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Citizen Science for One Digital Health: A Rapid Qualitative Review of Studies in Air Quality with Reflections on a Conceptual Model Cover

Citizen Science for One Digital Health: A Rapid Qualitative Review of Studies in Air Quality with Reflections on a Conceptual Model

Open Access
|Dec 2022

References

  1. 1Abelenda-Alonso, G, Rombauts, A, Burguillos, N and Carratalà, J. 2021. One air, one health: air pollution in the era of antimicrobial resistance. Clinical Microbiology and Infection, 27(7): 947948. DOI: 10.1016/j.cmi.2021.04.006
  2. 2Augusterfer, EF, Mollica, RF and Lavelle, J. 2018. Leveraging technology in post-disaster settings: the role of digital health/telemental health. Current Psychiatry Reports, 20(10): 88. DOI: 10.1007/s11920-018-0953-4
  3. 3Barrett, M, Combs, V, Su, J, Henderson, K, Tuffli, M and AIR Louisville Collaborative. 2018. AIR Louisville: addressing asthma with technology, crowdsourcing, cross-sector collaboration, and policy. Health Affairs (Project Hope), 37(4): 525534. DOI: 10.1377/hlthaff.2017.1315
  4. 4Benis, A, Tamburis, O, Chronaki, C and Moen, A. 2021. One Digital Health: A unified framework for future health ecosystems. Journal of Medical Internet Research, 23(2): e22189. DOI: 10.2196/22189
  5. 5Benis, A and Tamburis, O. 2021. One Digital Health Is FAIR. Studies in Health Technology and Informatics, 287: 5758. DOI: 10.3233/SHTI210812
  6. 6Biesty, L, Meskell, P, Glenton, C, Delaney, H, Smalle, M, Booth, A, Chan, X, Devane, D and Houghton, C. 2020. A QuESt for speed: rapid qualitative evidence syntheses as a response to the COVID-19 pandemic. Systematic Reviews, 9(1): 256. DOI: 10.1186/s13643-020-01512-5
  7. 7Borda, A, Gray, K and Downie, L. 2019. Citizen science models in health research: an Australian commentary. Online Journal of Public Health Informatics, 11(3): e22. DOI: 10.5210/ojphi.v11i3.10358
  8. 8Calyx, C and Finlay, SM. 2022. Improving a framework for evaluating participatory science. Evaluation, 28(2): 150165. DOI: 10.1177/13563890221085996
  9. 9Carlson, CJ, Albery, GF, Merow, C, Trisos, CH, Zipfel, CM, Eskew, EA, Olival, KJ, Ross, N and Bansal, S. 2022. Climate change increases cross-species viral transmission risk. Nature, 607: 555562. DOI: 10.1038/s41586-022-04788-w
  10. 10Carminati, L. 2018. Generalizability in qualitative research: a tale of two traditions. Qualitative Health Research, 28(13): 20942101. DOI: 10.1177/1049732318788379
  11. 11Carvlin, GN, Lugo, H, Olmedo, L, Bejarano, E, Wilkie, A, Meltzer, D, Wong, M, King, G, Northcross, A, Jerrett, M, English, PB, Hammond, D and Seto, E. 2017. Development and field validation of a community-engaged particulate matter air quality monitoring network in Imperial, California, USA. Journal of the Air & Waste Management Association, 67(12): 13421352. DOI: 10.1080/10962247.2017.1369471
  12. 12Ceccaroni, L, Woods, SM, Sprinks, J, Wilson, S, Faustman, EM, Bonn, A, Greshake Tzovaras, B, Subirats, L and Kimura, AH. 2020. Citizen Science, Health, and Environmental Justice. The Science of Citizen Science. Cham: Springer, 219239. DOI: 10.1007/978-3-030-58278-4_12
