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Maintaining Schooling for Children With Cancer During and Post Treatment: Parents’ Perspectives of a Theory-Based Program Cover

Maintaining Schooling for Children With Cancer During and Post Treatment: Parents’ Perspectives of a Theory-Based Program

Open Access
|Mar 2021

Abstract

This study explored parents’ perceptions of a hospital-based schooling intervention for children with cancer. A qualitative design using semi-structured interviews was employed. Participants were nine parents whose children had participated in the program. Parents participated in semi-structured interviews, which were transcribed verbatim and analysed thematically. Five major themes were identified: experiences with program components, the bigger picture of the program, communication, a burden of responsibility for parents, and perceived impacts of cancer on schooling. Results showed that the parents valued the focus upon schooling and viewed several aspects as being beneficial. Challenges for parents included a lack of communication and individualized planning, and a burden of responsibility. Findings suggest that schooling is important to families and should be a fundamental psychosocial consideration of service providers. The schooling-related needs of parents should also be addressed.

DOI: https://doi.org/10.5334/cie.24 | Journal eISSN: 2631-9179
Language: English
Submitted on: Sep 3, 2020
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Accepted on: Oct 30, 2020
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Published on: Mar 15, 2021
Published by: Ubiquity Press
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2021 Stella Delloso, Anne Gannoni, Rachel M. Roberts, published by Ubiquity Press
This work is licensed under the Creative Commons Attribution 4.0 License.