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Stakeholders’ Perspectives on the Quality of End-of-Life Health Care Services for Chronic Obstructive Airways Disease: A Focus Group Study Cover

Stakeholders’ Perspectives on the Quality of End-of-Life Health Care Services for Chronic Obstructive Airways Disease: A Focus Group Study

Open Access
|Aug 2023

References

  1. World Health Organization. Top 10 causes of death. [webpage on the internet]: Available from: https://www.who.int/news-room/fact-sheets/detail/the-top-10-causes-of-death. Accessed; 2021.
  2. Elkington H, White P, Addington-Hall J, Higgs R, Pettinari C. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med. 2004; 98(5): 43945. DOI: 10.1016/j.rmed.2003.11.006
  3. Barnard LT, Zhang J. The impact of respiratory disease in New Zealand: 2020 update. Asthma and Respiratory Foundation NZ; 2021.
  4. Landers A, de Koning Gans JM, Pitama S, Palmer S, Beckert L. Patient, carer and health professional experiences of end-of-life care services in chronic obstructive pulmonary disease: an interpretive synthesis of qualitative studies. Integrated Healthcare Journal. 2022; 4(1): e000121. DOI: 10.1136/ihj-2021-000121
  5. Stokes T, Tiatia Fa’stoese Latu TE, Doolan-Noble F, Baxter J, McAuley K, Hannah D, Donlevy S, Dummer J. Improving access to health care for people with severe chronic obstructive pulmonary disease (COPD) in Southern New Zealand: qualitative study of the views of health professional stakeholders and patients. BMJ Open. 2019; 9. DOI: 10.1136/bmjopen-2019-033524
  6. Aasbo G, Rugkasa J, Solbraekke KN, Werner A. Negotiating the care-giving role: Family members’ experience during critical exacerbation of COPD in Norway. Health Soc Care Community. 2017; 25(2): 61220. DOI: 10.1111/hsc.12350
  7. Ek K, Andershed B, Sahlberg-Blom E, Ternestedt B. The unpredictable death – The last year of life for patients with advanced COPD: Relatives’ stories. Palliative and Supportive Care. 2015; 13(5): 12131222. Date of Publication: 01 Oct 2015. DOI: 10.1017/S1478951514001151
  8. Beernaert K, Cohen J, Deliens L, Devroey D, Vanthomme K, Pardon K, et al. Referral to palliative care in COPD and other chronic diseases: a population-based study. Respir Med. 2013; 107(11): 17319. DOI: 10.1016/j.rmed.2013.06.003
  9. Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. The Lancet Respiratory Medicine. 2014; 2(12): 97987. DOI: 10.1183/23120541.00102-2017
  10. Smallwood N, Thompson M, Warrender-Sparkes M, Eastman P, Le B, Irving L, et al. Integrated respiratory and palliative care may improve outcomes in advanced lung disease. ERJ open research. 2018; 4(1). DOI: 10.2147/COPD.S210916
  11. Kendzerska T, Nickerson JW, Hsu AT, Gershon AS, Talarico R, Mulpuru S, et al. End-of-life care in individuals with respiratory diseases: a population study comparing the dying experience between those with chronic obstructive pulmonary disease and lung cancer. International journal of chronic obstructive pulmonary disease. 2019; 1691701.
  12. Ministry of Health NZ. Long-term conditions 2020 [webpage on the internet] Available from: https://www.health.govt.nz/our-work/diseases-and-conditions/long-term-conditions#:~:text=LTCs%20include%20conditions%20such%20as,numbers%20of%20people%20with%20LTC.
  13. Woods KJ. The development of integrated health care models in Scotland. International journal of integrated care. 2001; 1. DOI: 10.5334/ijic.29
  14. Humphries R. Integrated health and social care in England–Progress and prospects. Health Policy. 2015; 119(7): 8569. DOI: 10.1016/j.healthpol.2015.04.010
  15. Cumming J, Middleton L, Silwal P, Tenbensel T. Integrated Care in Aotearoa New Zealand 2008–2020. International Journal of Integrated Care. 2021; 21(4). DOI: 10.5334/ijic.5679
  16. Stats New Zealand. Census place summary Canterbury. 2018. [webpage on the internet]. Available from: https://www.stats.govt.nz/tools/2018-census-place-summaries/canterbury-region.
  17. Bohman J. Critical Theory Spring 2021. Available from: https://plato.stanford.edu/archives/spr2021/entries/critical-theory/.
  18. Bencherki N. Actor–Network Theory. The International Encyclopedia of Organizational Communication. 2017; 113. DOI: 10.1002/9781118955567.wbieoc002
  19. Saldaña J. The coding manual for qualitative researchers. The coding manual for qualitative researchers. 2021; 1440.
  20. Ferlie E, Fitzgerald L, McGivern G, Dopson S, Exworthy M. Networks in health care: a comparative study of their management, impact and performance. Report for the National Institute for Health Research Service Delivery and Organisation Programme; 2010.
  21. Patrício L, de Pinho NF, Teixeira JG, Fisk RP. Service design for value networks: enabling value cocreation interactions in healthcare. Service Science. 2018; 10(1): 7697. DOI: 10.1287/serv.2017.0201
  22. Iedema R, Verma R, Wutzke S, Lyons N, McCaughan B. A network of networks: the governance of deliberative approaches to healthcare improvement and reform. Journal of health organization and management. 2017; 31(2): 22336. DOI: 10.1108/JHOM-07-2016-0146
  23. Bainbridge D, Brazil K, Ploeg J, Krueger P, Taniguchi A. Measuring healthcare integration: Operationalization of a framework for a systems evaluation of palliative care structures, processes, and outcomes. Palliat Med. 2016; 30(6): 56779. DOI: 10.1177/0269216315619862
  24. Grenier C. Structuring an integrated care system: interpreted through the enacted diversity of the actors involved–the case of a French healthcare network. International Journal of Integrated Care. 2011; 11(1). DOI: 10.5334/ijic.526
  25. Kornelsen J, Friesen R. Building rural surgical networks: an evidence-based approach to service delivery and evaluation. Healthcare Policy. 2016; 12(1): 37. DOI: 10.12927/hcpol.2016.24779
  26. Gray J, Proudfoot S, Power M, Bennett B, Wells S, Seddon M. Target CLAB Zero: a national improvement collaborative to reduce central line-associated bacteraemia in New Zealand intensive care units. The New Zealand Medical Journal (Online). 2015; 128(1421): 13.
  27. Malby R, Anderson-Wallace M. NETWORKS IN HEALTHCARE Managing Complex Relationships: Emerald; 2016. DOI: 10.1108/9781786352835
DOI: https://doi.org/10.5334/ijic.7274 | Journal eISSN: 1568-4156
Language: English
Submitted on: Nov 2, 2022
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Accepted on: Jul 31, 2023
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Published on: Aug 8, 2023
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2023 Amanda Landers, Suzanne G. Pitama, Suetonia C. Palmer, Lutz Beckert, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.