Stakeholders’ Perspectives on the Quality of End-of-Life Health Care Services for Chronic Obstructive Airways Disease: A Focus Group Study

compassion listens (aware of)

compassion acts beyond the usual (responds to)

compassion understands (aware of)

compassion cares deeply for others (responds to)

compassion takes away burdens (responds to)

compassion supports (responds to)

compassion is interested (aware of)

compassion sometimes breaks the rules (responds to)

lack of compassion demoralises (aware of and responds to)

lack of compassion undermines trust (responds to)

lack of compassion shames (responds to)

lack of compassion creates anger (responds to)

commitment makes promises (dedication and engagement)

commitment provides continuity of care (dedication)

commitment fulfils duty (dedication and engagement)

commitment is persistent (dedication)

commitment leads to expectations being exceeded (dedication and engagement)

commitment is part of loving someone (engagement)

commitment is being reliable (dedication)

commitment is having courage (engagement)

commitment is consistent (dedication)

commitment makes promises that sometimes cannot be kept (dedication and engagement)

lack of commitment stops continuity of care (dedication)

commitment can feel like a duty (Dedication and engagement)

lack of commitment lets people down (dedication)

lack of commitment leads to inconsistencies (dedication)

competence knows about end-stage COPD (knowledgeable)

competence is pro-active (proficient)

competence is efficient (proficient)

competence communicates the treatment and plan (communication)

competence is accurate (knowledgeable and proficient)

competence knows what to do in a crisis (knowledgeable and proficient)

competences assess and reviews (proficient)

competence is up to date (knowledgeable)

competence is culturally aware (knowledgeable)

lack of competence in the management of end-stage COPD (knowledgeable)

lack of competence creates gaps in knowledge (communication)

lack of competence creates gaps in care (knowledgeable and proficient)

lack of cultural competence creates inequities (knowledgeable)

collaboration gives seamless care (team and responsible)

collaboration is flexible (team)

collaboration likes to find solutions (responsible)

collaboration opens doors (team)

collaboration knows own limitations (team)

collaboration shares control (team and responsible)

collaboration is aware and respectful of other team players (team)

collaboration validates everyone’s experience (team)

collaboration encourages others to participate

lack of collaboration removes choices from team members (responsible)

lack of collaboration impacts knowledge transfer (team)

lack of collaboration invalidates peoples’ experiences (team and responsible)

lack of collaboration disconnects team members (team)

community understands each other’s stories (common interests)

community puts others first (belonging)

community supports family culture (belonging)

community creates social interaction (belonging)

community gives purpose (belonging)

community has knowledge of the illness (common interests)

community crosses boundaries and is inclusive (belonging)

community steps into the gaps (belonging)

lack of community can lead to lack of advocacy (common interests)

lack of community creates an ‘us’ and ‘them’ (belonging)

lack of community causes isolation and loneliness (belonging)

lack of collaboration leads to exclusion and judgement (belonging)