Have a personal or library account? Click to login

Persons with intellectual disability: Sexual behaviour, knowledge and assertiveness

Open Access
|Mar 2021

References

  1. Kijak R. The sexuality of adults with intellectual disability in Poland. Sex Disabil. 2013;31:109-23. doi: 10.1007/s11195-013-9294-8.
  2. Gil-Llario MD, Morell-Mengual V, Ballester-Arnal R, Díaz-Rodríguez I. The experience of sexuality in adults with intellectual disability. J Intellect Disabil Res. 2018;62:72-80. doi: 10.1111/jir.12455.
  3. Anker-Hansen C, Skovdahl K, McCormack B, Tønnessen S. The third person in the room: the needs of care partners of older people in home care services - a systematic review from a person-centred perspective. J Clin Nurs. 2018;27:e1309-26. doi: 10.1111/jocn.14205.
  4. Tomaszewski B, Fidler D, Talapatra D, Riley K. Adaptive behaviour, executive function and employment in adults with Down syndrome. J Intellect Disabil Res. 2018;62:41-52. doi: 10.1111/jir.12450.
  5. Perkins EA, Small BJ. Aspects of cognitive functioning in adults with intellectual disabilities. J Policy Pract Intellect Disabil. 2006;3:181-94. doi: 10.1111/j.1741-1130.2006.00078.x.
  6. Dukes E, McGuire BE. Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. J Intellect Disabil Res. 2009;53:727-34. doi: 10.1111/j.1365-2788.2009.01186.x.
  7. Haracopos D, Pedersen L. Sexuality and autism: Danish report. Accessed July 30th, 2019 at:
  8. Tamas D, Brkic Jovanovic N, Rajic M, Bugarski Ignjatovic V, Peric Prkosovacki B. Professionals, parents and the general public: attitudes towards the sexuality of persons with intellectual disability. Sex Disabil. 2019;37:245-58. doi: 10.1007/s11195-018-09555-2.
  9. Treacy AC, Taylor SS, Abernathy TV. Sexual health education for individuals with disabilities: a call to action. Am J Sex Educ. 2018;13:6593. doi: 10.1080/15546128.2017.1399492.
  10. Brown M, McCann E. The views and experiences of families and direct care support workers regarding the expression of sexuality by adults with intellectual disabilities: a narrative review of the international research evidence. Res Dev Disabil. 2019;90:80-91. doi: 10.1016/j. ridd.2019.04.012.
  11. Fraser-Barbour EF, Crocker R, Walker R. Barriers and facilitators in supporting people with intellectual disability to report sexual violence: perspectives of Australian disability and mainstream support providers. J Adult Protect. 2018;20:5-16. doi: 10.1108/JAP-08-2017-0031.
  12. Leutar Z, Mihoković M. Level of knowledge about sexuality of people with mental disabilities. Sex Disabil. 2007;25:93-109. doi: 10.1007/ s11195-007-9046-8.
  13. Talbot TJ, Langdon PE. A revised sexual knowledge assessment tool for people with intellectual disabilities: is sexual knowledge related to sexual offending behaviour? J Intellect Disabil Res. 2006;50:523-31. doi: 10.1111/j.1365-2788.2006.00801.x.
  14. Galea J, Butler J, Iacono T, Leighton D. The assessment of sexual knowledge in people with intellectual disability. J Intellect Dev Disabil. 2004;29:350-65. doi: 10.1080/13668250400014517.
  15. Garbutt R, Boycott-Garnett R, Tattersall J, Dunn J. Talking about sex and relationships: the views of young people with learning disabilities. Project report. Leeds: Change, 2010.
  16. Frawley P, Wilson NJ. Young people with intellectual disability talking аbout sexuality education and information. Sex Disabil. 2016;34:46984. doi: 10.1007/s11195-016-9460-x.
