References
- Allison, M. A., Attisha, E., Lerner, M., Duncan De Pinto, C. D., Savio Beers, N., Gibson, E., J., Gorski, P., Kjolhede, C., O’Leary, S. C., Schumacher, H., & Weiss-Harrison, A. (2019). The link between school attendance and good health. Pediatrics. The American Academy of Paediatrics. Policy Statement, 143(2). DOI: 10.1542/peds.2018-3648
- All Party Parliamentary Group for Diabetes. (2017). Safety and inclusion of children with medical conditions in school. Retrieved 30.11.2023 from
https://diabetes-resources-production.s3-eu-west-1.amazonaws.com/diabetes-storage/2017-08/report-on-safety.pdf - Bainham, A., & Gilmore, S. (2015). The English children and families act 2014. Victoria University of Wellington Law Review, 46(3), 627–648. DOI: 10.26686/vuwlr.v46i3.4910
- Balu, R., & Ehrlich, S. B. (2018). Making sense out of incentives: A framework for considering the design, use, and implementation of incentives to improve attendance. Journal of Education for Students Placed at Risk (JESPAR), 23(1–2), 93–106. DOI: 10.1080/10824669.2018.1438898
- Baskerville, D. (2022). Reincluding: Providing support to reengage youth who are truant in secondary schools. Continuity in Education, 3(1), 101–114. DOI: 10.5334/cie.47
- Benhenda, A. (2023). Attendance matters: Evidence based solutions to the post-Covid absenteeism crisis. Centre for Education Policy and Equalising Opportunities (CEPEO). Retrieved 30.11.2023 from
https://blogs.ucl.ac.uk/cepeo/2023/05/18/attendance-matters-evidence-based-solutions-to-the-post-covid-absenteeism-crisis/ - Bernell, S., & Howard, S. W. (2016). Use your words carefully: What is a chronic disease? Frontiers in Public Health, 4, 159. DOI: 10.3389/fpubh.2016.00159
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. DOI: 10.1191/1478088706qp063oa
- Carter, D. F. (2013).
Secondary analysis of data . In F. K. Stage & K. Manning (Eds.), Research in the college context (pp. 169–184). Routledge. ISBN 9780203952740.https://www.taylorfrancis.com/chapters/edit/10.4324/9780203952740-22/secondary-analysis-data-deborah-faye-carter-indiana-university - Children and Families Act. (2014). (0105406147). Retrieved 30.11.2023 from
https://www.legislation.gov.uk/ukpga/2014/6/contents/enacted - Children’s Commissioner. (2022). Back into school: New insights into school absence. Retrieved 30.11.2023 from
https://www.childrenscommissioner.gov.uk/wp-content/uploads/2022/07/cc-new-insights-into-school-absence.pdf - Department for Education. (2013). Ensuring a good education for children who cannot attend school because of health needs: Statutory guidance for local authorities. Retrieved 30.11.2023 from
https://www.gov.uk/government/publications/education-for-children-with-health-needs-who-cannot-attend-school - Department for Education. (2015a). School attendance parental responsibility measures Statutory guidance for local authorities, school leaders, school staff, governing bodies and the police. Retrieved 30.11.2023 from
https://assets.publishing.service.gov.uk/media/5a80ce9740f0b623026959aa/School_attendance_parental_responsibility_measures_statutory_guidance.pdf - Department for Education. (2015b). Supporting pupils at school with medical conditions. Statutory guidance for governing bodies of maintained schools and proprietors of academies in England. Retrieved 30.11.2023 from
https://assets.publishing.service.gov.uk/media/5ce6a72e40f0b620a103bd53/supporting-pupils-at-school-with-medical-conditions.pdf - Department for Education. (2016). The link between absence attainment at KS2 KS4 2013/14 academic year. Retrieved 30.11.2023 from
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/509679/The-link-between-absence-and-attainment-at-KS2-and-KS4-2013-to-2014-academic-year.pdf - Department for Education. (2022). Working together to improve school attendance. Retrieved 30.11.2023 from
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1099677/Working_together_to_improve_school_attendance.pdf - Education Act. (1996). Retrieved 30.11.2023 from
https://www.legislation.gov.uk/ukpga/1996/56/section/7 - Eloi, C., Foulon, G., Bridoux-Henno, L., Breton, E., Pelatan, C., Chaillou, E., Grimal, I., Darviot, E., Carré, E., Gastineau, S., Tourtelier, Y., Nicaise, D., Rousseau, C., & Dabadie, A. (2019). Inflammatory bowel diseases and school absenteeism. Journal of Pediatric Gastroenterology & Nutrition, 68(4), 541–546. DOI: 10.1097/MPG.0000000000002207
- Equality Act. (2010). Retrieved 30.11.2023 from
https://www.legislation.gov.uk/ukpga/2010/15/contents - Forrest, C. B., Bevans, K. B., Riley, A. W., Crespo, R., & Louis, T. A. (2013). Health and school outcomes during children’s transition into adolescence. Journal of Adolescent Health, 52(2), 186–194. DOI: 10.1016/j.jadohealth.2012.06.019
- Gottfried, M. A. (2014). Chronic absenteeism and its effects on students’ academic and socioemotional outcomes. Journal of Education for Students Placed at Risk, 19, 53–75. DOI: 10.1080/10824669.2014.962696
- Gov UK. (2023). Academic year 2022/23: Schools, pupils and their characteristics. Retrieved 30.11.2023 from
https://explore-education-statistics.service.gov.uk/find-statistics/school-pupils-and-their-characteristics - Hagell, A., Coleman, J., & Brooks, F. (2013). Key data on adolescence 2013. Association for Young People’s Health.
