Skip to main content
Have a personal or library account? Click to login
Co-Developing Strategies for Patient Engagement in Decentralized Rheumatic Heart Disease Care: Lessons from Northern Uganda Cover

Co-Developing Strategies for Patient Engagement in Decentralized Rheumatic Heart Disease Care: Lessons from Northern Uganda

Open Access
|Jun 2026

Figures & Tables

Table 1

Structured synthesis of co-generated strategies into priority implementation domains.

GROUP LEVEL ASSESSMENTSDESIGN FOCUS GROUP DISCUSSIONS
Initial co-generated strategies (n = 18)Synthesized themes (n = 7)Final priority domains (n = 4)
Strengthen patient follow-up registers and appointment logsStrengthening follow-up systemsCommunity integrated follow-up
Phone call reminders before clinic dates
Provider-initiated tracing for missed visits
Engage VHTs, peer specialists, and local leaders for tracing
Involve family members in appointment reminders and supportInvolving family members in care
Structured counselling at diagnosisEnhancing health education and counsellingStructured patient education and counselling
Ongoing education during clinic visits
Community-based RHD education and outreach
Use of visual and audio educational materials
Provide structured psychosocial support platformsProviding psychosocial support
Train providers in communication skillsModifying provider’s behavior through trainingProvider capacity and service delivery improvement
Incorporate communication modules into CME
Ensure correct injection technique to reduce pain
Improve clinic workflow to reduce wait timesImproving service organization
Ensure adequate consultation time for patient interaction
Improve privacy during injection visits
Improve forecasting of benzathine penicillin G and lidocaineEnsuring medicine and supply availabilityStock planning and medicine availability
Redistribute supplies across facilities to prevent stockouts
DOI: https://doi.org/10.5334/gh.1568 | Journal eISSN: 2211-8179
Language: English
Page range: 50 - 50
Submitted on: Mar 21, 2026
Accepted on: Jun 11, 2026
Published on: Jun 23, 2026
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services

© 2026 Jafesi Pulle, Lisa Vaughn, Isaac Otim, Doreen Nakagaayi, Michaela Pardo, Sarah deLoizaga, McCall Miller, Joselyn Rwebembera, Emmy Okello, Nelson K. Sewankambo, Kristen Danforth, Andrea Beaton, David Watkins, James Kayima, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.