References
- Akard, T. F., Burley, S., Root, M. C., Dietrich, M. S., Cowfer, B., & Mooney-Doyle, K. (2021). Long-term follow-up of legacy services offered by children’s hospitals in the United States. Palliative Medicine Reports, 2(1), 218–225. DOI: 10.1089/pmr.2021.0009
- Allen, R. S., Hilgeman, M. M., Ege, M. A., Shuster, J. L., & Burgio, L. D. (2008). Legacy activities as interventions approaching the end of life. Journal of Palliative Medicine, 11(7), 1029–1038. DOI: 10.1089/jpm.2007.0294
- Arruda-Colli, M., Weaver, M., & Wiener, L. (2017). Communication about dying, death, and bereavement: A systematic review of children’s literature. Journal of Palliative Medicine, 20(5), 548–559. DOI: 10.1089/jpm.2016.0494
- Benner, A., & Marlow, L. (1991). The effect of a workshop on childhood cancer on students’ knowledge, concerns, and desire to interact with a classmate with cancer. Children’s Health Care, 20(2), 101–107. DOI: 10.1207/s15326888chc2002_5
- Bluebond-Langner, M., Belasco, J., & Wander, M. (2010). “I want to live, until I don’t want to live anymore”: Involving children with life-threatening and life-shortening illnesses in decision making about care and treatment. Nursing Clinics of North America, 45(3), 329–343. DOI: 10.1016/j.cnur.2010.03.004
- Boles, J. C. (2014). Creating a legacy for and with hospitalized children. Pediatric Nursing, 40(1), 43–44.
- Boles, J. C., Fraser, C., Bennett, K., Jones, M., Dunbar, J., Woodburn, A., Gill, M. A., Duplechain, A., Munn, E., & Hoskins, K. (2020b). The value of Certified Child Life Specialists: Direct and downstream optimization of pediatric patient and family outcomes. Association of Child Life Professionals. Retrieved from
https://www.childlife.org/the-child-life-profession/value-proposition-statement - Boles, J. C., Jones, M., Dunbar, J., & Cook, J. (2020a). Defining legacy: The perceptions of pediatric healthcare providers. Clinical Pediatrics, 59(11), 1004–1010. DOI: 10.1177/0009922820940808
- Boles, J. C., & Jones, M. T. (2021). Legacy interventions: A systematic review. Palliative Medicine, 35(3), 529–551. DOI: 10.1177/0269216321989565
- Boonen, H., & Petry, K. (2011). How do children with a chronic or longer-term illness perceive their school re-entry after a period of homebound instruction? Child: Care, Health and Development, 38(4), 490–496. DOI: 10.1111/j.1365-2214.2011.01279.x
- Cahalan, L., Smith, A., Sandoval, M., Parks, G., & Gresham, Z. (2022). Collaborative legacy building to alleviate emotional pain and suffering in pediatric cancer patients: A case review. Children, 9(1), 33. DOI: 10.3390/children9010033
- Case, D. M., Cheah, W. H., & Liu, M. (2020). “Mourning with the morning bell”: An examination of secondary educators’ attitudes and experiences in managing the dis-course of death in the classroom. Omega, 80(3), 397–419. DOI: 10.1177/0030222817737228
- Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., McClement, S., & Harlos, M. (2005). Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. Journal of Clinical Oncology, 23(24), 5520–5525. DOI: 10.1200/JCO.2005.08.391
- Clay, D., Cortina, S., Harper, D., Cocco, K., & Drotar, D. (2004). Schoolteachers’ experiences with childhood chronic illness. Children’s Health Care, 33(3), 227–239. DOI: 10.1207/s15326888chc3303_5
- Compas, B. E., Jaser, S. S., Dunn, M. J., & Rodriguez, E. M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review of Clinical Psychology, 8, 455–480. DOI: 10.1146/annurev-clinpsy-032511-143108
- DeMuth, M., Taggi-Pinto, A., Miller, E., & Alderfer, M. (2020). Bereavement accommodations in the classroom: Experiences and opinions of school staff. Journal of School Health, 90(3), 165–171. DOI: 10.1111/josh.12870
- Eklund, R., Lövgren, M., Alvariza, A., Kreicbergs, U., & Udo, C. (2021). Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care. Death Studies, 1–11. DOI: 10.1080/07481187.2021.1947415
- Foster, T. L., Dietrich, M. S., Friedman, D. L., Gordon, J. E., & Gilmer, M. J. (2012). National survey of children’s hospitals on legacy-making activities. Journal of Palliative Medicine, 15(5), 573–578. DOI: 10.1089/jpm.2011.0447
- Foster, T. L., Gilmer, M. J., Davies, B., Barrera, M., Fairclough, D., Vannatta, K., & Gerhardt, C. A. (2009). Bereaved parents’ and siblings’ reports of legacies created by children with cancer. Journal of Pediatric Oncology Nursing, 26(6), 369–376. DOI: 10.1177/1043454209340322
- Hitchcock, C., Ellis, A. A., Williamson, P., & Nixon, R. D. (2015). The prospective role of cognitive appraisals and social support in predicting children’s posttraumatic stress. Journal of Abnormal Child Psychology, 43(8), 1485–1492. DOI: 10.1007/s10802-015-0034-7
- Jones, M. T., Boles, J. C., Dunbar, J. E., & Cook, J. L. (2022). Parent/caregiver perceptions of legacy in the hospital setting: A qualitative study. Pediatric Nursing, 48(2), 59–67.