https://www.researchgate.net/publication/280599862_Key_Data_on_Adolescence_2013 - Haim-Litevsky, D., Komemi, R., & Lipskaya-Velikovsky, L. (2023). Sense of belonging, meaningful daily life participation, and well-being: Integrated investigation. International Journal of Environmental Research and Public Health, 20(5),
4121 . DOI: 10.3390/ijerph20054121 - Halligan, C., & Cryer, S. (2022). Emotionally based school avoidance (EBSA): Students’ views of what works in a specialist setting. Continuity in Education, 3(1), 13–24. DOI: 10.5334/cie.38
- Hancock, K. J., Shepherd, C. C. J., Lawrence, D., & Zubrick, S. R. (2013). Student attendance and educational outcomes: Every day counts. Report for the Department of Education, Employment and Workplace Relations. Telethon Institute for Child Health Research, Perth. Retrieved 30.11.2023 from
https://www.telethonkids.org.au/globalassets/media/documents/research-topics/student-attendance-and-educational-outcomes-2015.pdf - Heyne, D., & Brouwer-Borghuis, M. (2022). Signposts for school refusal interventions, based on the views of stakeholders. Continuity in Education, 3(1), 25–40. DOI: 10.5334/cie.42
- Jay, M. A., Sanders-Ellis, D., Blackburn, R., Deighton, J., & Gilbert, R. (2023). Umbrella systematic review finds limited evidence that school absence explains the association between chronic health conditions and lower academic attainment. Frontiers in Public Health, 11,
1122769 . DOI: 10.3389/fpubh.2023.1122769 - Kearney, C. A., Benoit, L., Gonzálvez, C., & Keppens, G. (2022). School attendance and school absenteeism: A primer for the past, present, and theory of change for the future. Frontiers in Education, 7,
1044608 . DOI: 10.3389/feduc.2022.1044608 - Kearney, C. A., Childs, J., & Burke, S. (2023). Social forces, social justice, and school attendance problems in youth. Contemporary School Psychology, 27, 136–151. DOI: 10.1007/s40688-022-00425-5
- Kelle, U. (2007). Combining qualitative and quantitative methods in research practice: Purposes and advantages. Qualitative Research in Psychology, 3(4), 293–311. DOI: 10.1177/1478088706070839
- Kipp, A. L. (2022). “No one really likes crying in school”: The influences of classroom and institutional dynamics upon student absenteeism during COVID-19. Continuity in Education, 3(1), 75–91. DOI: 10.5334/cie.43
- Knight, S. J., Politis, J., Garnham, C., Scheinberg, A., & Tollit, M. A. (2018). School functioning in adolescents with chronic fatigue syndrome. Frontiers in Pediatrics, 6,
302 . DOI: 10.3389/fped.2018.00302 - Lea, S., Martins, A., Morgan, S., Cargill, J., Taylor, R. M., & Fern, L. A. (2018). Online information and support needs of young people with cancer: A participatory action research study. Adolescent Health, Medicine and Therapeutics, 9, 121–135. DOI: 10.2147/AHMT.S173115
- Lewis, I., & Lenehan, C. (2014). Children and young people’s health outcomes strategy. Report of the Children and Young People’s Health Outcomes Forum. Retrieved 30.11.2023 from
https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/410482/CYPHOF_Report_2014-15.pdf . DOI: 10.12968/cypn.2014.8.30 - Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., Jaffe, A., & Lemberg, D. A. (2019). Facilitating engagement with schools in students with chronic illness through positive education: A mixed-methods comparison study. School Psychology, 34(6),
677 . DOI: 10.1037/spq0000315 - Lum, A., Wakefield, C. E., Donnan, B., Burns, M. A., Fardell, J. E., & Marshall, G. M. (2017). Understanding the school experiences of children and adolescents with serious chronic illness: A systematic meta-review. Child Care Health and Development, 43(5), 645–662. DOI: 10.1111/cch.12475