  17. Borawska-Charko M, Rohleder P, Finlay WML. The sexual health knowledge of people with intellectual disabilities: a review. Sex Res Social Policy. 2017;14:393-409. doi: 10.1007/s13178-016-0267-4.
  18. Blasingame GD. Risk assessment of adolescents with intellectual disabilities who exhibit sexual behavior problems or sexual offending behavior. J Child Sex Abus. 2018;27:955-71. doi: 10.1080/10538712.2018.1452324.
  19. Naaldenberg J, Kuijken N, van Dooren K, van Schrojenstein Lantman de Valk H. Topics, methods and challenges in health promotion for people with intellectual disabilities: a structured review of literature. Res Dev Disabil. 2013;34:4534-45. doi: 10.1016/j.ridd.2013.09.029.
  20. Servais L. Sexual health care in persons with intellectual disabilities. Ment Retard Dev Disabil Res Rev. 2006;12:48-56. doi: 10.1002/ mrdd.20093.
  21. Kapamadzija A, Vejnovic T, Vukelic J, Kopitovic V, Bjelica A. Sexual knowledge, attitudes and practice of adolescents in northern Serbia - are we making any progress? Follow-up study 2000-2008. J Reproduktionsmed Endokrinol. 2010;7:106-11.
  22. Wissink IB, van Vugt E, Moonen X, Stams GJ, Hendriks J. Sexual abuse involving children with an intellectual disability (ID): a narrative review. Res Dev Disabil. 2015;36:20-35. doi: 10.1016/j.ridd.2014.09.007.
  23. Stone M. Preventing sexual violence against people with disabilities: empowerment self-defense, risk reduction education, and organizational change. In: Orchowski LM, Gidycz CA, editors. Sexual assault risk reduction and resistance: theory, research, and practice. London: Academic Press, 2018:353-78.
  24. Corbett A, Cottis T, Lloyd E. The survival and development of a traumatized clinic for psychotherapy for people with intellectual disabilities. In: Hopper E. Trauma and organizations. Routledge: Taylor & Francis Group, 2018:111-26.
  25. Wissink IB, van Vugt ES, Smits IAM, Moonen XMH, Stams GJJM. Reports of sexual abuse of children in state care: a comparison between children with and without intellectual disability. J Intellect Dev Disabil. 2018;43:152-63. doi: 10.3109/13668250.2016.1269881.
  26. van Berlo W, Ploem R. Sexual violence: knowledge file. Accessed July 29th, 2019 at: https://www.rutgers.international/sites/rutgersorg/files/PDF/knowledgefiles/knowledge_file_Sexual_violence.pdf
  27. Santos-Iglesias P, Vallejo-Medina P, Sierra JC. Equivalence and standard scores of the Hurlbert index of sexual assertiveness across Spanish men and women. Anales Psicologia. 2014;30:232-7. doi: 10.6018/ analesps.30.1.143321.
  28. Morokoff PJ, Quina K, Harlow LL, Whitmire L, Grimley DM, Gibson PR, et al. Sexual Assertiveness Scale (SAS) for women: development and validation. J Pers Soc Psychol. 1997;73:790-804. doi: 10.1037//00223514.73.4.790.
  29. Santos-Iglesias P, Sierra J, Vallejo-Medina P. Propiedades psicométricas de la versión Española de la Sexual Assertiveness Scale (SAS). Anales Psicología. 2011;27:17-26.
  30. Hulbert DF. Hurlbert index of sexual assertiveness. In: Fisher TD, Davis CM, Yarber WL, Davis SL, editors. Handbook of sexuality-related measures. 3rd ed. New York: Taylor & Francis Group, 2011:62.
  31. Loshek E, Terrell HK. The development of the sexual assertiveness questionnaire (SAQ): a comprehensive measure of sexual assertiveness for woman. J Sex Res. 2015;52:1017-27. doi: 10.1080/00224499.2014.944970.
