Table 1
Sample Patient Demographics.
| DEMOGRAPHIC | PATIENTS, N = 91 |
|---|---|
| Age, mean (SD) | 51.23 (13.81) |
| Years of education, mean (SD) | 14.15 (2.44) |
| Sex, n (%) | |
| Men | 40 (44%) |
| Women | 51 (56%) |
| Race, n (%) | |
| White | 80 (87.9%) |
| Black | 5 (5.5%) |
| Asian | 1 (1.1%) |
| Other | 5 (5.5%) |
| Ethnicity, n (%) | |
| Non-Hispanic | 84 (92.3%) |
| Hispanic | 7 (7.7%) |
| Primary Language, n (%) | |
| English | 85 (93.4%) |
| Spanish | 4 (4.4%) |
| Korean | 1 (1.1%) |
| Polish | 1 (1.1%) |
| Marital Status, n (%) | |
| Single | 27 (29.7%) |
| Married | 49 (53.9%) |
| Divorced | 14 (15.6%) |
| Widowed | 1 (1.1%) |
| Stage of Disease, n (%) | |
| Pre-symptomatic | 13 (14.3%) |
| Early | 15 (16.5%) |
| Moderate | 50 (55%) |
| Late | 13 (14.3%) |
Figure 1
AD Documentation Type.
Table 2
Patient Characteristics of AD Documentation.
| PATIENT CHARACTERISTIC | NO ADVANCE DIRECTIVE DOCUMENTATION (N = 69) | ADVANCE DIRECTIVE DOCUMENTED IN PROVIDER NOTE (N = 22) | P-VALUE |
|---|---|---|---|
| # of years since HD genetic testing, mean (SD) | 7.38 (6.15) | 9.77 (6.08) | 0.11 |
| Presence of dysphagia n, (%) | |||
| No | 47 (68.1) | 9 (40.9) | 0.02* |
| Yes | 22 (31.9) | 13 (59.1)* | |
| Cognitive Impairment, n (%) | |||
| None | 16 (23.2) | 1 (4.6) | 0.02* |
| MCI | 25 (36.2) | 5 (22.7) | |
| Dementia | 28 (40.6) | 16 (72.7)* | |
| Insurance status, n (%) | |||
| Not insured | 4 (5.9) | 1 (4.6) | 1.0 |
| Insured | 65 (94.2) | 21 (95.5) | |
| Primary insurance type, n (%) | |||
| Commercial | 34 (49.3) | 3 (13.6) | 0.01* |
| Medicare | 21 (30.4) | 16 (72.7)* | |
| Medicaid | 9 (13) | 2 (9.1) | |
| VA | 1 (1.5) | 0 | |
| N/A | 4 (5.8) | 1 (4.6) | |
| Stage of Disease, n (%) | |||
| Pre-Symptomatic | 13 (18.8) | 0 | 0.003* |
| Early | 14 (20.3) | 1 (4.6) | |
| Moderate | 36 (52.2) | 14 (63.6)* | |
| Late | 6 (8.7) | 7 (31.8)* |
[i] MCI = Mild Neurocognitive Impairment, VA = Veterans Affairs insurance.
* Denotes significance.