References
- Bouma BJ, Mulder BJ. Changing landscape of congenital heart disease. Circulation Research. 2017;120(6):908–922. DOI: 10.1161/CIRCRESAHA.116.309302
- Roth GA, et al. Global burden of cardiovascular diseases and risk factors, 1990–2019: Update from the GBD 2019 study. Journal of American College of Cardiology. 2020;76(25):2982–3021. DOI: 10.1016/j.jacc.2020.11.010
- Su Z, et al. Improving long-term care and outcomes of congenital heart disease: Fulfilling the promise of a healthy life. The Lancet Child & Adolescent Health. 2023;7(7):502–518. DOI: 10.1016/S2352-4642(23)00053-6
- GBD 2017 Congenital Heart Disease Collaborators. Global, regional, and national burden of congenital heart disease, 1990–2017: A systematic analysis for the Global Burden of Disease Study 2017. The Lancet Child & Adolescent Health. 2020;4(3):185–200.
- He Q, et al. Failure to thrive in pediatric patients with congenital heart disease: A cross-sectional study of 13,256 patients. The Lancet Regional Health – Western Pacific. 2024;44:
101002 . DOI: 10.1016/j.lanwpc.2023.101002 - Sood E, et al. Neurodevelopmental outcomes for individuals with congenital heart disease: Updates in neuroprotection, risk-stratification, evaluation, and management: A scientific statement from the American Heart Association. Circulation. 2024;149(13):e997–e1022. DOI: 10.1161/CIR.0000000000001211
- Miles KG, et al. Mental health conditions among children and adolescents with congenital heart disease: A Danish population-based cohort study. Circulation. 2023;148(18):1381–1394. DOI: 10.1161/CIRCULATIONAHA.123.064705
- Feldmann M, et al. Cognitive and executive function in congenital heart disease: A meta-analysis. Pediatrics. 2021;148(4):
e2021050875 . DOI: 10.1542/peds.2021-050875 - Salvador-Carulla L, et al. Intellectual developmental disorders: Towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD-11. World Psychiatry. 2011;10(3):175–180. DOI: 10.1002/j.2051-5545.2011.tb00045.x
- Verrall CE, et al. ‘Big issues’ in neurodevelopment for children and adults with congenital heart disease. Open Heart. 2019;6(2):
e000998 . DOI: 10.1136/openhrt-2018-000998 - Gaynor JW, et al. Neurodevelopmental outcomes after cardiac surgery in infancy. Pediatrics. 2015;135(5):816–825. DOI: 10.1542/peds.2014-3825
- Sengupta A, et al. Impact of residual lesion severity on neurodevelopmental outcomes following congenital heart surgery in infancy and childhood. Pediatric Cardiology. 2024;45(8):1676–1691. DOI: 10.1007/s00246-023-03248-0
- Ferrari AJ, et al. Global incidence, prevalence, years lived with disability (YLDs), disability-adjusted life-years (DALYs), and healthy life expectancy (HALE) for 371 diseases and injuries in 204 countries and territories and 811 subnational locations, 1990–2021: A systematic analysis for the Global Burden of Disease Study 2021. The Lancet. 2024;403(10440):2133–2161. DOI: 10.1016/S0140-6736(24)00757-8
- Steinmetz JD, et al. Global, regional, and national burden of disorders affecting the nervous system, 1990–2021: A systematic analysis for the Global Burden of Disease Study 2021. The Lancet Neurology. 2024;23(4):344–381. DOI: 10.1016/S1474-4422(24)00038-3
- Hankey BF, et al. Partitioning linear trends in age-adjusted rates. Cancer Causes and Control. 2000;11(1):31–35. DOI: 10.1023/A:1008953201688
- GBD 2019 Mental Disorders Collaborators. Global, regional, and national burden of 12 mental disorders in 204 countries and territories, 1990–2019: A systematic analysis for the Global Burden of Disease Study 2019. The Lancet Psychiatry. 2022;9(2):137–150. DOI: 10.1016/S2215-0366(21)00395-3
- Chen S, et al. Estimates and projections of the global economic cost of 29 cancers in 204 countries and territories from 2020 to 2050. JAMA Oncology. 2023;9(4):465–472. DOI: 10.1001/jamaoncol.2022.7826
- Larsen B, Sánchez-Triana E. Global health burden and cost of lead exposure in children and adults: A health impact and economic modelling analysis. The Lancet Planetary Health. 2023;7(10):e831–e840. DOI: 10.1016/S2542-5196(23)00166-3
- Joinpoint Trend Analysis Software. Available from:
https:/surveillance.cancer.gov/joinpoint/ (2024, accessed 1 August 2024). - Olsen M, et al. Congenital heart defects and developmental and other psychiatric disorders. Circulation. 2011;124(16):1706–1712. DOI: 10.1161/CIRCULATIONAHA.110.002832
- El-Chouli M, et al. Lifetime risk of comorbidity in patients with simple congenital heart disease: A Danish nationwide study. European Heart Journal. 2022;44(9):741–748. DOI: 10.1093/eurheartj/ehac727
- McDonald-McGinn DM, et al. 22q11.2 deletion syndrome. Nature Reviews Disease Primers. 2015;1:
15071 . DOI: 10.1038/nrdp.2015.71 - Bull MJ. Down syndrome. The New England Journal of Medicine. 2020;382(24):2344–2352. DOI: 10.1056/NEJMra1706537
- Gaynor JW, et al. Apolipoprotein E genotype and neurodevelopmental sequelae of infant cardiac surgery. The Journal of Thoracic and Cardiovascular Surgery. 2003;126(6):1736–1745. DOI: 10.1016/S0022-5223(03)01188-7
