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Implementing a Care Coordination Strategy for Children with Medical Complexity in Ontario, Canada: A Process Evaluation Cover

Implementing a Care Coordination Strategy for Children with Medical Complexity in Ontario, Canada: A Process Evaluation

Open Access
|Apr 2022

References

  1. Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SK, Simon TD, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011; 127(3): 52938. DOI: 10.1542/peds.2010-0910
  2. Miller AR, Condin CJ, McKellin WH, Shaw N, Klassen AF, Sheps S. Continuity of care for children with complex chronic health conditions: parents’ perspectives. BMC Health Services Research. 2009; 9: 242. DOI: 10.1186/1472-6963-9-242
  3. Casey PH, Lyle RE, Bird TM, Robbins JM, Kuo DZ, Brown C, et al. Effect of hospital-based comprehensive care clinic on health costs for medicaid-insured medically complex children. Archives of Pediatrics & Adolescent Medicine. 2011; 165(5): 3928. DOI: 10.1001/archpediatrics.2011.5
  4. Cohen E, Friedman JN, Mahant S, Adams S, Jovcevska V, Rosenbaum P. The impact of a complex care clinic in a children’s hospital. Child Care Health Dev. 2010; 36(4): 57482. DOI: 10.1111/j.1365-2214.2009.01069.x
  5. Bergman DA, Keller D, Kuo DZ, Lerner C, Mansour M, Stille C, et al. Costs and use for children with medical complexity in a care management program. Pediatrics. 2020; 145(4): e20192401. DOI: 10.1542/peds.2019-2401
  6. Kuo DZ, Berry JG, Glader L, Morin MJ, Johaningsmeir S, Gordon J. Health services and health care needs fulfilled by structured clinical programs for children with medical complexity. The Journal of Pediatrics. 2016; 169: 2916.e1. DOI: 10.1016/j.jpeds.2015.10.010
  7. Cohen E, Lacombe-Duncan A, Spalding K, MacInnis J, Nicholas D, Narayanan UG, et al. Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration. BMC Health Services Research. 2012; 12(1): 366. DOI: 10.1186/1472-6963-12-366
  8. Major N, Rouleau M, Krantz C, Morris K, Séguin F, Allard M, et al. It’s About Time: Rapid Implementation of a Hub-and-Spoke Care Delivery Model for Tertiary-Integrated Complex Care Services in a Northern Ontario Community. Healthcare Quarterly. 2018; 21(2): 3540. DOI: 10.12927/hcq.2018.25624
  9. Brenner M, O’Shea MP, Larkin P, Luzi D, Pecoraro F, Tamburis O, et al. Management and integration of care for children living with complex care needs at the acute–community interface in Europe. The Lancet Child & Adolescent Health. 2018; 2(11): 82231. DOI: 10.1016/S2352-4642(18)30272-4
  10. Cohen E, Berry JG, Camacho X, Anderson G, Wodchis W, Guttmann A. Patterns and costs of health care use of children with medical complexity. Pediatrics. 2012; 130(6): e146370. DOI: 10.1542/peds.2012-0175
  11. Tikkanen R, Osborn R, Mossialos E, Djordjevic A, Wharton G. International profiles of health care systems. The Commonwealth Fund; 2020. Accessed February 14, 2022.
  12. Lin JL, Quartarone S, Aidarus N, Chan CY, Hubbert J, Orkin J, et al. Process evaluation of a hub-and-spoke model to deliver coordinated care for children with medical complexity across Ontario: facilitators, barriers, and lessons learned. Healthcare Policy. 2021; 17(1): 104. DOI: 10.12927/hcpol.2021.26574
  13. Moore G, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions: Medical Research Council guidance. BMJ: British Medical Journal. 2015; 350. DOI: 10.1136/bmj.h1258
  14. Moore G, Audrey S, Barker M, Bond L, Bonell C, Cooper C, et al. Process evaluation in complex public health intervention studies: the need for guidance. Journal of Epidemiology Community Health. 2014; 68(2): 1012. DOI: 10.1136/jech-2013-202869
  15. Kuzel AJ. Sampling in Qualitative Inquiry. In: Crabtree BF, Miller WL (eds.), Doing Qualitative Research.> 1999; 3345. Thousand Oaks, CA: Sage Publications.
