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Co-Developing Strategies for Patient Engagement in Decentralized Rheumatic Heart Disease Care: Lessons from Northern Uganda Cover

Co-Developing Strategies for Patient Engagement in Decentralized Rheumatic Heart Disease Care: Lessons from Northern Uganda

Open Access
|Jun 2026

References

  1. Naseeb K, Khan MN, Soomro NA, Hameed A, Chand G, Hameed A, et al. Temporal Trends and Burden of Rheumatic Heart Disease in South Asia: A Comprehensive Analysis of Three Decades from Global Burden of Disease Study. Global Heart. 2024;19(1):53. DOI: 10.5334/gh.1336
  2. Institute for Health Metrics and Evaluation (IHME). GBD Compare Data Visualization [Internet]. Seattle, WA: IHME, University of Washington; 2025. Available from https://vizhub.healthdata.org/gbd-compare/.
  3. Beaton A, Okello E, Rwebembera J, Grobler A, Engelman D, Aleper J, et al. Secondary Antibiotic Prophylaxis for Latent Rheumatic Heart Disease. N Engl J Med. 2022;386(3):230240. DOI: 10.1056/NEJMoa2102074
  4. World Health Organization. WHO guideline on the prevention and diagnosis of rheumatic fever and rheumatic heart disease. World Health Organization; 2024. p. 53.
  5. Kevat PM, Reeves BM, Ruben AR, Gunnarsson R. Adherence to Secondary Prophylaxis for Acute Rheumatic Fever and Rheumatic Heart Disease: A Systematic Review. Curr Cardiol Rev. 2017;13(2):155166. DOI: 10.2174/1573403X13666170116120828
  6. Carman KL, Dardess P, Maurer M, Sofaer S, Adams K, Bechtel C, et al. Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies. Health Affairs. 2013;32(2):223231. DOI: 10.1377/hlthaff.2012.1133
  7. Graffigna G, Barello S, Bonanomi A, Lozza E. Measuring patient engagement: development and psychometric properties of the Patient Health Engagement (PHE) Scale. Front Psychol. 2015;6:274. DOI: 10.3389/fpsyg.2015.00274
  8. Nakagaayi D, Pulle J, Otim I, Akiya OC, Otto OH, Danforth K, et al. A decentralized delivery program for rheumatic heart disease treatment and prevention in Uganda. Nat Med. 2024;12. DOI: 10.1038/s41591-023-02646-4
  9. Minja NW, Pulle J, Rwebembera J, Ollberding NJ, Fall N, Atala J, et al. Integrating secondary prevention of rheumatic heart disease into the primary healthcare system in Northern Uganda. BMJ Glob Health. 2025;10(8). DOI: 10.1136/bmjgh-2024-018835
  10. IDEO. The Field Guide to Human-Centered Design. Design Kit; 2015.
  11. Minkler M. Community-based research partnerships: challenges and opportunities. J Urban Health. 2005;82:ii3ii12. DOI: 10.1093/jurban/jti034
  12. Uganda Bureau of Statistics. The National Population and Housing Census 2024 – Final Report. Kampala: Uganda; 2024.
  13. Vaughn LM. Group Level Assessment: A Large Group Method for Identifying Primary Issues and Needs within a Community. Sage Research Methods Cases. 2014. DOI: 10.4135/978144627305014541626
  14. Kieffer EC, Salabarría-Peña Y, Odoms-Young AM, Willis SK, Baber KE, Guzmán JR. The application of focus group methodologies to community-based participatory research. Methods in community-based participatory research for health. 2005;146166.
DOI: https://doi.org/10.5334/gh.1568 | Journal eISSN: 2211-8179
Language: English
Page range: 50 - 50
Submitted on: Mar 21, 2026
Accepted on: Jun 11, 2026
Published on: Jun 23, 2026
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services

© 2026 Jafesi Pulle, Lisa Vaughn, Isaac Otim, Doreen Nakagaayi, Michaela Pardo, Sarah deLoizaga, McCall Miller, Joselyn Rwebembera, Emmy Okello, Nelson K. Sewankambo, Kristen Danforth, Andrea Beaton, David Watkins, James Kayima, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.