Transition to Independent Living for Young Adults with Intellectual Disability: A Scoping Review
By: Iselin Evensen, Line Melboe and Anita Borch
References
- Altermark, N. 2017. “The Post-Institutional Era: Visions of History in Research on Intellectual Disability.” Disability and Society 32 (9): 1315–1332. DOI: 10.1080/09687599.2017.1322497
- Arksey, H., and O’Malley, L. 2005. “Scoping Studies: Towards a Methodological Framework.” International Journal of Social Research Methodology 8 (1): 19–32. DOI: 10.1080/1364557032000119616
- Arnett, J. J. 2001. “Conceptions of the Transition to Adulthood: Perspectives from Adolescence Through Midlife.” Journal of Adult Development 8 (2): 133–143. DOI: 10.1023/A:1026450103225
- Arnett, J. J. 2024. Emerging Adulthood: The Winding Road from the Late Teens Through the Twenties (Third edition). Oxford University Press. DOI: 10.1093/oso/9780197695937.001.0001
- Bibby, R. 2013. “‘I Hope He Goes First’: Exploring Determinants of Engagement in Future Planning for Adults with a Learning Disability Living with Aging Parents. What Are the Issues?” British Journal of Learning Disabilities 41: 94–105. DOI: 10.1111/j.1468-3156.2012.00727.x
- Bigby, C., Whiteside, M., and Douglas, J. 2019. “Providing Support for Decision Making to Adults with Intellectual Disability: Perspectives of Family Members and Workers in Disability Support Services.” Journal of Intellectual and Developmental Disability 44 (4): 396–409. DOI: 10.3109/13668250.2017.1378873
- Biswas, S., Tickle, A., Golijani-Moghaddam, N., and Almack, K. 2016. “The Transition into Adulthood for Children with a Severe Intellectual Disability: Parents’ Views.” International Journal of Developmental Disabilities 63 (2): 99–109. DOI: 10.1080/20473869.2016.1138598
- Borch, A., Thorvik, C., Wollscheid, S., and Ødemark, I. L. 2024. Kunnskapsoppsummeringer for samfunnsvitere. Cappelen Damm akademisk.
- Butora, J., Rimmerman, A., and Gur, A. 2018. Commentary on Article 19 of the UNCRPD-Living independently and Included in the Community.
- Cahill, C., and Guerin, S. 2022. “Current and Future Living Arrangements: The Perspective of Young Adults with Intellectual Disabilities.” British Journal of Learning Disabilities 51: 400–406. DOI: 10.1111/bld.12498
- Carney, T., and Beaupert, F. 2013. “Public and Private Brico-Lage-Challenges Balancing Law, Services and Civil Society in Advancing CRPD Supported Decision Making.” UNSW Law Journal 36 (1): 175–201.
- Chappell, A. L. 1997.
“From Normalisation to Where?” In Disability Studies: Past, Present and Future, edited by L. Barton and M. Oliver, 45–62. The Disability Press. - Codd, J., and Hewitt, O. 2020. “Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective.” British Journal of Learning Disabilities 49: 39–51. DOI: 10.1111/bld.12327
- Davy, L. 2015. “Philosophical Inclusive Design: Intellectual Disability and the Limits of Individual Autonomy in Moral and Political Theory.” Hypatia 30 (1): 132–148. DOI: 10.1111/hypa.12119
- de Beco, G. 2019. “The Indivisibility of Human Rights and the Convention on the Rights of Persons with Disabilities.” International and Comparative Law Quarterly 68 (1): 141–160. DOI: 10.1017/S0020589318000386
- Dirth, T. P., and Adams, G. A. 2019. “Decolonial Theory and Disability Studies: On the Modernity/Coloniality of Ability.” Journal of Social and Political Psychology 7 (1): 260–289. DOI: 10.5964/jspp.v7i1.762
- Ditchman, N., Werner, S., Kosyluk, K., Jones, N., Elg, B., and Corrigan, P. W. 2013. “Stigma and Intellectual Disability: Potential Application of Mental Illness Research.” Rehabilitation Psychology 58 (2): 206–16. DOI: 10.1037/a0032466
- Dommermuth, L. 2009. Når flytter de unge hjemmefra? : utflytting fra oppveksthjemmet. Samfunnsspeilet (trykt utg.). 23(2009) nr 1, 9–12.
