References
- 1Bosisio F, Jox RJ, Jones L, Rubli Truchard E. Planning ahead with dementia: What role can advance care planning play? A review on opportunities and challenges. Swiss Med. Wkly. 2018; 148: w14706. DOI: 10.4414/smw.2018.14706
- 2Bond WF, Kim M, Franciskovich CM, Weinberg JE, Svendsen JD, Fehr LS, et al. Advance care planning in an accountable care organization is associated with increased advanced directive documentation and decreased costs. J. Palliat. Med. 2018; 21(4): 489–502. DOI: 10.1089/jpm.2017.0566
- 3Yadav KN, Gabler NB, Cooney E, Kent S, Kim J, Herbst N, et al. Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Aff. (Project Hope). 2017; 36(7): 1244–51. DOI: 10.1377/hlthaff.2017.0175
- 4Moorman SM, Inoue M. Persistent problems in end-of-life planning among young- and middle-aged American couples. J. Gerontol. 2013; 68(1): 97–106. DOI: 10.1093/geronb/gbs103
- 5Baig SS, Strong M, Rosser E, Taverner NV, Glew R, Miedzybrodzka Z, et al. 22 years of predictive testing for huntington’s disease: The experience of the UK Huntington’s prediction consortium. Eur. J. Hum. Genet. 2016; 24(10): 1396–1402. DOI: 10.1038/ejhg.2016.36
- 6Andersson PL, Petersén Å, Graff C, Edberg A. Ethical aspects of a predictive test for Huntington’s disease: A long term perspective. Nurs. Ethics. 2016; 23(5): 565–575. DOI: 10.1177/0969733015576356
- 7Booij SJ, Tibben A, Engberts DP, Marinus J, Roos RA. Thinking about the end of life: A common issue for patients with Huntington’s disease. J Neurol. 2014; 261(11): 2184–91. DOI: 10.1007/s00415-014-7479-4
- 8Downing NR, Goodnight S, Chae S, Perlmutter JS, McCormack M, Hahn E, et al. Factors associated with end-of-life planning in Huntington disease. Am J Hosp Palliat Care. 2018; 35(3): 440–47. DOI: 10.1177/1049909117708195
- 9Hosken R. Barriers and facilitators to end of life care in huntington’s disease: A review of the literature. Australas. J. Neurosci. 2019; 29(2): 33–42. DOI: 10.21307/ajon-2017-020
- 10Tarolli CG, Chesire AM, Biglan KM. Palliative care in Huntington disease: Personal reflections and a review of the literature. Tremor Other Hyperkinet Mov. 2017; 11(7): 454. DOI: 10.5334/tohm.375
- 11Barkley A, Liquori M, Cunningham A, Liantonio J, Worster B, Parks S. Advance care planning in a geriatric primary care clinic: A retrospective chart review. Am J Hosp Palliat Care. 2019; 36(1): 24–27. DOI: 10.1177/1049909118791126
- 12Risk J, Mohammadi L, Rhee J, Walters L, Ward PR. Barriers, enablers and initiatives for uptake of advance care planning in general practice: A systematic review and critical interpretive synthesis. BMJ open. 2019; 9(9):
e030275 . DOI: 10.1136/bmjopen-2019-030275
