J. D., Dempster, N. R., Cole, T., & Hayes, D.
Jr. (2020). Navigating school reentry in lung transplant recipients with cystic fibrosis. Progress in Transplantation, 30(3), 278–280. DOI: 10.1177/1526924820933843 - Hall, S., & DuBois, M. (2020). Facilitating student reentry following psychiatric hospitalization. Communiqué, 49(3), 26–28.
- Health Insurance Portability and Accountability Act. (1996). Pub. L. No. 104–191, § 264, 110 Stat.1936.
- Helms, A. S., Schmiegelow, K., Brok, J., Johansen, C., Thorsteinsson, T., Simovska, V., & Larsen, H. B. (2016). Facilitation of school re-entry and peer acceptance of children with cancer: A review and meta-analysis of intervention studies. European Journal of Cancer Care, 25(1), 170–179. DOI: 10.1111/ecc.12230
- Hinton, D., & Kirk, S. (2015). Teachers’ perspectives of supporting pupils with long-term health conditions in mainstream schools: A narrative review of the literature. Health and Social Care in the Community, 23(2), 107–120. DOI: 10.1111/hsc.12104
- Indiana Department of Education. (2023). Retrieved from
https://inview.doe.in.gov/state/1088000000/educator - Irwin, M. K., Elam, M., Merianos, A., Nabors, L., & Murphy, C. (2018). Training and preparedness to meet the needs of students with a chronic health condition in the school setting: An examination of teacher preparation programming in the United States. Physical Disabilities: Education and Related Studies, 37(2), 34–59. DOI: 10.14434/pders.v37i2.26254
- Kassam-Adams, N., & Butler, L. (2017). What do clinicians caring for children need to know about pediatric medical traumatic stress and the ethics of trauma-informed approaches? AMA Journal of Ethics, 19(8), 793–801. DOI: 10.1001/journalofethics.2017.19.8.pfor1-1708
- Le Brocque, R. M., Dow, B. L., McMahon, H., Crothers, A. L., Kenardy, J. A., Williams, T. J., & Long, D. A. (2020). The course of posttraumatic stress in children: Examination of symptom trajectories and predictive factors following admission to pediatric intensive care. Pediatric Critical Care Medicine, 21(7), e399–e406. DOI: 10.1097/PCC.0000000000002316
- Le Brocque, R. M., Hendrikz, J., & Kendardy, J. A. (2010). The course of posttraumatic stress in children: Examination of recovery trajectories following traumatic injury. Journal of Pediatric Psychology, 35(6), 637–645. DOI: 10.1093/jpepsy/jsp050
- Legislative Agency for Students with Health Conditions (LASHC). (2017). School success for children experiencing chronic illness: National recommendations for addressing global barriers. Physical Disabilities: Education and Related Services, 36(2), 8–15. DOI: 10.14434/pders.v36i2.24106
- Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., & Marshall, G. M. (2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta-review. Child: Care, Health, and Development, 43(5), 645–662. DOI: 10.1111/cch.12475
- Magalhães, P., Mourão, R., Pereira, R., Azevedo, R., Pereira, A., Lopes, M., & Rosário, P. (2018). Experiences during a psychoeducational intervention program run in a pediatric ward: A qualitative study. Frontiers in Pediatrics, 6, Article 124. DOI: 10.3389/fped.2018.00124
- Malchar, S. E., Praytor, S. E., Wallin, A. C., Bistricky, S. L., & Schanding, G. T. (2020). Evaluating family-school collaboration: A preliminary examination of the Family-School Collaboration Inventory. Contemporary School Psychology, 24(2), 206–216. DOI: 10.1007/s40688-019-00227-2
- Marraccini, M. E., Lee, S., & Chin, A. J. (2019). School reintegration post-psychiatrichospitalization: Protocols and procedures across the nation. School Mental Health, 11(3), 615–628. DOI: 10.1007/s12310-019-09310-8
- Marraccini, M. E., & Pittleman, C. (2022). Returning to school following hospitalization for suicide-related behaviors: Recognizing student voices for improving practice. School Psychology Review, 51(3), 370–385. DOI: 10.1080/2372966X.2020.1862628
- Maternal and Child Health Bureau. (2022). Children and youth with special health care needs (NSCH data brief). Retrieved from
https://mchb.hrsa.gov/sites/default/files/mchb/programs-impact/nsch-data-brief-children-youth-special-health-care-needs.pdf - Moore, J. B., Kaffenberger, C., Goldberg, P., Oh, K. M., & Hudspeth, R. (2009). School reentry for children with cancer: Perceptions of nurses, school personnel, and parents. Journal of Pediatric Oncology Nursing, 26(2), 86–99. DOI: 10.1177/1043454208328765
- Nayak, M. S. D. P., & Narayan, K. A. (2019). Strengths and weakness of online surveys. Journal of Humanities and Social Science, 24(5), 31–38. DOI: 10.9790/0837-2405053138
- Olson, A. L., Seidler, A. B., Goodman, D., Gaelic, S., & Nordgren, R. (2004). School professionals’ perceptions about the impact of chronic illness in the classroom. The Archives of Pediatric and Adolescent Medicine, 158(1), 53–58. DOI: 10.1001/archpedi.158.1.53
- Perfect, M. M., & Moore, I. M. (2019). Introduction to the special section on school-related outcomes and success for youth with chronic medical conditions. School Psychology, 34(6), 622–626. DOI: 10.1037/spq0000332
- Preyde, M., Parekh, S., & Heintzman, J. (2018). Youths’ experiences of school re-integration following psychiatric hospitalization. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 27(1), 22–32.
