Have a personal or library account? Click to login
Maintaining Schooling for Children With Cancer During and Post Treatment: Parents’ Perspectives of a Theory-Based Program Cover

Maintaining Schooling for Children With Cancer During and Post Treatment: Parents’ Perspectives of a Theory-Based Program

Open Access
|Mar 2021

References

  1. Allen, K., Kern, M. L., Vella-Brodrick, D., Hattie, J., & Waters, L. (2018). What schools need to know about fostering school belonging: a meta-analysis. Educational Psychology Review. 30, 134. DOI: 10.1007/s10648-016-9389-8
  2. Barrera, M., Shaw, A., Speechley, K., Maunsell, E., & Pogany, L. (2005). Educational and social late effects of childhood cancer and related clinical, personal, and familial characteristics. Cancer, 104(8), 17511760. DOI: 10.1002/cncr.21390
  3. Bonneau, J., Lebreton, J., Taque, S., Chappe, C., Bayart, S., Edan, C., & Gandemer, V. (2011). School performance of childhood cancer survivors: Mind the teenagers! Journal of Pediatrics, 158(1), 135141. DOI: 10.1016/j.jpeds.2010.07.008
  4. Braun, V., & Clark, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77101. DOI: 10.1191/1478088706qp063oa
  5. Braun, V., & Clarke, V. (2013). Successful qualitative research. SAGE.
  6. Bronfenbrenner, U. (1994). Ecological models of human development. In M. Gauvain & Cole, M (Eds.), Readings on the development of children (2nd ed., pp. 3743). Freeman.
  7. Brown, R. (2002). Society of Pediatric Psychology presidential address: Toward a social ecology of pediatric psychology. Journal of Pediatric Psychology, 27(2), 191201. DOI: 10.1093/jpepsy/27.2.191
  8. Bruce, B., Newcombe, J., & Chapman, A. (2012). School liaison program for children with brain tumors. Journal of Pediatric Oncology Nursing, 29(1), 4554. DOI: 10.1177/1043454211432296
  9. Capurso, M. (2015). Supporting children’s development through educational work: A bioecological perspective. Psychology and Education: An Interdisciplinary Journal, 52(3–4), 3450.
  10. Cave, L., Hancock, K., Jones, C., de Lacy, D., Briedis, T., Moffatt, A., & Wheatley, G. (2020). Levelling education outcomes for students with medical and mental health needs. Continuity in Education, 1(1), 98116. DOI: 10.5334/cie.7
  11. Clark, T. (2008). “We’re over-researched here!” Exploring accounts of research fatigue within qualitative research engagements. Sociology, 42(5), 953970. DOI: 10.1177/0038038508094573
  12. Department of Education, Science and Training. (2005). Disability standards for education 2005. The Department of Education, Science and Training, Australian Government.
  13. Gannoni, A. F., & Shute, R. H. (2010). Parental and child perspectives on adaptation to childhood chronic illness: a qualitative study. Clinical Child Psychology & Psychiatry, 15(1), 3953. DOI: 10.1177/1359104509338432
  14. Helms, A. S., Schmiegelow, K., Brok, J., Johansen, C., Thorsteinsson, T., Simovska, V., & Larsen, H. B. (2016). Facilitation of school re-entry and peer acceptance of children with cancer: A review and meta-analysis of intervention studies. European Journal of Cancer Care, 25, 170179. DOI: 10.1111/ecc.12230
  15. Kirkpatrick, K. M. (2020). Adolescents with chronic medical conditions and high school completion: The importance of perceived school belonging. Continuity in Education, 1, 5063. DOI: 10.5334/cie.5
  16. Libman, R., Sherrod, B., & Weyant, D. (2017). Nurses’ education to support school reentry for children with cancer. Pediatric Nursing, 43(6), 275282.
  17. Lum, A., Donnan, B., Wakefield, C. E., Fardell, J. E., & Marshall, G. M. (2017). Establishing Australian school re-entry service guidelines for children diagnosed with cancer. Journal of Paediatrics and Child Health, 53, 529533. DOI: 10.1111/jpc.13563
  18. Marshall, G. (2017). Australia failing childhood cancer survivors at school. University of New South Wales, Medicine News, June. https://newsroom.unsw.edu.au
  19. Maule, M., Zugna, D., Migliore, E., Alessi, D., Merletti, F., Onorati, R., Zengarini, N., Costa, G., & Spadea, T. (2017). Surviving a childhood cancer: impact on education and employment. European Journal of Cancer Prevention, 26(4), 351356. DOI: 10.1097/CEJ.0000000000000258
  20. Mavrides, N., & Pao, M. (2014). Updates in pediatric psycho-oncology. International Review of Psychiatry, 26(1), 6373. DOI: 10.3109/09540261.2013.870537
  21. McKevitt, C., Topor, M., Panton, A., Mallick, A., Ganesan, V., Wraige, E., & Gordon, A. (2018). Seeking normality: Parents’ experiences of childhood stroke. Child: Care, Health and Development, 45(1), 8995. DOI: 10.1111/cch.12622
  22. McLoone, J., Wakefield, C., Butow, P., Fleming, C., & Cohn, R. (2011). Returning to school after adolescent cancer: A qualitative examination of Australian survivors’ and their families’ perspectives. Journal of Adolescent & Young Adult Oncology, 1(2), 8794. DOI: 10.1089/jayao.2011.0006
