Have a personal or library account? Click to login
Health-related quality of life in Croatian general population and multiple myeloma patients assessed by the EORTC QLQ-C30 and EORTC QLQ-MY20 questionnaires Cover

Health-related quality of life in Croatian general population and multiple myeloma patients assessed by the EORTC QLQ-C30 and EORTC QLQ-MY20 questionnaires

Open Access
|Sep 2019

References

  1. Croatian Institute of Public Health, Croatian National Cancer Registry. Cancer incidence in Croatia 2016. Bulletin No. 41. Zagreb: Croatian Institute of Public Health; 2019.
  2. King MT. The interpretation of scores from the EORTC quality of life questionnaire QLQ-C30. Qual Life Res 1996; 5: 555-67. doi: 10.1007/BF00439229
  3. Ford ME, Havstad SL, Kart CS. Assessing the reliability of the EORTC QLQ C-30 in a sample of older African and Caucasian adults. Qual Life Res 2001; 10: 533-41. doi: 10.1023/A:1013003014340
  4. WHOQOL Group. Study protocol for the World Health Organization project to develop a quality of life assessment instrument Qual Life Res 1993; 2: 153-9. doi: 10.1007/BF00435734
  5. Schwarz R, Hinz A. Reference Dana for the quality of life questionnaire EORTC QLQ-C30 in the general German population. Eur J Cancer 2001; 37: 1345-51. doi: 10.1016/s0959-8049(00)00447-0
  6. Sherman AC, Simonton S, Latif U, Plante TG, Anaissie EJ. Changes in quality of life and psychosocial adjustment among MM patients treated with high dose malphalan and autologous stem cell transplantation. Biol Blood Marrow Transplant 2009; 15: 12-20. doi: 10.1016/j.bbmt.2008.09.023
  7. Juul T, Petersen MA, Holzner B, Laurberg S, Christensen P, Gronvold M. Danish population- based reference data for the EORTC QLQ-C30: associations with gender, age and morbidity. Qual Life Res 2014; 23: 2183-93. doi: 10.1007/s11136-014-0675-y
  8. Luckett T, King MT, Butow PN, Oguchi M, Rankin N, Price MA, et al. Choosing between the EORTC QLQ-C30 and FACT-G for measuring health- related quality of life in cancer clinical research: issues, evidence and recommendations. Ann Oncol 2011; 22: 2179-90. doi: 10.1093/annonc/mdq721
  9. Cocks K, King MT, Velikova G, Martyn St-James M, Fayers PM, Brown JM. Evidence-based guidelines for determination of sample size and interpretation of the European Organization for the Research and Treatment of Cancer Quality of Life Questionnaire Core 30 J Clin Oncol 2011; 29: 89-96. doi: 10.1200/JCO.2010.28.0107
  10. Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: A quality of life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85: 365-76. doi: 10.1093/jnci/85.5.365
  11. European Organization for Research and Treatment of Cancer. Questionnaires. [cited 2016 Jan 10]. Available at: https://qol.eortc.org/questionnaire/qlq-my20/
  12. European Organization for Research and Treatment of Cancer. Questionnaires (10.01.2016.) Available at: https://qol.eortc.org/questionnaire/eortc-qlq-c30/
  13. Lonneke V, van de Poll-Franse LV, Mols F, Gundy CM, Creutzberg CL, Nout RA, et al. Normative data for the EORTC QLQ-C30 and EORTC- sexuality items in the general Dutch population. Eur J Cancer 2011; 47: 667-75. doi: 10.1016/j.ejca.2010.11.004
  14. Michelson H, Bolund C, Nilsson B, Brandberg Y. Health-related quality of life measured by the EORTC QLQ-C30. Reference values from a large sample of the Swedish population. Acta Oncol 2009; 39: 477-84. doi: 10.1080/028418600750013384
  15. Velenik V, Secerov-Ermenc A, But-Hadzic J, Zadnik V. Health-related quality of life assessed by the EORTC QLQ-C30 questionnaire in the general Slovenian population. Radiol Oncol 2017; 51: 342-50. doi: 10.1515/ raon-2017-0021
  16. Slovacek L, Slovackova B, Blazek M, Jebavy L. Quality of life in patients with multiple myeloma and malignant lymphoma undergoing autologous progenitor stem cell transplantation: the effect of selected psychosocial and health aspects on quality of life: a retrospective analysis. Rep Pract Oncol Radiother 2007; 12: 101-8. doi: 10.1016/S1507-1367(10)60046-6
  17. SurveyMonkey. Sample Size Calculator. Calculate your sample soize. [cited 2019 Jan 15]. Available at: https://www.surveymonkey.com/mp/sample-size-calculator