  32. Schaafsma D, Kok G, Stoffelen JM, Curfs LM. Identifying effective methods for teaching sex education to individuals with intellectual disabilities: a systematic review. J Sex Res. 2015;52:412-32. doi: 10.1080/00224499.2014.919373.
  33. Nemerofsky AG. The What-if-situations-test. In: Fisher TD, Davis CM, Yarber WL, Davis SL, editors. Handbook of sexuality-related measures. 3rd ed. New York: Taylor & Francis Group, 2011.
  34. Isler A, Tas F, Beytut D, Conk Z. Sexuality in adolescents with intellectual disabilities. Sex Disabil. 2009;27:27-34. doi: 10.1007/s11195-009-9107-2.
  35. Wickström M, Larsson M, Höglund B. How can sexual and reproductive health and rights be enhanced for young people with intellectual disability? – focus group interviews with staff in Sweden. Reprod Health. 2020;17:1-10. doi: 10.1186/s12978-020-00928-5.
  36. Edmonson B, McCombs K, Wish J. What retarded adults believe about sex. Am J Ment Defic. 1979;84:11-8.
  37. Jahoda A, Pownall J. Sexual understanding, sources of information and social networks; the reports of young people with intellectual disabilities and their non-disabled peers. J Intellect Disabil Res. 2014;58:430-41. doi: 10.1111/jir.12040.
  38. Lockhart K, Guerin S, Shanahan S, Coyle K. Expanding the test of counterfeit deviance: are sexual knowledge, experience and needs a factor in the sexualised challenging behaviour of adults with intellectual disability? Res Dev Disabil. 2010;31:117-30. doi: 10.1016/j. ridd.2009.08.003.
  39. Eastgate G, Van Driel ML, Lennox N, Sheermeyer E. Women with intellectual disabilities: a study of sexuality, sexual abuse and protection skills. Aust Fam Physician. 2011;40:226-30.
  40. Tang CS, Lee YK. Knowledge on sexual abuse and self-protection skills: a study on female Chinese adolescents with mild mental retardation. Child Abuse Negl. 1999;23:269-79. doi: 10.1016/s0145-2134(98)00124-0.
  41. Siebelink EM, de Jong MD, Taal E, Roelvink L. Sexuality and people with intellectual disabilities: assessment of knowledge, attitudes, experiences, and needs. Ment Retard. 2006;44:283-94. doi: 10.1352/0047-6765(2006)44[283:SAPWID]2.0.CO;2.
  42. Healy E, McGuire BE, Evans DS, Carley N. Sexuality and personal relationships for people with an intellectual disability. Part I: service-user perspectives. J Intellect Disabil Res. 2009;53:905-12. doi: 10.1111/j.1365-2788.2009.01203.x.
  43. Michie AM, Lindsay WR, Martin V, Grieveo A. A test of counterfeit deviance: a comparison of sexual knowledge in groups of sex offenders with intellectual disability and controls. Sex Abuse. 2006;18:271-8. doi: 10.1177/107906320601800305.
  44. Lambrick F, Glaser W. Sex offenders with an intellectual disability. Sex Abuse. 2004;16:381-92. doi: 10.1177/107906320401600409.
  45. Kim YR. Personal safety programs for children with intellectual disabilities. Educ Train Autism Dev Disabil. 2010;45:312-9.
  46. Mechlind LC. Thirty year review of safety skill instruction for persons with intellectual disabilities. Educ Train Dev Disabil. 2008;43:311-23.
DOI: https://doi.org/10.2478/sjph-2021-0013 | Journal eISSN: 1854-2476 | Journal ISSN: 0351-0026
Language: English
Page range: 82 - 89
Submitted on: Feb 7, 2020
Accepted on: Jan 29, 2021
Published on: Mar 18, 2021
Published by: National Institute of Public Health, Slovenia
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2021 Nina Brkić-Jovanović, Vanja Runjo, Daniela Tamaš, Sanela Slavković, Vesela Milankov, published by National Institute of Public Health, Slovenia
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.