  23. Mitby, P. A., Robison, L. L., Whitton, J. A., Zevon, M. A., Gibbs, I. C., Tersak, J. M., Meadows, A. T., Stovall, M., Zeltzer, L. K., Mertens, A. C., & Childhood Cancer Survivor Study Steering Committee. (2003). Utilization of special education services and educational attainment among long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer, 97(4), 11151126. DOI: 10.1002/cncr.11117
  24. Moore, J., Kaffenberger, C., Goldberg, P., Oh, K. M., & Hudspeth, R. (2009). School reentry for children with cancer: Perceptions of nurses, school personnel, and parents. Journal of Pediatric Oncology Nursing, 26(2), 8699. DOI: 10.1177/1043454208328765
  25. Northman, L., Ross, S., Morris, M., & Tarquini, S. (2014). Supporting pediatric cancer survivors with neurocognitive late effects. Journal of Pediatric Oncology Nursing, 32(3), 134142. DOI: 10.1177/1043454214554012
  26. Pagano-Therrien, J., & Sullivan-Bolyai, S. (2017). Research participation decision-making among youth and parents of youth with chronic health conditions. Journal of Pediatric Health Care, 31(2), 167177. DOI: 10.1016/j.pedhc.2016.07.002
  27. Perry, K., & Weinstein, R. (1998). The social context of early schooling and children’s school adjustment. Educational Psychologist, 33(4), 177194. DOI: 10.1207/s15326985ep3304_3
  28. Pini, S., Hugh-Jones, S., & Gardner, P. (2011). What effect does a cancer diagnosis have on the educational engagement and school life of teenagers? A systematic review. Psycho-Oncology, 21(7), 685694. DOI: 10.1002/pon.2082
  29. Power, T. J., DuPaul, G. J., Shapiro, E. S., & Kazak, A. E. (2003). Promoting children’s health: Integrating school, family and community. Guilford Press.
  30. Prevatt, F., Heffer, R., & Lowe, P. (2000). A review of school reintegration programs for children with cancer. Journal of School Psychology, 38(5), 447467. DOI: 10.1016/S0022-4405(00)00046-7
  31. Roberts, R. M., Robins, T. R., Gannoni, A. F., & Tapp, H. (2014). Survivors of childhood cancer in South Australia attending a late-effects clinic: A descriptive report of psychological, cognitive, and academic late-effects. Journal of Psychosocial Oncology, 32(2), 152166. DOI: 10.1080/07347332.2013.873998
  32. Rynard, D., Chambers, A., Klinck, A., & Gray, J. (1998). School support programs for chronically ill children: evaluating the adjustment of children with cancer at school. Children’s Health Care, 27(1), 3146. DOI: 10.1207/s15326888chc2701_3
  33. Sexson, S. B., & Madan-Swain, A. (1993). School reentry for the child with chronic illness. Journal of Learning Disabilities, 26(2), 115137. DOI: 10.1177/002221949302600204
  34. Thompson, A. L., Christiansen, H. L., Elam, M., Hoag, J., Irwin, M. K., Pao, M., Voll, M., Noll, R. B., & Kelly, K. P. (2015). Academic continuity and school reentry support as a standard of care in pediatric oncology. Pediatric Blood Cancer, 62, S805S817. DOI: 10.1002/pbc.25760
  35. Thompson, R., & Gustafson, K. (2009). Adaptation to chronic childhood illness. American Psychological Association.
  36. Tollit, M., Sawyer, S., Ratnapalan, S., & Barnett, T. (2015). Education support services for improving school engagement and academic performance of children and adolescents with a chronic health condition. Cochrane Database of Systematic Reviews, 2, 120. DOI: 10.1002/14651858.CD011538
  37. Vance, Y., & Eiser, C. (2002). The school experience of the child with cancer. Child: Care, Health and Development, 28(1), 519. DOI: 10.1046/j.1365-2214.2002.00227.x
  38. Wakefield, C., McLoone, J., Goodenough, B., Lenthen, K., Cairns, D., & Cohn, R. (2009). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology, 35(3), 262274. DOI: 10.1093/jpepsy/jsp056
  39. Wallander, J., & Varni, J. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology & Psychiatry, 39(1), 2946. DOI: 10.1111/1469-7610.00302
  40. Wilkie, K. (2012). “Absence makes the heart grow fonder”: Students with chronic illness seeking academic continuity through interaction with their teachers at school. Australasian Journal of Special Education, 36(1), 120. DOI: 10.1017/jse.2012.4
  41. Woodend, A., Nair, R., & Tang, A. (1997). Definition of life quality from a patient versus health care professional perspective. International Journal of Rehabilitation Research, 20(1), 7180. DOI: 10.1097/00004356-199703000-00006
DOI: https://doi.org/10.5334/cie.24 | Journal eISSN: 2631-9179
Language: English
Submitted on: Sep 3, 2020
|
Accepted on: Oct 30, 2020
|
Published on: Mar 15, 2021
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2021 Stella Delloso, Anne Gannoni, Rachel M. Roberts, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.