  18. Fayers P, Aaronson NK, Bjordal K, Sullivan M. EORTC QLQ-C30 scoring manual Brussels: EORTC Publications; 1997.
  19. Tkalac Verčič A, Sinčić Ćorić D, Pološki Vokić N Research methodology manual -How to design, implement and describe scientific and professional research. Zagreb: M.E.P. d.o.o; 2012.
  20. Petz B, Kolesarić V, Ivanec D. Petzova statistics [Croatian]. Zagreb: Naklada Slap; 2012.
  21. Šošić I. Applied statistics 2 [Croatian]. Updated edition. Zagreb: Školska knjiga; Zagreb 2006.
  22. Nielsen LK, Abildgaard N, Jarden M, Wirenfeld Klausen T. Methodological aspects of health-related quality of life and analysis in patients with multiple myeloma. Br J Haematol 2019; 185: 1-14. doi: 10.1111/bjh.15759
  23. Giesinger JM, Kieffer JM, Fayers PM, Groenvold M, Petersen MA, Scott NW, et al. Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust. J Clin Epidemiol 2016; 69: 79-88. doi: 10.1016/j.jclinepi.2015.08.007
  24. Bejaković P, Kaliterna Lipovčan LJ. Quality of life in Croatia: key findings from national research. Dublin: European Foundation for the Improvement of Living and Working Conditions; 2007.
  25. Hjermstad MJ, Fayers PM, Bjordal K, Kaasa S. Health related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer Core Quality –of-Life Questionnaire: The QLQ=C30 (+3). J Clin Oncol 1998; 16: 1188-96. doi: 10.1200/JCO.1998.16.3.1188
  26. Ministry of Regional Development and European Union Funds. Development index. [cited 2018 Jun 21]. Available at: https://razvoj.gov.hr/o-ministarstvu/regionalni-razvoj/indeks-razvijenosti/112
  27. Government of Republic of Croatia. Act on Regional Development of the Republic of Croatia 147/14, 123/17. NN. 132/2017. [cited 2018 Jun 21]. Available at: https://www.zakon.hr/z/239/Zakon-o-regionalnom-razvojuRepublike-Hrvatske
  28. Delforge M, Minuk L, Eisenmann JC, Arnulf B, Canepa L, Fragasso A, et al. Health-related quality of life in patients with newly diagnosed multiple myeloma in the FIRST trial: lenalidomide plus low-dose dexamethasone versus melphalan, prednisone, thalidomide. Haematologica 2015; 100: 826-33. doi: 10.3324/haematol.2014.120121
  29. Despiegel N, Touboul C, Flinois A, Saba G, Suzan F, Gonzales-McQuire S. Health-related quality of life of patients with multiple myeloma treated in routine clinical practice in France. Clin Lymphoma Myeloma Leuk 2018; 19: 13-28. doi: 10.1016/j.clml.2018.08.01
  30. Uyl-de Groot CA, Buijt I, Gloudemans IJM, Ossenkoppele GJ, Van den Berg HP, Huijgens PC. Health related quality of life in patients with multiple myeloma undergoing a double transplantation. Eur J Haematol 2005; 74: 136-43. doi: 10.1111/j.1600-0609.2004.00346.x
  31. Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality of life scores. J Clin Oncol 1998; 16: 139-44. doi: 10.1200/JCO.1998.16.1.139
  32. Gjural S, Conroy T, Fleissner C, Sezer O, King PM, Avery KN, et al. Assessing quality of life in patients with colorectal cancer: An update of the EORTC quality of life questionnaire. Eur J Cancer 2007; 43: 1564-73. doi: 10.1016/j. ejca.2007.04.005
  33. Lange MM, Marijnen CAM, Maas CP, Putter H, Rutten HJ, Stiggelbout AM, et al. Risk factors for sexual dysfunction after rectal cancer treatment. Eur J Cancer 2009; 45: 1578-88. doi: 10.1016/j.ejca.2008.12.014
  34. Salaffi F, Carotti M, Gasparini S, Intorcia M, Grassi W. Health and Quality of Life Outcomes. The health-related quality of life in rheumatoid arthritis, ankylosing spondylitis, and psoriatic arthritis: a comparison with a selected sample of healthy people. Health Qual Life Outcomes 2009; 18: 7-25. doi:10.1186/1477-7525-7-25
DOI: https://doi.org/10.2478/raon-2019-0047 | Journal eISSN: 1581-3207 | Journal ISSN: 1318-2099
Language: English
Page range: 337 - 347
Submitted on: Jul 23, 2019
|
Accepted on: Aug 9, 2019
|
Published on: Sep 24, 2019
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2019 Sanja Ledinski Ficko, Vlatko Pejsa, Vesna Zadnik, published by Association of Radiology and Oncology
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.