  13. 13Che, WW, Frey, HC, Fung, JCH, Ning, Z, Qu, H, Lo, HK, Chen, L, Wong, T-W, Wong, MKM, Lee, OCW, Carruthers, D, Cheung, F, Chan, JWM, Yeung, DW, Fung, YK, Zhang, X, Stocker, J, Hood, C, Hohenberger, TL, Leung, KW, Louie, PYK, Li, ATY, Sun, L, Wei, P, Li, Z, Zhang, Y, Wang, M, Shen, Q, Huang, W, Lee, E, Patwary, A, Lei, X, Cheng, S, Hossain, MS, Tang, KTJ, Lao, XQ, Leung, R, Chan, D, Li, Y, Yuan, Z and Lau, AKH. 2020. PRAISE-HK: A personalized real-time air quality informatics system for citizen participation in exposure and health risk management. Sustainable Cities and Society, 54: 101986. DOI: 10.1016/j.scs.2019.101986
  14. 14Chevance, G, Hekler, EB, Efoui-Hess, M, Godino, J, Golaszewski, N, Gualtieri, L, Krause, A, Marrauld, L, Nebeker, C, Perski, O, Simons, D, Taylor, JC and Bernard, P. 2020. Digital health at the age of the Anthropocene. The Lancet Digital Health, 2(6): e290e291. DOI: 10.1016/S2589-7500(20)30130-8
  15. 15Ching, J and Kajino, M. 2020. Rethinking air quality and climate change after COVID-19. International Journal of Environmental Research and Public Health, 17(14): 5167. DOI: 10.3390/ijerph17145167
  16. 16Coghlan, S, Coghlan, BJ, Capon, A and Singer, P. 2021. A bolder One Health: expanding the moral circle to optimize health for all. One Health Outlook, 3(21). DOI: 10.1186/s42522-021-00053-8
  17. 17Cohen, AJ, Brauer, M and Burnett, R. 2017. Estimates and 25-year trends of the global burden of disease attributable to ambient air pollution: an analysis of data from the Global Burden of Diseases Study 2015. Lancet, 389: 19071918. DOI: 10.1016/S0140-6736(17)30505-6
  18. 18Crowe, S, Cresswell, K, Robertson, A, Huby, G, Avery, A, and Sheikh, A. 2011. The case study approach. BMC Medical Research Methodology, 11: 100. DOI: 10.1186/1471-2288-11-100
  19. 19Den Broeder, L, Devilee, J, Van Oers, H, Schuit, AJ and Wagemakers, A. 2018. Citizen Science for public health. Health Promotion International, 33(3): 505514. DOI: 10.1093/heapro/daw086
  20. 20English, PB, Richardson, MJ and Garzón-Galvis, C. 2018. From crowdsourcing to extreme citizen science: participatory research for environmental health. Annual Review of Public Health, 39(1): 335350. DOI: 10.1146/annurev-publhealth-040617-013702
  21. 21European Environment Agency. 2019. Assessing air quality through citizen science, EEA Report No 19/2019. Copenhagen: EEA. Retrieved from: https://www.eea.europa.eu/publications/assessing-air-quality-through-citizen-science.
  22. 22Fernández-Llamazares, Á, Garteizgogeascoa, M, Basu, ,N, Brondizio, ES, Cabez, M, Martínez-Alier, J, McElwee, P and Reyes-García, V. 2020. A state-of-the-art review of Indigenous peoples and environmental pollution. Integrated Environmental Assessment Management, 16(3): 324341. DOI: 10.1002/ieam.4239
  23. 23Fraisl, D, Hager, G, Bedessem, B, Gold, M, Hsing, PY, Danielsen, F, Hitchcock, CB, Hubert, JM, Piera, J, Spiers, H, Thiel, M, and Haklay, M. 2022. Citizen science in environmental and ecological sciences. Nature Review Methods Primers, 2: 64. DOI: 10.1038/s43586-022-00144-4
  24. 24Gabrys, J. 2017. Citizen sensing, air pollution and fracking: From ‘caring about your air’ to speculative practices of evidencing harm. Sociological Review, 65(2_suppl): 172192. DOI: 10.1177/0081176917710421
  25. 25Garnier, J, Savic, S, Boriani, E, Bagnol, B, Häsler, B and Kock, R. 2020. Helping to heal nature and ourselves through human-rights-based and gender-responsive One Health. One Health Outlook, 2(1): 118. DOI: 10.1186/s42522-020-00029-0
  26. 26Gibbs, E and Paul, J. 2014. The evolution of One Health: a decade of progress and challenges for the future. Veterinary Record, 174(4): 8591. DOI: 10.1136/vr.g143
