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Designing Equitable, Transparent, Community-engaged Disaster Research Cover

Designing Equitable, Transparent, Community-engaged Disaster Research

Open Access
|May 2022

References

  1. 1Aguilera, R, Corringham, T, Gershunov, A, Leibel, S and Benmarhnia, T. 2021. Fine particles in wildfire smoke and pediatric respiratory health in California. Pediatrics, 147. DOI: 10.1542/peds.2020-027128
  2. 2Allan, SE, Smith, BW and Anderson, KA. 2012. Impact of the Deepwater Horizon oil spill on bioavailable polycyclic aromatic hydrocarbons in Gulf of Mexico coastal waters. Environmental science & technology, 46: 20332039. DOI: 10.1021/es202942q
  3. 3Anderson, K and Hillwalker, W. 2008. Bioavailability. In: Encylcopedia of Ecology, 1: 348357. Editors-in-Chief: Sven Erik Jørgensen and Brian D. Fath. DOI: 10.1016/B978-008045405-4.00375-X
  4. 4Anderson, KA, Points, GL, Donald, CE, Dixon, HM, Scott, RP, Wilson, G, Tidwell, LG, Hoffman, PD, Herbstman, JB and O’Connell, SG. 2017. Preparation and performance features of wristband samplers and considerations for chemical exposure assessment. Journal of exposure science & environmental epidemiology, 27: 551559. DOI: 10.1038/jes.2017.9
  5. 5Andress, L, Hall, T, Davis, S, Levine, J, Cripps, K and Guinn, D. 2020. Addressing power dynamics in community-engaged research partnerships. Journal of Patient-Reported Outcomes, 4: 24. DOI: 10.1186/s41687-020-00191-z
  6. 6Ausbrooks, CYB, Barrett, EJ and Martinez-Cosio, M. 2009. Ethical issues in disaster research: Lessons from Hurricane Katrina. Population Research and Policy Review, 28: 93106. DOI: 10.1007/s11113-008-9112-7
  7. 7Bergmann, AJ, Scott, RP, Wilson, G and Anderson, KA. 2018. Development of quantitative screen for 1550 chemicals with GC-MS. Analytical and bioanalytical chemistry, 410: 31013110. DOI: 10.1007/s00216-018-0997-7
  8. 8Bongers, S, Janssen, NA, Reiss, B, Grievink, L, Lebret, E and Kromhout, H. 2008. Challenges of exposure assessment for health studies in the aftermath of chemical incidents and disasters. Journal of exposure science & environmental epidemiology, 18: 341359. DOI: 10.1038/jes.2008.23
  9. 9Chari, R., Sayers, ELP, Amiri, S, Leinhos, M, Kotzias, V, Madrigano, J, Thomas, EV, Carbone, EG and Uscher-pines, L. 2019. Enhancing community preparedness: an inventory and analysis of disaster citizen science activities. BMC public health, 19: 115. DOI: 10.1186/s12889-019-7689-x
  10. 10Chmutina, K and Von meding, J. 2019. A Dilemma of language: “Natural disasters” in academic literature. International Journal of Disaster Risk Science, 10: 283292. DOI: 10.1007/s13753-019-00232-2
  11. 11Choi, J, Naderpajouh, N, Yu, DJ and Hastak, M. 2019. Capacity building for an infrastructure system in case of disaster using the system’s associated social and technical components. Journal of Management in Engineering, 35: 04019013. DOI: 10.1061/(ASCE)ME.1943-5479.0000697
  12. 12Collogan, LK, Tuma, F, Dolan-Sewell, R, Borja, S and Fleischman, AR. 2004. Ethical issues pertaining to research in the aftermath of disaster. Journal of traumatic stress, 17: 363372. DOI: 10.1023/B:JOTS.0000048949.43570.6a
  13. 13Cooper, CB, Rasmussen, LM and Jones, ED. 2021. Perspective: The power (dynamics) of open data in citizen science. Frontiers in Climate, 3. DOI: 10.3389/fclim.2021.637037
  14. 14Dixon, HM, Poutasse, CM and Anderson, KA. 2020. Silicone wristbands and wearables to assess chemical exposures. In: Phillips, KA, Yamamoto, DP and Racz, L (eds.), Total Exposure Health: An Introduction, 1 edn. a: CRC Press. DOI: 10.1201/9780429263286-11
  15. 15EPA. 2017. EPA: Status of superfund sites in areas affected by Harvey. Washington, DC: Environmental Protection Agency.