  16. Srivastava A, Thomson SB. Framework analysis: a qualitative methodology for applied policy research; 2009. Accessed February 14, 2022.
  17. Moore GF, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions: Medical Research Council guidance. BMJ. 2015; 350. DOI: 10.1136/bmj.h1258
  18. Pfadenhauer LM, Gerhardus A, Mozygemba K, Lysdahl KB, Booth A, Hofmann B, et al. Making sense of complexity in context and implementation: the Context and Implementation of Complex Interventions (CICI) framework. Implementation Science. 2017; 12(1): 21. DOI: 10.1186/s13012-017-0552-5
  19. McGilton KS, Cumal A, Corsi D, Gingrich S, Zheng N, Escrig-Pinol A. Context matters when implementing patient centred rehabilitation models for persons with cognitive impairment: a case study. BMC Health Services Research. 2021; 21(1): 204. DOI: 10.1186/s12913-021-06206-9
  20. Pordes E, Gordon J, Sanders LM, Cohen E. Models of care delivery for children with medical complexity. Pediatrics. 2018; 141(Supplement 3): S212S23. DOI: 10.1542/peds.2017-1284F
  21. Van Cleave J, Okumura MJ, Swigonski N, O’Connor KG, Mann M, Lail JL. Medical homes for children with special health care needs: primary care or subspecialty service? Academic pediatrics. 2016; 16(4): 36672. DOI: 10.1016/j.acap.2015.10.009
  22. Mosquera RA, Avritscher EB, Pedroza C, Bell CS, Samuels CL, Harris TS, et al. Hospital consultation from outpatient clinicians for medically complex children: a randomized clinical trial. JAMA pediatrics. 2021; 175(1): e205026e. DOI: 10.1001/jamapediatrics.2020.5026
  23. Larson IA, Hoffman A, Artman M. Maximizing health outcomes in a medical home for children with medical complexity: the Beacon Program. The Journal of pediatrics. 2017; 183: 45. DOI: 10.1016/j.jpeds.2017.01.024
  24. Palfrey JS, Sofis LA, Davidson EJ, Liu J, Freeman L, Ganz ML. The Pediatric Alliance for Coordinated Care: evaluation of a medical home model. Pediatrics. 2004; 113(Supplement 4): 150716. DOI: 10.1542/peds.113.S4.1507
  25. Feudtner C, Hogan AK. Identifying and improving the active ingredients in pediatric complex care. JAMA pediatrics. 2021; 175(1): e205042. DOI: 10.1001/jamapediatrics.2020.5042
  26. Altman L, Zurynski Y, Breen C, Hoffmann T, Woolfenden S. A qualitative study of health care providers’ perceptions and experiences of working together to care for children with medical complexity (CMC). BMC health services research. 2018; 18(1): 70. DOI: 10.1186/s12913-018-2857-8
  27. Cady RG, Belew JL. Parent perspective on care coordination services for their child with medical complexity. Children. 2017; 4(6): 45. DOI: 10.3390/children4060045
  28. Woodgate RL, Edwards M, Ripat JD, Borton B, Rempel G. Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needs. BMC pediatrics. 2015; 15(1): 115. DOI: 10.1186/s12887-015-0514-5
  29. Miller PM, Scanlan MK, Phillippo K. Rural cross-sector collaboration: A social frontier analysis. American Educational Research Journal. 2017; 54(1_suppl): 193S-215S. DOI: 10.3102/0002831216665188
  30. Silow-Carroll S, Rodin D, Pham A. Interagency cross-sector collaboration to improve care for vulnerable children: Lessons from six state initiatives. Health Management Associates https://www.lpfchorg/sites/default/files/field/publications/hma_interagency_collaboration_national_report_02. 2018. Accessed Feburary 14, 2022.