  27. 27Godinho, MA, Borda, A, Kariotis, T, Molnar, A, Kostkova, P and Liaw, S-T. 2021. Knowledge co-creation in participatory policy and practice: Building community through data-driven direct democracy. Big Data & Society, 8(1). DOI: 10.1177/20539517211019430
  28. 28Gray, K. 2022. Climate change, human health, and health informatics: a new view of connected and sustainable digital health. Frontiers in Digital Health, 4: 869721. DOI: 10.3389/fdgth.2022.869721
  29. 29Gruetzmacher, K, Karesh, WB, Amuasi, JH, Arshad, A, Farlow, A, Gabrysch, S, Jetzkowitz, J, Lieberman, S, Palmer, C, Winkler, AS and Walzer, C. 2021. The Berlin principles on One Health – Bridging global health and conservation. The Science of the Total Environment, 764: 142919. DOI: 10.1016/j.scitotenv.2020.142919
  30. 30Haghi, M, Benis, A and Deserno, TM. 2022. Accident & Emergency Informatics and One Digital Health. IMIA Yearbook of medical informatics. DOI: 10.1055/s-0042-1742506
  31. 31Haklay, M, Fraisl, D, Greshake Tzovaras, B, Hecker, S, Gold, M, Hager, G, Ceccaroni, L, Kieslinger, B, Wehn, U, Woods, S, Nold, C, Balázs, B, Mazzonetto, M, Ruefenacht, S, Shanley, LA, Wagenknecht, K, Motion, A, Sforzi, A, Riemenschneider, D, Dorler, D, … and Vohland, K. 2021. Contours of citizen science: a vignette study. Royal Society Open Science, 8(8): 202108. DOI: 10.1098/rsos.202108
  32. 32Hancock, T and IUHPE Global Working Group on Waiora Planetary Health. 2021. Towards healthy One Planet cities and communities: planetary health promotion at the local level. Health Promotion International, 36(Supplement 1), i53i63. DOI: 10.1093/heapro/daab120
  33. 33Heigl, F, Kieslinger, B, Paul, KT, Uhlik, J and Dörler, D. 2019. Opinion: toward an international definition of citizen science. Proceedings. National Academies of Science USA, 116(17): 80898092. DOI: 10.1073/pnas.1903393116
  34. 34Hobbie, SE and Grimm, NB. 2020. Nature-based approaches to managing climate change impacts in cities. Philosophical Transactions of the Royal Society of London. Series B, Biological sciences, 375(1794): 20190124. DOI: 10.1098/rstb.2019.0124
  35. 35Hsu, YC, Cross, J, Dille, P, Tasota, M, Dias, B, Sargent, R, Huang, T-H and Nourbakhsh, I. 2020. Smell Pittsburgh: engaging community citizen science for air quality. ACM Transactions. Interactive Intelligent Systems, 10(4): 32. DOI: 10.1145/3369397
  36. 36Johnson, J and Degeling, C. 2019. Does One Health require a novel ethical framework? Journal of Medical Ethics, 45: 239243. DOI: 10.1136/medethics-2018-105043
  37. 37Johnston, JE, Juarez, Z, Navarro, S, Hernandez, A and Gutschow, W. 2019. Youth Engaged Participatory Air Monitoring: A ‘Day in the Life’ in Urban Environmental Justice Communities. International Journal of Environmental Research and Public Health, 17(1): 93. DOI: 10.3390/ijerph17010093
  38. 38Jørgensen, FA and Jørgensen, D. 2021. Citizen science for environmental citizenship. Conservation Biology, 35(4): 13441347. DOI: 10.1111/cobi.13649
  39. 39Kieslinger, B, Schäfer, T, Heigl, F, Dörler, D, Richter, A and Bonn, A. 2018. Evaluating citizen science: Towards an open framework. In: S Hecker, M Haklay, A Bowser, Z, Makuch, J Vogel, and A Bonn (Eds.), Citizen science – Innovation in Open Science, Society and Policy, 8198. London: UCL Press. DOI: 10.14324/111.9781787352339
  40. 40Kim, S and Sohanchyk, G. 2022. Exploring children’s engagement in monitoring indoor air quality: longitudinal study. JMIR Formative Research, 6(1): e32404. DOI: 10.2196/32404