- Fina, V. D., Cera, R., and Palmisano, G. 2017. The United Nations convention on the rights of persons with disabilities: A commentary. DOI: 10.1007/978-3-319-43790-3
- Foley, S. 2013. “Reluctant ‘Jailors’ Speak Out: Parents of Adults with Down Syndrome Living in the Parental Home on How They Negotiate the Tension Between Empowering and Protecting Their Intellectually Disabled Sons and Daughters.” British Journal of Learning Disabilities 41 (4): 304–311. DOI: 10.1111/j.1468-3156.2012.00758.x
- Gjermestad, A., Luteberget, L., Midjo, T., and Witsø, A. 2017. “Everyday Life of Persons with Intellectual Disability Living in Residential Settings: A Systematic Review of Qualitative Studies.” Disability & Society 32 (2): 213–232. DOI: 10.1080/09687599.2017.1284649
- Hall, E. 2005. “The Entangled Geographies of Social Exclusion/Inclusion for People with Learning Disabilities.” Health & place 11 (2): 107–115. DOI: 10.1016/j.healthplace.2004.10.007
- Henninger, N. A., and Taylor, J. L. 2014. “Family Perspectives on a Successful Transition to Adulthood for Individuals with Disabilities.” Intellectual and Developmental Disabilities 52 (2): 98–111. DOI: 10.1352/1934-9556-52.2.98
- Holdsworth, C., and Morgan, D. 2005. Transitions in context: leaving home, independence and adulthood: hbk. Open University Press.
- Isaacson, N. C., Cocks, E., and Netto, J. A. 2014. Launching: The Experiences of Two Young Adults with Intellectual Disability and Their Families in Transition to Individual Supported Living. Journal of Intellectual and Developmental Disability 39 (3): 270–281. DOI: 10.3109/13668250.2014.929643
- Leonard, H., Foley, K.-R., Pikora, T., Bourke, J., Wong, K., McPherson, L., Lennox, N., and Downs, J. 2016. “Transition to Adulthood for Young People with Intellectual Disability: The Experiences of Their Families. European Child & Adolescent Psychiatry 25 (12): 1369–1381. DOI: 10.1007/s00787-016-0853-2
- Levac, D., Colquhoun, H. and O’Brien, K. K. 2010. “Scoping studies: advancing the methodology.” Implementation Science 5:
69 . DOI: 10.1186/1748-5908-5-69 - Liddiard, K., and Slater, T. 2018. “‘Like, Pissing Yourself Is Not a Particularly Attractive Quality, Let’s Be Honest’: Learning to Contain Through Youth, Adulthood, Disability and Sexuality.” Sexualities 21 (3): 319–333. DOI: 10.1177/1363460716688674
- Mladenov, T. 2025. “Success and Its Discontents: Independent Living and the Convention on the Rights of Persons with Disabilities.” Disability & Society 1–5. DOI: 10.1080/09687599.2025.2458002
- Mladenov, T., Cojocariu, I. B., Angelova-Mladenova, L., Kokic, N., and Goungor, K. 2023. “Special Issue Editorial. Independent Living in Europe and Beyond: Past, Present and Future.” International Journal of Disability and Social Justice 3 (1): 4–23. DOI: 10.13169/intljofdissocjus.3.1.0004
- Moyà-Köhler, J. 2024. “Exploring Independent Living Initiatives for People with Intellectual Disabilities: Insights from the Spanish Case. Disability & Society 40 (6): 1555–1576. DOI: 10.1080/09687599.2024.2368559
- Nirje, B. 1999.
“How I Came to Formulate the Normalization Principle.” In A Quarter Century of Normalization and Social Role Valorization: Evolution and Impact, edited by R. J. Flynn and R. A. Lemay, 17–50. University of Ottawa Press. DOI: 10.2307/j.ctt1cn6s45.4 - Oliver, M. 1999.
“Capitalism, Disability and Ideology: A Materialist Critique of the Normalization Principle.” In A Quarter-Century of Normalization and Social Role Valorization: Evolution and Impact, edited by R. J. Flynn and R. A. Lemay, 163–177. University of Ottawa Press. DOI: 10.2307/j.ctt1cn6s45.8 - Perkins, M. M., Ball, M. M., Whittington, F. J., and Hollingsworth, C. 2012. “Relational Autonomy in Assisted Living: A Focus on Diverse Care Settings for Older Adults.” Journal of Aging Studies 26 (2): 214–225. DOI: 10.1016/j.jaging.2012.01.001
- Peters, M. D. J., Marnie, C., Tricco, A. C., Pollock, D., Munn, Z., Alexander, L., McInerney, P., Godfrey, C. M., and Khalil, H. 2020.
