Abstract
Purpose: This workshop seeks to test out a new co-designed model of integrated care for people living with dementia at the end of life. Feedback from this workshop will help to modify the co-design proposals to support the intended piloting of the model. It aims to provide 'face validity for the model.
Background: Between 2019 and 2022, the Central Coast Research Institute (CCRI) undertook a clinician-led translational research project called ‘Enabling Better Care at the End of Life for the Central Coast Community’. This work prioritised the need to improve care and outcomes for people living with dementia at the end of life and developed a new model of integrated care for piloting [1]. In November 2022, representatives of the CCRI took forward a co-design process across key stakeholders to establish how such a health and aged care model might be co-created.
Method: The co-design process has been, and will be, undertaking 4 facilitated half-day co-design workshops with approximately 40 individuals including carers, aged care providers, clinicians, managers and researchers.
Workshop 1 (Diagnosis) was completed in May 2023. This undertook a root cause analysis of the underlying challenges and issues that lie behind the need for integrated care to support its design and development. It discussed the current breadth of care and support available to people and carers, and assessed current strengths and weaknesses that may impact on the design and implementation of a new care model on the Central Coast. The co-design workshop established problem statements, a justification for the new model of care, and a set of core priorities for action.
Workshops 2 & 3 (Analysis and Design) will be held in July and August 2023. Using logic modelling, these will develop a structured approach to the design of the model of care in the Central Coast context. The purpose will be to:
•Build an in-depth understanding of how the model will deliver intended results – the compelling case for change
•Assess the strength of the intervention assumptions
•Identify (hypothesized) cause-effect relationships
•Build relevant outcomes indicators
•Look into consistency of interventions
•Raise awareness and build common understanding of the model through engagement with stakeholders
•Reflect on assumptions and external factors
By identifying short, medium and long-term outcomes, the logic model sets up a framework to review and understand the likely impact of the model of care. It establishes how these might enable short-, medium- and long-term goals and provides a basis for understanding costs and benefits.
Workshop 4: (Vision, purpose and strategic planning) will be held in September. Participants will work together to develop the vision and purpose of the care model. A strategic plan is drafted to enable participants to understand the importance of a coherent change management strategy with a set of clear priority actions.
Workshop 5: (Testing) will be held at APIC3 conference.
[1] Lewis S et al (2023) Models of Care for People with Dementia Approaching End-of-Life: A Rapid Review, Palliative Medicine, 1-16. https://journals.sagepub.com/doi/pdf/10.1177/02692163231171181