  41. 41Landrigan, PJ, Fuller, R, Acosta, N, Adeyi, O, Arnold, R, Basu, NN, Baldé, AB, Bertollini, R, Bose-O’Reilly, S, Boufford, JI, Breysse, PN, Chiles, T, Mahidol, C, Coll-Seck, AM, Cropper, ML, Fobil, J, Fuster, V, Greenstone, M, Haines, A, Hanrahan, D, …, and Zhong, M. 2018. The Lancet Commission on pollution and health. Lancet, 391(10119): 462512. DOI: 10.1016/S0140-6736(17)32345-0
  42. 42Lederer, AM, Fredriksen, PM, Nkeh-Chungag, BN, Everson, F, Strijdom, H, De Boever, P and Goswami, N. 2021. Cardiovascular effects of air pollution: current evidence from animal and human studies. American Journal of Physiology: Heart and circulatory physiology, 320(4): H1417H1439. DOI: 10.1152/ajpheart.00706.2020
  43. 43Lelieveld, J, Pozzer, A, Pöschl, U, Fnais, M, Haines, A and Münzel, T. 2020. Loss of life expectancy from air pollution compared to other risk factors: a worldwide perspective. Cardiovascular Research, 116(11): 19101917. DOI: 10.1093/cvr/cvaa025
  44. 44Lepenies, R and Zakari, IS. 2021. Citizen science for transformative air quality policy in Germany and Niger. Sustainability (Switzerland), 13(7): 3973. DOI: 10.3390/su13073973
  45. 45Limaye, VS, Grabow, ML, Stull, VJ and Patz, JA. 2020. Developing a definition of climate and health literacy. Health Affairs, 39(12): 21822188. DOI: 10.1377/hlthaff.2020.01116
  46. 46Lindsey, M, Chen, S-R, Ben, R, Manoogian, M and Spradlin, J. 2021. Defining environmental health literacy. International Journal of Environmental Research and Public Health, 18(21): 11626. DOI: 10.3390/ijerph182111626
  47. 47Losacco, C and Perillo, A. 2018. Particulate matter air pollution and respiratory impact on humans and animals. Environmental Sciences and Pollution Research, 25(34): 3390133910. DOI: 10.1007/s11356-018-3344-9
  48. 48Lysaght, T, Capps, B and Bailey, M. 2017. Justice is the missing link in One Health: results of a mixed methods study in an urban city state. PLoS One, 12(1): e0170967. DOI: 10.1371/journal.pone.0170967
  49. 49Mahajan, S, Chung, MK, Martinez, J, Olaya, Y, Helbing, D and Chen, L-J. 2022. Translating citizen-generated air quality data into evidence for shaping policy. Humanities and Social Sciences Communication, 9: 122. DOI: 10.1057/s41599-022-01135-2
  50. 50Mathiarasan, S and Hüls, A. 2021. Impact of environmental injustice on children’s health-interaction between air pollution and socioeconomic status. International Journal of Environmental Research and Public Health, 18(2): 795. DOI: 10.3390/ijerph18020795
  51. 51McCarron, A, Semple, S, Braban, CF, Swanson, V, Gillespie, C and Price, HD. 2022. Public engagement with air quality data: using health behaviour change theory to support exposure-minimising behaviours. Journal of Exposure Science & Environmental Epidemiology. DOI: 10.1038/s41370-022-00449-2
  52. 52Molnár, , Simon, E, Tóthmérész, B, Ninsawat, S and Szabó, S. 2020. Air pollution induced vegetation stress–the air pollution tolerance index as a quick tool for city health evaluation. Ecological Indicators, 113: 106234. DOI: 10.1016/j.ecolind.2020.106234
  53. 53National Academies of Sciences, Engineering, and Medicine; Division on Earth and Life Studies; Board on Environmental Studies and Toxicology; Board on Life Sciences; and Standing Committee on Emerging Science for Environmental Health Decisions. 2018. Informing Environmental Health Decisions Through Data Integration: Proceedings of a Workshop in Brief, 31 May 2018. Washington, DC: National Academies Press. Retrieved from: https://www.ncbi.nlm.nih.gov/books/NBK507244/. DOI: 10.17226/25139
