Quality Indicators for the Care of People with Intellectual Disability in Family Medicine in Slovenia: A Modified Delphi Study
By: Ana Perdih and Davorina Petek
References
- Maulik PK, Mascarenhas MN, Mathers CD, Dua T, Saxena S. Prevalence of intellectual disability: A meta-analysis of population-based studies. Res Dev Disabil. 32(2);2011:419–436. doi: 10.1016/j.ridd.2010.12.018.
- Scheffers F, Moonen X, Vugt E. External sources promoting resilience in adults with intellectual disabilities: A systematic literature review. J Intellect Disabil. 2022 26(1):227–243. doi: 10.1177/1744629520961942.
- Garcia JC, Diez E, Wojcik DZ, Santamaría M. Communication support needs in adults with intellectual disabilities and its relation to quality of life. Int J Environ Res Public Health. 2020 17:7370. doi: 10.3390/ijerph17207370.
- Brkić JN, Runjo V, Tamaš D, Slavković S, Milnkov V. Persons with intellectual disability: Sexual behaviour, knowledge and assertiveness. Zdr Varst. 2021 Mar 18;60(2):82–89. doi: 10.2478/sjph-2021-0013.
- Scior K, Hamid A, Hastings RP, Werner S, Belton C, Laniyan A. et al. Intellectual disability stigma and initiatives to challenge it and promote inclusion around the globe. J Policy Pract Intellect Disabil. 2020 17:165–175. doi: 10.1111/jppi.12330.
- Kerr M, Duntstan F, Thapar A. Attitudes of general practitioners to caring for people with learning disability. Br J Gen Pract 1996:92–94.
- Sullivan WF, Heng J, Cameron D, Lunsky Y, Cheetham T, Hennen B, et al. Consensus guidelines for primary health care of adults with developmental disabilities. Can Fam Physician. 2006 Nov 10;52(11):1410–1418.
- Zakon o celostni zgodnji obravnavi predšolskih otrok s posebnimi potrebami (ZOPOPP). Uradni list RS [Internet]. 41/2017 [cited 2026 Feb 18]. Available at:
https://pisrs.si/pregledPredpisa?id=ZAKO7681 - Clark L, While A. Meeting the needs of people with intellectual impairment in primary care. Br. J. Community Nurs. 2008 13(12):550–555. doi: 10.12968/bjcn.2008.13.12.31824.
- Lennox NG, Diggens JN, Ugoni AM. The general practice care of people with intellectual disability: Barriers and solutions. J Intellect Disabil Res. 1997;41(5):380–390. doi: 10.1111/j.1365-2788.1997.tb00725.x.
- Lewin G, Kousovista R, Abakasanga E, Shivamurthy R, Cosma G, Jun G, et al. Nature and prevalence of long-term conditions in people with intellectual disability: Retrospective longitudinal population-based study. BMJ Open. 2025 Jan 22;15(1):e090857. doi: 10.1136/bmjopen-2024-090857.
- Turner S, Moss S. The health needs of adults with learning disabilities and the Health of the Nation strategy. J Intellect Disabil Res. 1996;40(5):438–450.
- van Schrojenstein Lantman-De Valk HM, Metsemakers JF, Haveman MJ, Crebolder HF. Health problems in people with intellectual disability in general practice: A comparative study. Fam Pract. 2000 Oct 1;17(5):405–407.
- Tyrer F, Smith LK, McGrother CW. Mortality in adults with moderate to profound intellectual disability: A population-based study. J Intellect Disabil Res. 2007;51(7):520–527. doi: 10.1111/j.1365-2788.2006.00918.x.
- Kathleen N. Lohr. Medicare: A strategy for quality assurance: Volume II - sources and methods. Institute of Medicine (US) Committee to design a strategy for quality review and assurance in Medicare; Washington (DC): National Academies Press (US); 1990. doi: 10.17226/1548.
- Centre for Developmental Disability Studies for NSW Health. Health care in people with intellectual disability: Guidelines for general practitioners. NSW Department of Health; 2006.
