Condition-related knowledge among children and adolescents with spina bifida in a Swedish county
References
- Beck
, J.S., A.T., and J.B.. 2004. Beck Youth Inventories. Manual. Swedish version: Eva Tideman. Stockholm: Psykologiförlaget. - Blom
, H.J., G.M., M., and R.H.. 2006. Neural tube defects and folate: Case far from closed. Nature Reviews Neuroscience: 724– 731. - Cabrera
, R.M., D.S., A.J., and R.H.. 2004. Investigations into the etiology of neural tube defects. Birth Defects Research Part C: Embryo Today: 330– 344. - Cavalheiro
, S., W.J., A.F., and C.G.. 2008. The role of fetal neurosurgery in spina bifida . In The spina bifida: Management and outcome, ed. M., G.and W. J., 95– 102. Milan: Springer. - Creswell
, J.W.. Research design: Qualitative, quantitative and mixed methods approaches. Thousand Oaks: Sage. - Davis
, B.E., D.B., W.O., K.D., and S.. 2006. Acquisition of autonomy skills in adolescents with myelomeningocele. Developmental Medicine and Child Neurology: 253– 258. - Dennis
, M., and M.A.. 2010. The cognitive phenotype of spina bifida meningomyelocele. Developmental Disabilities Research Reviews: 31– 39. - Dennis
, M., B., and M.A.. 1994. The content of narrative discourse in children and adolescents after early-onset hydrocephalus and in normally developing age peers. Brain and Language: 129– 165. - Dennis
, M., S.H., M., and J.M.. 2006. A model of neurocognitive function in spina bifida over the life span. Journal of the International Neuropsychological Society: 285– 296. - Dunn
, N.L., K.W., and R.W.. 1988. Young children with orthopedic handicaps: self-knowledge about their disability. Exceptional Children: 249– 252. - Edwinson
, M., E., and R.. 1988. Psychologic preparation program for children undergoing acute appendectomy. Pediatrics: 30– 36. - Erickson
, D.. Knowledge of disability in adolescents with spina bifida. Canadian Journal of Rehabilitation: 171– 175. - Feldman
, W.S., and J.W.. 1985. Conceptualizations of health and illness by children with spina bifida. Children's Health Care: 102– 108. - Friedman
, D., G.N., C., B., and K.. 2009. Trajectories of autonomy development across the adolescent transition in children with spina bifida. Rehabilitation Psychology: 16– 27. - Fägerskiöld
, A.M., and G.. 2010. Disabled children and adolescents may be outsiders in the community. International Nursing Review: 470– 477. - Graneheim
, U.H., and B.. 2004. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today: 105– 112. - Greenley
, R.N., R.M., G.N., B., and K.. 2006. Condition-related knowledge among children with spina bifida: Longitudinal changes and predictors. Journal of Pediatric Psychology: 828– 839. - Johnson
, S.B.. Knowledge, attitudes, and behavior: Correlates of health in childhood diabetes. Clinical Psychology Review: 503– 524. - Josan
, V., A., and W.J.. 2008. Epidemiology and aetiological factors . In The spina bifida: Management and outcome, ed. M., G.and W. J., 59– 65. Milan: Springer. - Kvale
, S.. Interviewing: learning the craft of qualitative research interviewing. Los Angeles: Sage Publications. - Lorenz
, R.A., N.K., and J.W.. 1985. Diet-related knowledge, skill, and adherence among children with insulin-dependent diabetes mellitus. Pediatrics: 872– 876. - Mattsson
, S., M., I., M., L., and E.. 2009. A Swedish national follow-up programme for children and adolescents with myelomeningocele. Cerebrospinal Fluid Research, no. suppl. S43– S43. - McDonnell
, G.V., and J.P.. 2000. Issues of medical management in adults with spina bifida. Child's Nervous System: 222– 227. - Olsson
, I., M., S., M., E., and L.. 2007. Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986–1989. Acta Paediatrica: 446– 449. - O'Mahar
, K., G.N., B., and J.. 2010. A camp-based intervention targeting independence among individuals with spina bifida. Journal of Pediatric Psychology: 848– 856. - Skär
, L.R.N.. Peer and adult relationships of adolescents with disabilities. Journal of Adolescence: 635– 649. - Stapleton
, D.R., L.C., S.R., S.R., J.L., and P.D.. 2000. What do children with cystic fibrosis and their parents know about nutrition and pancreatic enzymes?: 1494– 1500. - Streiner
, D.L., and G.R.. 2003. Health measurement scales: a practical guide to their development and use. Oxford: Oxford University Press.
DOI: https://doi.org/10.1080/15017419.2012.735202 | Journal eISSN: 1745-3011
Language: English
Page range: 127 - 140
Submitted on: Apr 22, 2012
Accepted on: Aug 29, 2012
Published on: Oct 2, 2014
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2014 Lina Strömfors, Lars Falk, Susan Wilhelmsson, Gunnar E. Höst, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.