  54. 54Norgaard, O, Furstrand, D, Klokker, L, Karnoe, A, Batterham, R, Kayser, L and Osborne, R. 2015. The e-health literacy framework: a conceptual framework for characterizing e-health users and their interaction with e-health systems. Knowledge Management and E-Learning, 7(5): 552540. DOI: 10.34105/j.kmel.2015.07.035
  55. 55Nunn, JS, Shafee, T, Chang, S, Stephens, R, Elliott, J, Oliver, S, John, D, Smith, M, Orr, N, Preston, J, Borthwick, J, van Vlijmen, T, Ansell, J, Houyez, F, de Sousa, MSA, Plotz, RD, Oliver, JL, Golumbic, Y, Macniven, R, Wines, S, Borda, A, da Silva Hyldmo, H, Hsing, P-Y, Denis, L and Thompson, C. 2022. Standardised Data on Initiatives – STARDIT. Research Involvement and Engagement, 8: 31. DOI: 10.1186/s40900-022-00363-9
  56. 56Pritchard, H and Gabrys, J. 2016. From citizen sensing to collective monitoring: working through the perceptive and affective problematics of environmental pollution. GeoHumanities, 2(2): 354371. DOI: 10.1080/2373566X.2016.1234355
  57. 57Rocque, RJ, Beaudoin, C, Ndjaboue, R, Cameron, L, Poirier-Bergeron, L, Poulin-Rheault, RA, Fallon, C, Tricco, AC and Witteman, HO. 2021. Health effects of climate change: an overview of systematic reviews. BMJ Open, 11(6): e046333. DOI: 10.1136/bmjopen-2020-046333
  58. 58Rodney, RM, Swaminathan, A, Calear, AL, Christensen, BK, Lal, A, Lane, J, Leviston, Z, Reynolds, J, Trevenar, S, Vardoulakis, S and Walker, I. 2021. Physical and Mental Health Effects of Bushfire and Smoke in the Australian Capital Territory 2019–20. Frontiers in Public Health, 9: 682402. DOI: 10.3389/fpubh.2021.682402
  59. 59Roger, E, Turak, E and Tegart, P. 2019. Adopting citizen science as a tool to enhance monitoring for an environment agency. Citizen Science: Theory and Practice, 4(1): 35. DOI: 10.5334/cstp.231
  60. 60Rohlman, D, Donatuto, J, Heidt, M, Barton, M, Campbell, L, Anderson, KA and Kile, ML. 2019. A case study describing a community-engaged approach for evaluating polycyclic aromatic hydrocarbon exposure in a Native American community. International Journal of Environmental Research and Public Health, 16(3): 327. DOI: 10.3390/ijerph16030327
  61. 61Rüegg, SR, Nielsen, LR, Buttigieg, SC, Santa, M, Aragrande, M, Canali, M, Ehlinger, T, Chantziaras, I, Boriani, E, Radeski, M, Bruce, M, Queenan, K and Häsler, B. 2018. A systems approach to evaluate One Health initiatives. Frontiers in Veterinary Science, 5: 23. DOI: 10.3389/fvets.2018.00023
  62. 62Schaefer, T, Kieslinger, B and Fabian, CM. 2020. Citizen-based air quality monitoring: the impact on individual citizen scientists and how to leverage the benefits to affect whole regions. Citizen Science: Theory and Practice, 5(1): 6. DOI: 10.5334/cstp.245
  63. 63Sorensen, C, Murray, V, Lemery, J and Balbus, J. 2018. Climate change and women’s health: Impacts and policy directions. PLoS Medicine, 15(7): e1002603. DOI: 10.1371/journal.pmed.1002603
  64. 64Thomas, J and Harden, A. 2008. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8: 45. DOI: 10.1186/1471-2288-8-45
  65. 65Tricco, AC, Antony, J, Zarin, W, Strifler, L, Ghassemi, M, Ivory, J, Perrier, L, Hutton, B, Moher, D and Straus, SE. 2015. A scoping review of rapid review methods. BMC Medicine, 13: 224. DOI: 10.1186/s12916-015-0465-6