- Quentin W, Partanen VM, Brownwood I, Klazinga N. Measuring healthcare quality. In: Busse R, Klazinga N, Panteli D, et al., editors. Improving healthcare quality in Europe: Characteristics, effectiveness and implementation of different strategies. Health Policy Series; 53; Copenhagen: European Observatory on Health Systems and Policies; 2019.
- Campbell S, Braspenning J, Hutchinson A, Marshall M. Research methods used in developing and applying quality indicators in primary care. Qual Saf Health Care. 2002 Dec;11(4):358–364. doi: 10.1136/qhc.11.4.358.
- Petek D, Campbell S, Serec M et al. Quality indicators of cardiovascular disease prevention for primary care in Slovenia. Zdrav Vestn 2012; 81:687–698. doi: 10.1371/journal.pone.0312137.
- Schifano J, Niederberger M. How Delphi studies in the health sciences find consensus: A scoping review. Syst Rev. 2025 Jan 14;14:14. doi: 10.1186/s13643-024-02738-3.
- Hohmann E, Cote MP, Brand JC. Research pearls: Expert consensus based evidence using the Delphi method. Arthrosc J Arthrosc Relat Surg. 2018 Dec 1;34(12):3278–3282. doi: 10.1016/j.arthro.2018.10.004.
- Campbell SM, Ludt S, Van Lieshout J, Boffin N, Wensing M, Petek D, et al. Quality indicators for the prevention and management of cardiovascular disease in primary care in nine European countries. Eur J Cardiovasc Prev Rehabil Off J Eur Soc Cardiol Work Groups Epidemiol Prev Card Rehabil Exerc Physiol. 2008 Oct;15(5):509–515. doi: 10.1097/HJR.0b013e328302f44d.
- Kazalniki kakovosti v ADM [Internet]. 2025 [cited 2025 Nov 2]. Available at:
https://www.referencna-ambulanta.si . - Poplas Susič T, Švab I, Kersnik J. The project of model practices in family medicine in Slovenia. Zdrav Vestn. 2013; 82:635–647.
- Poplas Susič A, Marušič D. Model practices. Bilten - ekonomika, organizacija, informatika v zdravstvu. 2011; 27(1):9–17.
- Zaletel-Kragelj L, Eržen I, Fras Z. Interregional differences in health in Slovenia. Croat Med J. 2004; 45:637–643.
- Lim PK, Hankir A, Zaman R. Innovative interventions to reduce the stigma attached to intellectual disabilities: A narrative review. Psychiatr Danub. 2021 Dec;33(Suppl 11):74–78.
- Doherty AJ, Atherton H, Boland P, Hastings R, Hives L, Hood K, et al. Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: An integrative review. BJGP Open. 2020 Jul 1;4(3):bjgpopen20X101030. doi: 10.3399/bjgpopen20X101030.
- Greenwood NW, Wilkinson J. Sexual and reproductive health care for women with intellectual disabilities: A primary care perspective. Int J Fam Med. 2013;2013:642472. doi: 10.1155/2013/642472.
- Lennox N, Ware R, Bain C, Gomez MT, Cooper SA. Effects of health screening for adults with intellectual disability: A pooled analysis. Br J Gen Pract. 2011 Mar 1;61(584):193–196. doi: 10.3399/bjgp11X561186.
- Hanefeld J, Powell-Jackson T, Balabanova D. Understanding and measuring quality of care: Dealing with complexity. Bull World Health Organ. 2017 May 1;95(5):368–374 doi: 10.2471/BLT.16.179309.
Language: English
Page range: 65 - 74
Submitted on: Nov 20, 2025
Accepted on: Mar 5, 2026
Published on: Jun 1, 2026
Published by: National Institute of Public Health, Slovenia
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year
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© 2026 Ana Perdih, Davorina Petek, published by National Institute of Public Health, Slovenia
This work is licensed under the Creative Commons Attribution 4.0 License.