Data Sovereignty and Open Sharing: Reconceiving Benefit-Sharing and Governance of Digital Sequence Information
By: Masanori Arita
References
- Act on the Protection of Personal Information (Act No. 57 of, 2003):
https://www.japaneselawtranslation.go.jp/en/laws/view/4241/en . - Alder, S. (2024) ‘HIPAA Explained’, The HIPAA Journal Available at:
https://www.hipaajournal.com/hipaa-explained/ . - Arthur, C. (2023) ‘Tech giants may be huge, but nothing matches big data,’ The Guardian, 23 August 2013. Available at:
https://www.theguardian.com/technology/2013/aug/23/tech-giants-data . - Atokar (2014) ‘Riding with the Stars: Passenger Privacy in the NYC Taxicab Dataset’, 15 September. Available at:
https://agkn.wordpress.com/2014/09/15/riding-with-the-stars-passenger-privacy-in-the-nyc-taxicab-dataset/ . - BEIS 2022. Intelligent open science: a case study of viral genomic data sharing during the COVID-19 pandemic (BEIS 2022/026). Available at:
https://www.gov.uk/government/publications/intelligent-open-science-viral-genomic-data-sharing-during-the-covid-19-pandemic . - CBD Conference of the parties (COP). Available at:
https://www.cbd.int/cop . - GDPR (2016) Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (Document 32016R0679). EUR-Lex.
- Karsch-Mizrachi, I., et al. (2024) ‘The international nucleotide sequence database collaboration (INSDC): Enhancing global participation’, Nucleic Acids Res, 53(D1), pp. D62–D66.
- Sheehan, N., Botta, F. and Leonelli, S. (2024) ‘Unrestricted versus regulated open data governance: A bibliometric comparison of sars-cov-2 nucleotide sequence databases’, Data Science J, 23:
29 , pp. 1–29 Available at: 10.5334/dsj-2024-029 - UNESCO Open science. Available at:
https://www.unesco.org/en/open-science . - WIPO Computer software. Available at:
https://www.wipo.int/en/web/copyright/activities/software .
DOI: https://doi.org/10.5334/dsj-2025-009 | Journal eISSN: 1683-1470
Language: English
Page range: 9 - 9
Submitted on: Jan 7, 2025
Accepted on: Feb 14, 2025
Published on: Feb 21, 2025
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
© 2025 Masanori Arita, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.