  66. 66Ulpiani, G, Hart, MA, Di Virgilio, G, Maharaj, AM, Lipson, MJ and Potgieter, J. 2022. A citizen centred urban network for weather and air quality in Australian schools. Science Data, 9: 129. DOI: 10.1038/s41597-022-01205-9
  67. 67Valencia, JC and Fonseca, O. 2019. Air pollution, citizen data collectives and communication agenda setting in Colombia. WIT Transactions on Ecology and the Environment, 236: 3343. DOI: 10.2495/AIR190041
  68. 68Varaden, D, Leidland, E, Lim, S and Barratt, B. 2021. “I am an air quality scientist”– Using citizen science to characterise school children’s exposure to air pollution. Environmental Research, 201: 111536. DOI: 10.1016/j.envres.2021.111536
  69. 69Villanueva-Cabezas, JP, Rajkhowa, A and Campbell, A. 2020. One Health needs a vision beyond zoonoses. Transboundary and Emerging Diseases, 67(6): 22712273. DOI: 10.1111/tbed.13782
  70. 70Villanueva-Cabezas, JP, Winkel, KD, Campbell, PT, Wiethoelter, A and Pfeiffer, C. 2022. One Health education should be early, inclusive, and holistic. The Lancet Planetary Health, 6(3): e188e189. DOI: 10.1016/S2542-5196(22)00018-3
  71. 71Whitmee, S, Haines, A, Beyrer, C, Boltz, F, Capon, AG, de Souza Dias, BF, Ezeh, A, Frumkin, H, Gong, P, Head, P, Horton, R, Mace, GM, Marten, R, Myers, SS, Nishtar, S, Osofsky, SA, Pattanayak, SK, Pongsiri, MJ, Romanelli, C, Soucat, A, Vega, J and Yach, D. 2015. Safeguarding human health in the Anthropocene epoch: report of The Rockefeller Foundation-Lancet Commission on planetary health. Lancet, 386(10007): 19732028. DOI: 10.1016/S0140-6736(15)60901-1
  72. 72Wiggins, A and Wilbanks, J. 2019. The rise of citizen science in health and biomedical research. The American Journal of Bioethics, 19(8): 314. DOI: 10.1080/15265161.2019.1619859
  73. 73Workman, A, Jones, PJ, Wheeler, AJ, Campbell, SL, Williamson, GJ, Lucani, C, Bowman, DMJS, Cooling, N and Johnston, FH. 2021. Environmental hazards and behavior change: user perspectives on the usability and effectiveness of the AirRater smartphone app. International Journal of Environmental Research and Public Health, 18: 3591. DOI: 10.3390/ijerph18073591
  74. 74World Health Organisation. 2006. WHO air quality guidelines: Global update 2005. WHO/SDE/PHE/OEH/06.02. Geneva: World Health Organization. Retrieved from: https://www.who.int/publications/i/item/WHO-SDE-PHE-OEH-06.02.
  75. 75World Health Organisation. 2021. Tripartite and UNEP support of OHHLEP’s Definition of One Health. Retrieved from: https://www.who.int/news/item/01-12-2021-tripartite-and-unep-support-ohhlep-s-definition-of-one-health.
  76. 76World Wildlife Federation. 2020. 3 billion animals impacted by Australia’s bushfire crisis, WWF Report, 28 July 2020. Retrieved from: https://www.wwf.org.au/news/news/2020/3-billion-animals-impacted-by-australia-bushfire-crisis.
  77. 77Ziss, E, Friesl-Hanl, W, Götzinger, S, Noller, C, Puschenreiter, M, Watzinger, A and Hood-Nowotny, R. 2021. Exploring the potential risk of heavy metal pollution of edible cultivated plants in urban gardening contexts using a citizen science approach in the project “Heavy Metal City-Zen.” Sustainability, 13(15): 8626. DOI: 10.3390/su13158626
DOI: https://doi.org/10.5334/cstp.531 | Journal eISSN: 2057-4991
Language: English
Submitted on: Jun 9, 2022
Accepted on: Oct 31, 2022
Published on: Dec 15, 2022
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2022 Timothy Kariotis, Ann Borda, Kenneth Winkel, Kathleen Gray, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.