  31. Kingsnorth S, Lacombe-Duncan A, Keilty K, Bruce-Barrett C, Cohen E. Inter-organizational partnership for children with medical complexity: The integrated complex care model. Child: Care, Health and Development. 2015; 41(1): 5766. DOI: 10.1111/cch.12122
  32. Craig P, Di Ruggiero E, Frolich KL, Mykhalovskiy E, White M, Campbell R, et al. Taking account of context in population health intervention research: guidance for producers, users and funders of research. 2018. DOI: 10.3310/CIHR-NIHR-01
  33. Benson H, Sabater-Hernández D, Benrimoj SI, Williams KA. Piloting the integration of non-dispensing pharmacists in the Australian general practice setting: a process evaluation. International journal of integrated care; 2018; 18(2). DOI: 10.5334/ijic.3293
  34. Edgren L, Barnard K. Complex adaptive systems for management of integrated care. Leadership in Health Services; 2012. DOI: 10.1108/17511871211198061
  35. Begun JW, Zimmerman B, Dooley K. Health care organizations as complex adaptive systems. Advances in health care organization theory. 2003; 253: 288.
  36. Tsasis P, Evans JM, Owen S. Reframing the challenges to integrated care: a complex-adaptive systems perspective. International journal of integrated care. 2012; 12. DOI: 10.5334/ijic.843
  37. Trbovich P. Five ways to incorporate systems thinking into healthcare organizations. Biomedical instrumentation & technology. 2014; 48(s2): 316. DOI: 10.2345/0899-8205-48.s2.31
  38. Davis MM, Devoe M, Kansagara D, Nicolaidis C, Englander H. “Did I do as best as the system would let me?” Healthcare professional views on hospital to home care transitions. Journal of general internal medicine. 2012; 27(12): 164956. DOI: 10.1007/s11606-012-2169-3
  39. Kuluski K, Ho JW, Hans PK, Nelson ML. Community care for people with complex care needs: bridging the gap between health and social care. International journal of integrated care. 2017; 17(4). DOI: 10.5334/ijic.2944
  40. Quigley L, Lacombe-Duncan A, Adams S, Hepburn CM, Cohen E. A qualitative analysis of information sharing for children with medical complexity within and across health care organizations. BMC health services research. 2014; 14(1): 111. DOI: 10.1186/1472-6963-14-283
  41. Darker CD, Nicolson GH, Carroll A, Barry JM. The barriers and facilitators to the implementation of National Clinical Programmes in Ireland: using the MRC framework for process evaluations. BMC health services research. 2018; 18(1): 110. DOI: 10.1186/s12913-018-3543-6
  42. Cohen E, Lacombe-Duncan A, Spalding K, MacInnis J, Nicholas D, Narayanan UG, et al. Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration. BMC health services research. 2012; 12(1): 111. DOI: 10.1186/1472-6963-12-366
  43. Mosquera RA, Avritscher EB, Samuels CL, Harris TS, Pedroza C, Evans P, et al. Effect of an enhanced medical home on serious illness and cost of care among high-risk children with chronic illness: a randomized clinical trial. JAMA. 2014; 312(24): 26408. DOI: 10.1001/jama.2014.16419
  44. Simon TD, Whitlock KB, Haaland W, Wright DR, Zhou C, Neff J, et al. Effectiveness of a comprehensive case management service for children with medical complexity. Pediatrics. 2017; 140(6). DOI: 10.1542/peds.2017-1641
DOI: https://doi.org/10.5334/ijic.6073 | Journal eISSN: 1568-4156
Language: English
Submitted on: Aug 3, 2021
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Accepted on: Apr 11, 2022
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Published on: Apr 28, 2022
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2022 Samantha Quartarone, Jia Lu Lilian Lin, Julia Orkin, Nora Fayed, Simon French, Nathalie Major, Joanna Soscia, Audrey Lim, Sanober Diaz, Myla Moretti, Eyal Cohen, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.