Figure 1
A PRISMA flow diagram illustrating the study selection process.
Table 1
Records categorized by author, title, year, country, study type, and participants.
| AUTHOR | TITLE | YEAR | COUNTRY | STUDY TYPE | PARTICIPANTS | |
|---|---|---|---|---|---|---|
| 1 | Abbott, D. & Heslop, P. | Where next? Transition pathways for young people with learning difficulties in U.K. residential schools and colleges | 2008 | UK | Interviews | 13 y.a., 16 parents, 27 prof. |
| 2 | Blacher, J., Kraemer, B. & Howell, E. | Family expectations and transition experiences for young adults with severe disabilities: Does syndrome matter? | 2010 | USA | Interviews, questionnaires | 246 Care givers |
| 3 | Blue-Banning, M., Turnbull, A. P. & Pereira, L. | Hispanic youth/young adults with disabilities: Parents’ visions for the future | 2002 | USA | Focus Group interviews | 38 parents |
| 4 | Cahill, C. & Guerin, S. | Current and future living arrangements: The perspective of young adults with intellectual disabilities | 2022 | Ireland | Interviews | 10 y.a., |
| 5 | Chambers, C. R., Hughes, C. & Carter, E. W. | Parent and sibling perspectives on the transition to adulthood | 2004 | USA | Questionnaires | 8 y.a., 8 parents, 8 siblings |
| 6 | Cheak-Zamora, N. C.,Teti, M., Maurer-Batjer, A, & Halloran, D. | Snapshots of Growing Up: Youth with Autism Explore Adulthood Through Photovoice | 2016 | USA | Photovoice | 11 y.a. |
| 7 | Clegg, J., Murphy, E., Almack, K. & Harvey, A. | Tensions around inclusion: Reframing the moral horizon | 2008 | UK | Interviews | 28 y.a., 19 mothers, 3 fathers, 1 sister5 couples, 14 transition workers |
| 8 | Dyke, P., Bourke, J., Llewellyn, G. & Leonard, H. | The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life | 2013 | AUS | Interviews | 18 mothers |
| 9 | Engwall, K. | “I’m too old to think five years ahead”. Parent carers of adult children with intellectual disabilities in Sweden | 2017 | SWE | Interviews | 7 mothers, 1 father |
| 10 | Floyd, F. J., Costigan, C. L. & Piazza, V. E. | The transition to Adulthood for Individuals with Intellectual disability | 2009 | USA/CAN | Longitudinal study | 140 parents |
| 11 | Glidden, L. M., Ludwig, J. A., Grein, K. A. & Hodapp, R. M. | Transitions to Adulthood: De- and Re-construction | 2012 | USA | Longitudinal study/ | 249 parents |
| 12 | Gray, K. M., Piccinin, A., Keating, C. M., Taffe, J., Parmenter, T. R., Hofer, S., Einfeld, S. L., & Tonge, B. J. | Outcomes in young adulthood: are we achieving community participation and inclusion? | 2014 | AUS/CAN | Epidemiological study | 578 children/y.a. |
| 13 | Henninger, N. A. & Taylor, J. L. | Family Perspectives on a Successful Transition to Adulthood for Individuals with Disabilities | 2014 | USA | Internet survey | 198 parents |
| 14 | Isaacson, N. C., Cocks, E. & Netto, J. A. | Launching: The experiences of two young adults with intellectual disability and their families in transition to individual supported living | 2014 | AUS | Case study | 2 y.a., parents, 3 professionals |
| 15 | Kim, I. & Dababnah, S. | Transition to adulthood: perspectives of Korean immigrant parents of individuals with intellectual and developmental disabilities | 2022 | USA | Interviews | 5 fathers, 15 mothers |
| 16 | Kirkendall, A., Doueck, H. J. & Saladino, A. | Transitional services for youth with developmental disabilities: living in college dorms | 2009 | USA | Interviews | 6 y.a., parents/guardian (n = 12) |
| 17 | Marshall, S. K., Stainton, T., Wall, J. M., Zhu, M., Murray, J., Wu, S., El Bouhali, A., Parada, F., Zaidman-Zait, A., & Young, R. A. | Transition to Adulthood as a Joint Parent-Youth Project for Young Persons with Intellectual and Developmental Disabilities | 2018 | CAN | Action Project | Eight parent-youth dyads (n = 16) |
| 18 | Midjo, T. & Aune, K. E. | Identity constructions and transition to adulthood for young people with mild intellectual disabilities | 2018 | NOR | Interviews | 4 y.a., 5 mothers, 5 professionals |
| 19 | Mojee, M. D. & Jahoda, A. | Transition to adulthood by young people with intellectual disabilities: Relationships between aspirations, self-determination and core evaluative beliefs | 2006 | UK | Interviews | 18 y.a., 16 peers |
| 20 | Murphy, E., Clegg, J. & Almack, K. | Constructing Adulthood in Discussions About the Futures of Young People With Moderate-Profound Intellectual Disabilities | 2011 | UK | Observation, interviews, discussion groups, documentary analysis | 28 y.a., 20 mothers, 3 fathers, 1 sister, 14 professionals |
| 21 | Rehm, R.S., Fuentes-Afflick, E., Fisher, L. T. & Chesla, C. A. | Parent and Youth Priorities During the Transition to Adulthood for Youth With Special Health Care Needs and Developmental Disability | 2012 | USA | Field study | 64 y.a., 77 parents, 68 professionals |
| 22 | Roos, E. & Søndenaa, E. | Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees | 2020 | NOR | Interviews | 9 parents, 9 professionals |
| 23 | Rubio-Jimenez, A.L. & Kershner, R. | Transition to independent living: Signs of self-determination in the discussions of Mexican students with intellectual disability | 2021 | UK | Discussions, observations | 6 y.a. |
| 24 | Scott, M. Foley, K-R., Bourke, J., Leonard, H. & Girdler, S. | ‘I have a good life’: the meaning of well-being from the perspective of young adults with Down syndrome | 2014 | AUS | Interviews | 12 y.a. |
| 25 | Skillern, S. & Carter, E. W. | La Transicion: parent perspectives on transition for Latino youth with intellectual and developmental disabilities | 2021 | USA | Interviews | 6 parents |
| 26 | Sosnowy, C., Silverman, C. & Shattuck, P. | Parents’ and young adults’ perspectives on transition outcomes for young adults with autism | 2018 | USA | Survey, interviews | 10 parents, 12 y.a. |
| 27 | Wilcox, G., McQuay, J. & Jones, K. | Transitioning to adulthood as a young person with an Intellectual Disability: Two case studies of mothers’ perceptions | 2019 | UK | Case study | 2 mothers |