References
- 1Dewan MC, Rattani A, Gupta S, et al. Estimating the global incidence of traumatic brain injury. J Neurosurg. 2019; 130(4): 1080–1097. DOI: 10.3171/2017.10.JNS17352
- 2Thompson HJ, McCormick WC. Traumatic Brain Injury in Older Adults: Epidemiology, Outcomes, and Future Implications. J Am Geriatr Soc. 2006; 54(10): 1590–1595. DOI: 10.1111/j.1532-5415.2006.00894.x
- 3Hoffman M, Mofolo I, Salima C, et al. Utilization of family members to provide hospital care in Malawi: The role of Hospital Guardians. Malawi Med J J Med Assoc Malawi. 2012; 24(4): 74–78.
- 4Söderbäck M, Christensson K. Family involvement in the care of a hospitalised child: A questionnaire survey of Mozambican family caregivers. Int J Nurs Stud. 2008; 45(12): 1778–1788. DOI: 10.1016/j.ijnurstu.2008.06.008
- 5Baine SO, Kasangaki A. A scoping study on task shifting; the case of Uganda. BMC Health Serv Res. 2014; 14(1): 184. DOI: 10.1186/1472-6963-14-184
- 6Glajchen M. The emerging role and needs of family caregivers in cancer care. J Support Oncol. 2004; 2(2): 145–155.
- 7Yuen EYN, Dodson S. Development of a conceptual model of cancer caregiver health literacy: Conceptual model of cancer caregiver health literacy. Eur J Cancer Care (Engl). 2016; 25(2): 294–306. DOI: 10.1111/ecc.12284
- 8Nutbeam D, McGill B. Improving health literacy in community populations: A review of progress. Health Promot Int. 2018; 33(5): 901–911. DOI: 10.1093/heapro/dax015
- 9Levin-Zamir D. Health literacy in health systems: perspectives on patient self-management in Israel. Health Promot Int. 2001; 16(1): 87–94. DOI: 10.1093/heapro/16.1.87
- 10Bevan JL, Pecchioni LL. Understanding the impact of family caregiver cancer literacy on patient health outcomes. Patient Educ Couns. 2008; 71(3): 356–364. DOI: 10.1016/j.pec.2008.02.022
- 11Faul M, Wald MM. Traumatic brain injury in the United States; emergency department visits, hospitalizations, and deaths, 2002–2006. 2010. DOI: 10.15620/cdc.5571
- 12Vaca SD, Kuo BJ, Nickenig Vissoci JR, et al. Temporal Delays Along the Neurosurgical Care Continuum for Traumatic Brain Injury Patients at a Tertiary Care Hospital in Kampala, Uganda. Neurosurgery. 2019; 84(1): 95–103. DOI: 10.1093/neuros/nyy004
- 13Slomine BS, McCarthy ML, Ding R, et al. Health Care Utilization and Needs After Pediatric Traumatic Brain Injury. Pediatrics. 2006; 117(4):
e663 . DOI: 10.1542/peds.2005-1892 - 14Thaddeus S, Maine D. Too far to walk: Maternal mortality in context. Soc Sci Med. 1994; 38(8): 1091–1110. DOI: 10.1016/0277-9536(94)90226-7
- 15Uganda Bureau of Statistics. National Population and Housing Census 2014.
https://unstats.un.org/unsd/demographic-social/census/documents/Uganda/UGA-2014-11.pdf . - 16Tong A, Sainsbury P. Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007; 19(6): 349–357. DOI: 10.1093/intqhc/mzm042
- 17Longacre ML. Cancer Caregivers Information Needs and Resource Preferences. J Cancer Educ. 2013; 28(2): 297–305. DOI: 10.1007/s13187-013-0472-2
- 18Washington KT, Meadows SE. Information needs of informal caregivers of older adults with chronic health conditions. Patient Educ Couns. 2011; 83(1): 37–44. DOI: 10.1016/j.pec.2010.04.017
- 19Edwards M, Wood F. ‘Distributed health literacy’: Longitudinal qualitative analysis of the roles of health literacy mediators and social networks of people living with a long-term health condition. Health Expect. 2015; 18(5): 1180–1193. DOI: 10.1111/hex.12093
- 20Yousuf Zafar S. Financial Toxicity of Cancer Care: It’s Time to Intervene. J Natl Cancer Inst. 2016; 108(5): djv370. DOI: 10.1093/jnci/djv370
- 21Kuo BJ, Vaca SD, Vissoci JRN, et al. A prospective neurosurgical registry evaluating the clinical care of traumatic brain injury patients presenting to Mulago National Referral Hospital in Uganda. In Hodaie M (ed.), PLOS ONE. 2017; 12(10):
e0182285 . DOI: 10.1371/journal.pone.0182285 - 22Abdelgadir J, Tran T, Muhindo A, et al. Estimating the Cost of Neurosurgical Procedures in a Low-Income Setting: An Observational Economic Analysis. World Neurosurg. 2017; 101: 651–657. DOI: 10.1016/j.wneu.2017.02.048
- 23Kushner AL. Addressing the Millennium Development Goals From a Surgical Perspective: Essential Surgery and Anesthesia in 8 Low- and Middle-Income Countries. Arch Surg. 2010; 145(2): 154. DOI: 10.1001/archsurg.2009.263
- 24Tang N, Eisenberg JM. The roles of government in improving health care quality and safety. Jt Comm J Qual Saf. 2004; 30(1): 47–55. DOI: 10.1016/S1549-3741(04)30006-7
- 25Syed ST, Gerber BS. Traveling Towards Disease: Transportation Barriers to Health Care Access. J Community Health. 2013; 38(5): 976–993. DOI: 10.1007/s10900-013-9681-1
- 26Kobusingye OC, Hyder AA. Emergency Medical Services. 20.
- 27Verhaeghe S, Defloor T. Stress and coping among families of patients with traumatic brain injury: A review of the literature. J Clin Nurs. 2005; 14(8): 1004–1012. DOI: 10.1111/j.1365-2702.2005.01126.x