- Limperopoulos C, et al. Brain volume and metabolism in fetuses with congenital heart disease: Evaluation with quantitative magnetic resonance imaging and spectroscopy. Circulation. 2010;121(1):26–33. DOI: 10.1161/CIRCULATIONAHA.109.865568
- Leonetti C, et al. Cortical dysmaturation in congenital heart disease. Trends in Neuroscience. 2019;42(3):192–204. DOI: 10.1016/j.tins.2018.12.003
- Harbison AL, et al. Clinical factors associated with cerebral metabolism in term neonates with congenital heart disease. The Journal of Pediatrics. 2017;183:67–73.e1. DOI: 10.1016/j.jpeds.2016.12.061
- Giglia TM, et al. Prevention and treatment of thrombosis in pediatric and congenital heart disease: A scientific statement from the American Heart Association. Circulation. 2013;128(24):2622–2703. DOI: 10.1161/01.cir.0000436140.77832.7a
- Huang H, et al. Exposure to prescribed medication in early life and impacts on gut microbiota and disease development. eClinicalMedicine. 2024;68. DOI: 10.1016/j.eclinm.2024.102428
- Largo RH, et al. Significance of prenatal, perinatal and postnatal factors in the development of AGA preterm infants at five to seven years. Developmental Medicine & Child Neurology. 1989;31(4):440–456. DOI: 10.1111/j.1469-8749.1989.tb04022.x
- Schaefer C, et al. Neurodevelopmental outcome, psychological adjustment, and quality of life in adolescents with congenital heart disease. Developmental Medicine & Child Neurology. 2013;55(12):1143–1149. DOI: 10.1111/dmcn.12242
- Bucholz EM, et al. Trajectories in neurodevelopmental, health-related quality of life, and functional status outcomes by socioeconomic status and maternal education in children with single ventricle heart disease. The Journal of Pediatrics. 2021;229:289–293.e3. DOI: 10.1016/j.jpeds.2020.09.066
- Johnson SB, Riis JL, Noble KG. State of the art review: Poverty and the developing brain. Pediatrics. 2016;137(4):
e20153075 . DOI: 10.1542/peds.2015-3075 - Raouafi S, Achiche S, Raison M. Socioeconomic disparities and difficulties to access to healthcare services among Canadian children with neurodevelopmental disorders and disabilities. Epidemiology and Health. 2018;40:
e2018010 . DOI: 10.4178/epih.e2018010 - Su Z, et al. Global, regional, and national time trends in mortality for congenital heart disease, 1990–2019: An age-period-cohort analysis for the Global Burden of Disease 2019 study. EClinicalMedicine. 2022;43:
101249 . DOI: 10.1016/j.eclinm.2021.101249 - Olusanya BO, et al. Global burden of childhood epilepsy, intellectual disability, and sensory impairments. Pediatrics. 2020;146(1):
e20192623 . DOI: 10.1542/peds.2019-2623 - Nair R, et al. Significant regional inequalities in the prevalence of intellectual disability and trends from 1990 to 2019: A systematic analysis of GBD 2019. Epidemiology and Psychiatric Sciences. 2022;31:
e91 . DOI: 10.1017/S2045796022000701 - Deng L, Li Q, Cheng Z. Evaluating the global, regional, and national burden of congenital heart disease in infants younger than 1 year: A 1990–2021 systematic analysis for the GBD study 2021. Frontiers in Pediatrics. 2025;13:
1467914 . DOI: 10.3389/fped.2025.1467914 - Saxena A. Pediatric cardiac care in India: Current status and the way forward. Future Cardiology. 2018;14(1):1–4. DOI: 10.2217/fca-2017-0084
- Australian Early Development Census. Available from:
https://www.aedc.gov.au/early-childhood/findings-from-the-aedc . 2021; AEDC National Report. - Cieza A, et al. Disability in children and adolescents must be integrated into the global health agenda. BMJ. 2021;372:
n773 . DOI: 10.1136/bmj.n773 - Parker DM, et al. Population-based estimates of the prevalence of children with congenital heart disease and associated comorbidities in the United States. Circulation: Cardiovascular Quality and Outcomes. 2024;17(9):
e010657 . DOI: 10.1161/CIRCOUTCOMES.123.010657 - Blaga OM, et al. Structure and continuity of intellectual development in early childhood. Intelligence. 2009;37(1):106–113. DOI: 10.1016/j.intell.2008.09.003
- Greenham M, et al. Outcome in childhood stroke. Stroke. 2016;47(4):1159–1164. DOI: 10.1161/STROKEAHA.115.011622
- Simon JL. The effect of income on fertility. Population Studies. 1969;23(3):327–341. DOI: 10.1080/00324728.1969.10405289
- Nakatani H. Ageing and shrinking population: The looming demographic challenges of super-aged and super-low fertility society starting from Asia. Global Health & Medicine. 2023;5(5):257–263. DOI: 10.35772/ghm.2023.01057
- Kobayashi K, et al. The current status of neuroprotection in congenital heart disease. Children (Basel). 2021;8(12):
1116 . DOI: 10.3390/children8121116 - Marino BS, et al. Neurodevelopmental outcomes in children with congenital heart disease: Evaluation and management: A scientific statement from the American Heart Association. Circulation. 2012;126(9):1143–1172. DOI: 10.1161/CIR.0b013e318265ee8a