  16. 16Errett, NA, Haynes, EN, Wyland, N, Everhart, A, Pendergrast, C and Parker, EA. 2019. Assessing the national capacity for disaster research response (DR2) within the NIEHS Environmental Health Sciences Core Centers. Environmental Health, 18: 19. DOI: 10.1186/s12940-019-0498-y
  17. 17Finucane, ML, Clark-Ginsberg, A, Parker, AM, Becerra-Ornelas, AU, Clancy, N, Ramchand, R, Slack, T, Parks, V, Ayer, L, Edelman, AF, Petrun Sayers, EL, Nataraj, S, Bond, CA, Lesen, AE, Ferreira, RJ, Drakeford, L, Fiore, J, Weden, MM, Venable, B and Black, AB. 2020. Building community resilience to large oil spills: Findings and recommendations from a synthesis of research on the mental health, economic, and community distress associated with the Deepwater Horizon Oil Spill. Rand Corporation. DOI: 10.7249/RRA409-1
  18. 18Guerrini, CJ, Crossnohere, NL, Rasmussen, L and Bridges, JFP. 2021. A best–worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. data-level issues. Scientific Reports, 11: 19119. DOI: 10.1038/s41598-021-96743-4
  19. 19Halofsky, JE, Peterson, DL and Harvey, BJ. 2020. Changing wildfire, changing forests: the effects of climate change on fire regimes and vegetation in the Pacific Northwest, USA. Fire Ecology, 16: 4. DOI: 10.1186/s42408-019-0062-8
  20. 20Henderson, TL, Sirois, M, Chen, AC-C, Airriess, C, Swanson, DA and Banks, D. 2009. After a disaster: Lessons in survey methodology from Hurricane Katrina. Population Research and Policy Review, 28: 6792. DOI: 10.1007/s11113-008-9114-5
  21. 21Hicks, A, Barclay, J, Chilvers, J, Armijos, MT, Oven, K, Simmons, P and Haklay, M. 2019. Global mapping of citizen science projects for disaster risk reduction. Frontiers in Earth Science, 7: 226. DOI: 10.3389/feart.2019.00226
  22. 22Israel, BA, Schulz, AJ, Parker, EA and Becker, AB. 1998. Review of community-based research: assessing partnership approaches to improve public health. Annual review of public health, 19: 173202. DOI: 10.1146/annurev.publhealth.19.1.173
  23. 23Knack, JM, Chen, Z, Williams, KD and Jensen-Campbell, LA. 2006. Opportunities and challenges for studying disaster survivors. Analyses of social issues and public policy, 6: 175189. DOI: 10.1111/j.1530-2415.2006.00116.x
  24. 24Lichtveld, M, Sherchan, S, Gam, KB, Kwok, RK, Mundorf, C, Shankar, A and Soares, L. 2016. The Deepwater Horizon oil spill through the lens of human health and the ecosystem. Current environmental health reports, 3: 370378. DOI: 10.1007/s40572-016-0119-7
  25. 25Lurie, N, Manolio, T, Patterson, AP, Collins, F and Frieden, T. 2013. Research as a part of public health emergency response. Mass Medical Soc. DOI: 10.1056/NEJMsb1209510
  26. 26Miller, A, Yeskey, K, Garantziotis, S, Arnesen, S, Bennett, A, O’Fallon, L, Thompson, C, Reinlib, L, Masten, S and Remington, J. 2016. Integrating health research into disaster response: The new NIH disaster research response program. International journal of environmental research and public health, 13: 676. DOI: 10.3390/ijerph13070676
  27. 27Miller, AE and Craft, E. 2018. Rapid-response local monitoring of toxic air pollution after Hurricane Harvey. ISEE Conference Abstracts. DOI: 10.1289/isesisee.2018.S01.03.18
  28. 28National Academies OF Sciences, Engineering and Medicine. 2018. Returning individual research results to participants: guidance for a new research paradigm. National Academies Press.
  29. 29O’Connell, SG, Kincl, LD and Anderson, KA. 2014. Silicone wristbands as personal passive samplers. Environmental science & technology, 48: 33273335. DOI: 10.1021/es405022f
  30. 30O’Fallon, L and Finn, S. 2015. Citizen science and community-engaged research in environmental public health. Lab Matters, 4.
  31. 31Oluyomi, AO, Panthagani, K, Sotelo, J, Gu, X, Armstrong, G, Luo, DN, Hoffman, KL, Rohlman, D, Tidwell, L and Hamilton, WJ. 2021. Houston hurricane Harvey health (Houston-3H) study: assessment of allergic symptoms and stress after hurricane Harvey flooding. Environmental Health, 20: 115. DOI: 10.1186/s12940-021-00694-2
  32. 32Packenham, JP, Rosselli, RT, Ramsey, SK, TayloR, HA, Fothergill, A, Slutsman, J and Miller, A. 2017. Conducting science in disasters: Recommendations from the NIEHS working group for special IRB considerations in the review of disaster related research. Environmental health perspectives, 125: 094503. DOI: 10.1289/EHP2378
  33. 33Reams, MA, Harding, AK, Subra, W, Lam, NS, O’Connell, SG, Tidwell, L and Anderson, KA. 2017. Response, recovery, and resilience to oil spills and environmental disasters: Exploration and use of novel approaches to enhance community resilience. Journal of Environmental Health, 80: 815.