- Kronaizl, S. G. (2019). Discussing death with children: A developmental approach. Pediatric Nursing, 45(1), 47–50.
- Levis, C. (2016). Ida, always (C. Santoso, Illus.). Atheneum Books for Young Readers.
- Levkovich, I., & Elyoseph, Z. (2021). “I don’t know what to say”: Teachers’ perspectives on supporting bereaved students after the death of a parent. Omega. Advance online publication. DOI: 10.1177/0030222821993624
- Mak, M. H. (2013). Quality insights of university teachers on death, dying, and death education. Omega, 66(2), 173–194. DOI: 10.2190/OM.66.2.e
- Martinčeková, L., Jiang, M. J., Adams, J. D., Menendez, D., Hernandez, I. G., Barber, G., & Rosengren, K. S. (2018). Do you remember being told what happened to grandma? The role of early socialization on later coping with death. Death Studies, 44(2), 1–12. DOI: 10.1080/07481187.2018.1522386
- Montross, L., Winters, K. D., & Irwin, S. A. (2011). Dignity therapy implementation in a community-based hospice setting. Journal of Palliative Medicine, 14(6), 729–734. DOI: 10.1089/jpm.2010.0449
- Quinn, K., Mollet, N., & Dawson, F. (2021). The compassionate schools framework: Exploring a values-driven, hope-filled, relational approach with school leaders. Educational & Child Psychology, 38(1), 24–36.
- Rapa, E., Dalton, L., & Stein, A. (2020). Talking to children about illness and death of a loved one during the COVID-19 pandemic. The Lancet Child & Adolescent Health, 4(8), 560–562. DOI: 10.1016/S2352-4642(20)30174-7
- Schaefer, M. R., Spencer, S. K., Barnett, M., Reynolds, N. C., & Madan-Swain, A. (2019). Legacy artwork in pediatric oncology: The impact on bereaved caregivers’ psychological functioning and grief. Journal of Palliative Medicine, 22(9), 1124–1128. DOI: 10.1089/jpm.2018.0329
- Sisk, C., Walker, E., Gardner, C., Mandrell, B., & Grissom, S. (2012). Building a legacy for children and adolescents with chronic disease. Journal of Pediatric Nursing, 27, e71–e76. DOI: 10.1016/j.pedn.2012.04.008
- Steffen, E., Timotijevic, L., & Coyle, A. (2020). A qualitative analysis of psychosocial needs and support impacts in families affected by young sudden cardiac death: The role of community and peer support. European Journal of Cardiovascular Nursing, 19(8), 681–690. DOI: 10.1177/1474515120922347
- Tillman, K., & Prozak, M. (2018). Kids supporting kids: A 10-week small group curriculum for grief and loss in schools. Counselling and Psychotherapy Research, 18(4), 395–401. DOI: 10.1002/capr.12190
- Weiner, P., Hoffman, M., & Rosen, C. (2018).
Child life and education issues: The child with a chronic illness or special healthcare needs . In R. H. Thompson (Ed.), The handbook of child life: A guide for pediatric psychosocial care (pp. 527–549). Charles C. Thomas Publisher, LTD.