Condition-related knowledge among children and adolescents with spina bifida in a Swedish county
Abstract
Spina bifida is a congenital birth defect, resulting in physical and cognitive dysfunctions. Condition-related knowledge among children and adolescents with spina bifida is essential to facilitate independent management of their condition. The aim was to describe the condition-related knowledge among children and adolescents with spina bifida in a Swedish county. Thirteen persons with spina bifida (10 to 17 years) participated. Condition-related knowledge was assessed (n = 13) using a questionnaire (KOSB) and a semi-structured interview (n = 8). Interview data were analyzed using qualitative content analysis. The participants had well-developed knowledge concerning proper bladder management, but were lacking knowledge of signs of shunt malfunctioning and etiology. Some participants were uninterested in learning about their condition, despite being aware that they lacked knowledge. The findings indicate potential areas that may be included in local educational initiatives. It should be considered that persons with spina bifida may not be motivated to learn more about their condition.
DOI: https://doi.org/10.1080/15017419.2012.735202 | Journal eISSN: 1745-3011
Language: English
Page range: 127 - 140
Submitted on: Apr 22, 2012
Accepted on: Aug 29, 2012
Published on: Oct 2, 2014
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
© 2014 Lina Strömfors, Lars Falk, Susan Wilhelmsson, Gunnar E. Höst, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.