“Chapter 11: Scoping Reviews.” In JBI Manual for Evidence Synthesis. JBI. Available fromhttps://synthesismanual.jbi.global . - Piantedosi, D. K., and O’Shea, A. 2023. “The Role of People with Intellectual Disability in Intellectual Disability Research: A Systematic Review of Delphi Studies.” Journal of Intellectual Disabilities. DOI: 10.1177/17446295231225272
- Priestley, M. 2003. Disability: A Life Course Approach. Polity.
- Redgrove, F. J., Jewell, P., and Ellison, C. 2016. “Mind the Gap Between School and Adulthood for People with Intellectual Disabilities.” Research and Practice in Intellectual and Developmental Disabilities 3 (2): 182–190. DOI: 10.1080/23297018.2016.1188671
- Ryan, S., and Runswick-Cole, K. 2008. “Repositioning Mothers: Mothers, Disabled Children and Disability Studies.” Disability and Society 23 (3): 199–210. DOI: 10.1080/09687590801953937
- Salt, E., Melville, C., and Jahoda, A. 2019. “Transitioning to Adulthood with a Mild Intellectual Disability—Young People’s Experiences, Expectations and Aspirations.” Journal of Applied Research in Intellectual Disabilities 32 (4): 901–912. DOI: 10.1111/jar.12582
- Skagestad, L. J., Østensjø, S., and Ulvik, O. S. 2021. “Collaborations between Young People Living with Bodily Impairments and their Multiprofessional Teams: The Relational Dynamics of Participation and Power.” Children & Society 35 (5): 633–647. DOI: 10.1111/chso.12419
- Sperrin, Á. 2023. “A Disability Rights Approach to a Constitutional Right to Housing.” The International Journal of Disability and Social Justice 3 (1): 80–95.
https://www.jstor.org/stable/48724368 . DOI: 10.13169/intljofdissocjus.3.1.0080 - Stalker, K. 2012.
“Theorising the Position of People with Learning Difficulties within Disability Studies: Progress and Pitfalls.” In Routledge Handbook of Disability Studies, edited by N. Watson, A. Roulstone, and C. Thomas, 122–135. Routledge. ISBN 9780415574006. - Stancliffe, R. J., Lakin, K. C., Larson, S., Engler J, Taub, S., and Fortune, J. 2011. “Choice of Living Arrangements.” Journal of Intellectual Disability Research 55 (8): 746–62. DOI: 10.1111/j.1365-2788.2010.01336.x
- Thomas, J., and Harden, A. 2008. “Methods for the Thematic Synthesis of Qualitative Research in Systematic Reviews.” BMC Medical Research Methodology 8 (1):
45 . DOI: 10.1186/1471-2288-8-45 - Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K., Colquhoun, H., Kastner, M., Levac, D., Ng, C., Sharpe, J. P., Wilson, K., Kenny, M., Warren, R., Wilson, C., Stelfox, H. T., and Straus, S. E. 2016. “A Scoping Review on the Conduct and Reporting of Scoping Reviews.” BMC Medical Research Methodology 16 (1):
15 . DOI: 10.1186/s12874-016-0116-4 - Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., Lewin, S., Godfrey, C. M., Macdonald, M. T., Langlois, E. V., Soares-Weiser, K., Moriarty, J., Clifford, T., Tuncalp, O., and Straus, S. E. 2018. “PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.” Annals of Internal Medicine 169 (7): 467–473. DOI: 10.7326/M18-0850
- United Nations (UN). 2006. CRPD, UN Convention on the rights of persons with disabilities.
- United Nations (UN). 2017. General comment No.5 on Article 19- the right to live independently and be included in the community.
- Young-Southward, G., Philo, C., and Cooper, S.-A. 2017. “What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review.” Journal of Applied Research in Intellectual Disabilities 30: 805–823. DOI: 10.1111/jar.12286
DOI: https://doi.org/10.16993/sjdr.1252 | Journal eISSN: 1745-3011
Language: English
Page range: 698 - 713
Submitted on: Jan 9, 2025
Accepted on: Jun 29, 2025
Published on: Dec 2, 2025
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2025 Iselin Evensen, Line Melboe, Anita Borch, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.