- Qualtrics. (2018).
- Ratnapalan, S., Rayar, M. S., & Crawley, M. (2009). Educational services for hospitalized youth. Pediatrics & Child Health, 14(7), 433–436. DOI: 10.1093/pch/14.7.433
- Rodriguez, G. M., Wikel, K., Stefani, K. M., Gilbert, E. A., Reisinger, D. L., & Curtin, M. (2024). Hospitalized patients’ education needs: Review of a hospital-based school program. Clinical Pediatrics, 63(2), 239–243. DOI: 10.1177/00099228231181580
- Savina, E., Simon, J., & Lester, M. (2014). School reintegration following psychiatric hospitalization: An ecological perspective. Child & Youth Care Forum, 43(6), 729–746. DOI: 10.1007/s10566-014-9263-0
- Shaw, S. R., Glaser, S. E., Stern, M., Sferdenschi, C., & McCabe, P. (2010). Responding to students’ chronic illnesses. Principal Leadership, 10(7), 12–16.
- Shaw, S. R., & McCabe, P. C. (2008). Hospital-to-school transition for children with chronic illness: Meeting the new challenges of an evolving healthcare system. Psychology in the Schools, 45(1), 74–87. DOI: 10.1002/pits.20280
- Simon, J. B., & Savina, E. A. (2010). Transitioning children from psychiatric hospitals to schools: The role of the special educator. Residential Treatment for Children & Youth, 27, 41–54. DOI: 10.1080/08865710903508084
- Steinke, S. M., Elam, M., Irwin, M. K., Sexton, K., & McGraw, A. (2016). Pediatric hospital school programming: An examination of educational services for students who are hospitalized. Physical Disabilities: Education and Related Services, 35(1), 28–45. DOI: 10.14434/pders.v35i1.20896
- Vanderburg, J. L., Tow, A. C., Marraccini, M. E., Pittleman, C., & Cruz, C. M. (2023). Caregiver experiences of adolescent school reentry after adolescent hospitalization due to suicidal thoughts and behaviors: recommendations to improve reentry practices. Journal of School Health, 93(3), 206–218. DOI: 10.1111/josh.13291
- Vickers, V., & Romero, J. (2021). Supporting re-entry after a psychiatric hospitalization. Paperpresented at the National Association of School Psychologists Annual Convention [virtual].
- Weiss, C. L., Blizzard, A. M., Vaughan, C. L., Sydnor-Diggs, T., Edwards, S., & Stephan, S. H. (2015). Supporting the transition from inpatient hospitalization to school. Child and Adolescent Psychiatric Clinics of North America, 24, 371–383. DOI: 10.1016/j.chc.2014.11.009
- West, A. M., Denzer, A. Q., Wildman, B. G., & Anhalt, K. (2013). Teacher perception of burden and willingness to accommodate children with chronic health conditions. Advances in School Mental Health Promotion, 6(1), 35–50. DOI: 10.1080/1754730X.2012.760920
- Weiss, A. J., Liang, L., & Martin, K. (2022, November). Overview of hospital stays among children and adolescents, 2019. HCUP Statistical Brief #299. Agency for Healthcare Research and Quality, Rockville, MD. Retrieved from
www.hcup-us.ahrq.gov/reports/statbriefs/sb299-Hospital-Stays-Children-2019.pdf . - White, H., LaFleur, J., Houle, K., Hyry-Dermith, P., & Blake, S. M. (2017). Evaluation of a school-based transition program designed to facilitate school reentry following a mental health crisis or psychiatric hospitalization. Psychology in the Schools, 54, 868–882. DOI: 10.1002/pits.22036
- Wikel, K., & Markelz, A. M. (2023). School reentry plans for students with chronic illness: A literature review. Research, Advocacy, and Practice for Complex and Chronic Conditions, 41(1), 22–44. DOI: 10.14434/rapcc.v41i1.31767