  34. 34Rohlman, D, Bethel, J, Hoffman, P, Tidwell, LG and Anderson, KA. 2020. Oregon State University Chemical exposure disaster study protocol. In: Superfund Research Program, Pacific Northwest Center for Translational Environmental Health Research., Oregon State University, Corvallis, OR (ed.). NIH Public Health Emergency and Disaster Research Response (DR2): Disaster Literature: Database for Disaster Medicine and Public Health.
  35. 35Rohlman, D, Dixon, HM, Kincl, L, Larkin, A, Evoy, R, Barton, M, Phillips, A, Peterson, E, Scaffidi, C, Herbstman, JB, Waters, KM and Anderson, KA. 2019a. Development of an environmental health tool linking chemical exposures, physical location and lung function. BMC public health, 19: 854. DOI: 10.1186/s12889-019-7217-z
  36. 36Rohlman, D, Donatuto, J, Heidt, M, Barton, M, Campbell, L, Anderson, KA and Kile, ML. 2019b. A case study describing a community-engaged approach for evaluating polycyclic aromatic hydrocarbon exposure in a Native American community. International journal of environmental research and public health, 16: 327. DOI: 10.3390/ijerph16030327
  37. 37Schroeder, W, Ruminski, M, Csiszar, I, Giglio, L, Prins, E, Schmidt, C and Morisette, J. 2008. Validation analyses of an operational fire monitoring product: The Hazard Mapping System. International Journal of Remote Sensing, 29: 60596066. DOI: 10.1080/01431160802235845
  38. 38Smith, AB. 2020. 2010–2019: A landmark decade of US. billion-dollar weather and climate disasters. National Oceanic and Atmospheric Administration.
  39. 39Sumaila, UR, Cisneros-Montemayor, AM, Dyck, A, Huang, L, Cheung, W, Jacquet, J, Kleisner, K, Lam, V, Mccrea-Strub, A and Swartz, W. 2012. Impact of the Deepwater Horizon well blowout on the economics of US Gulf fisheries. Canadian Journal of Fisheries and Aquatic Sciences, 69: 499510. DOI: 10.1139/f2011-171
  40. 40Symanski, E, Han, HA, Han, I, Mcdaniel, M, Whitworth, KW, McCurdy, S, Perkison, WB, Rammah, A, Lewis, PGT and Delclos, GL. 2021. Responding to natural and industrial disasters: partnerships and lessons learned. Disaster medicine and public health preparedness, 14. DOI: 10.1017/dmp.2020.467
  41. 41Wallerstein, N, Muhammad, M, Sanchez-Youngman, S, Rodriguez Espinosa, P, Avila, M, Baker, EA, Barnett, S, Belone, L, Golub, M, Lucero, J, Mahdi, I, Noyes, E, Nguyen, T, Roubideaux, Y, Sigo, R and Duran, B. 2019. Power dynamics in community-based participatory research: A multiple–case study analysis of partnering contexts, histories, and practices. Health Education & Behavior, 46: 19S32S. DOI: 10.1177/1090198119852998
  42. 42Wells, KB, Tang, J, Lizaola, E, Jones, F, Brown, A, Stayton, A, Williams, M, Chandra, A, Eisenman, D and Fogleman, S. 2013. Applying community engagement to disaster planning: developing the vision and design for the Los Angeles County Community Disaster Resilience initiative. American Journal of Public Health, 103: 11721180. DOI: 10.2105/AJPH.2013.301407
  43. 43Woolley, JP, McGowan, ML, Teare, HJ, Coathup, V, Fishman, JR, Settersten, RA, Sterckx, S, Kaye, J and Juengst, ET. 2016. Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives. BMC medical ethics, 17: 117. DOI: 10.1186/s12910-016-0117-1
DOI: https://doi.org/10.5334/cstp.443 | Journal eISSN: 2057-4991
Language: English
Submitted on: May 14, 2021
Accepted on: Jan 26, 2022
Published on: May 19, 2022
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2022 Diana Rohlman, Samantha Samon, Sarah Allan, Michael Barton, Holly Dixon, Christine Ghetu, Lane Tidwell, Peter Hoffman, Abiodun Oluyomi, Elaine Symanski, Melissa Bondy, Kim Anderson, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.