- National Institute for Health and Care Excellence. (2023). Managing long-term conditions in the community,
2020 . Retrieved 30.11.2023 fromhttps://www.nice.org.uk/about/what-we-do/into-practice/measuring-the-use-of-nice-guidance/impact-of-our-guidance/niceimpact-children-and-young-peoples-healthcare/ch2-managing-long-term-conditions-in-children - Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16, 1–13. DOI: 10.1177/1609406917733847
- Pini, S., Gardner, P., & Hugh-Jones, S. (2019). How and why is school important to teenagers with cancer: Outcomes from a photo elicitation study. Journal of Adolescent and Young Adult Oncology, 8(2), 157–164. DOI: 10.1089/jayao.2018.0068
- Polderman, T. J., Boomsma, D. I., Bartels, M., Verhulst, F. C., & Huizink, A. C. (2010). A systematic review of prospective studies on attention problems and academic achievement. Acta Psychiatrica Scandinavica, 122(4), 271–284. DOI: 10.1111/j.1600-0447.2010.01568.x
- Riley, K., Coates, M., & Allen, T. (2020). Place and belonging in school: Why it matters today. Case studies. The Art of Possibilities & UCL, Institute of Education. Retrieved 30.11.2023 from
https://neu.org.uk/sites/default/files/2023-04/Belonging%20research%20booklet.pdf - Riley, K., Coates, M., & Martinez, S. P. (2018). Place and belonging in schools: Unlocking possibilities. UCL. Institute of Education. Retrieved 30.11.2023 from
https://www.ucl.ac.uk/ioe/sites/ioe/files/place-and-belonging-unlocking-possibilities.pdf - Spencer, B. K., Hugh-Jones, S., Cottrell, D., & Pini, S. (2023a). The INSCHOOL project: Young people with long-term physical health conditions: An in-depth qualitative study of their needs at school. Journal of Adolescence, 96(2), 337–349. DOI: 10.1002/jad.12278
- Spencer, B. K., Hugh-Jones, S., Cottrell, D., & Pini, S. (2023b). The INSCHOOL project: Showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people with long-term health conditions. Research Involvement and Engagement, 9(1), 1–16. DOI: 10.1186/s40900-023-00496-5
- Spencer, B. K., Wright, J., Flemming, K., Cottrell, D., & Pini, S. (2022). School lives of adolescent school students living with chronic physical health conditions: A qualitative evidence synthesis. Archives of Disease in Childhood, 108(3), 225–229. DOI: 10.1136/archdischild-2022-324874
- Suris, J. C., Michaud, P. A., & Viner, R. (2004). The adolescent with a chronic condition. Part I: Developmental issues. Archives of Disease in Childhood, 89(10), 938–942. DOI: 10.1136/adc.2003.045369
- Taylor, R. M., Whelan, J. S., Gibson, F., Morgan, S. & Fern, L. A. (2018). Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: Insights from 10 years of user involvement. Research Involvement and Engagement, 4(50). DOI: 10.1186/s40900-018-0135-x
- The Centre for Social Justice. (2023). Lost and not found: How severe absence became endemic in England’s schools. The Centre for Social Justice. Retrieved 30.11.2023 from
https://www.centreforsocialjustice.org.uk/wp-content/uploads/2023/03/CSJ-Lost_and_Not_Found.pdf - Tomberli, L., & Ciucci, E. (2021). Sense of school belonging and paediatric illness: A scoping review. Continuity in Education, 2, 121–134. DOI: 10.5334/cie.32
- Vaismoradi, M., Jones, J., Turunen, H., & Snelgrove, S. (2016). Theme development in qualitative content analysis and thematic analysis. Journal of Nursing Education and Practice, 6(5), 100–110. DOI: 10.5430/jnep.v6n5p100
- Van Schelven, F., Boeije, H., Inhulsen, M-B., Sattoe, J., & Rademakers, J. (2021). “We know what we are talking about”: Experiences of young people with a chronic condition involved in a participatory youth panel and their perceived impact. Child Care in Practice, 27(2) 191–207. DOI: 10.1080/13575279.2019.1680529