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Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways Cover

Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways

Open Access
|Aug 2023

Figures & Tables

The development of clearly defined, evidence-based future care pathways in rare disease faces multiple challenges related to prioritisation, minimum levels of care and fragmentation of services, with digital health presenting both opportunities and drawbacks
The development of clearly defined, evidence-based future care pathways in rare disease faces multiple challenges related to prioritisation, minimum levels of care and fragmentation of services, with digital health presenting both opportunities and drawbacks

Figure 1.

Iceberg Model template used to identify events, patterns, structures and mental models in challenges for access equity.
Iceberg Model template used to identify events, patterns, structures and mental models in challenges for access equity.

Figure 2.

Infographic showing the patient journey to diagnosis in rare diseases, developed as part of the EURORDIS Solve-RD project [32]
Infographic showing the patient journey to diagnosis in rare diseases, developed as part of the EURORDIS Solve-RD project [32]
Language: English
Page range: 74 - 81
Published on: Aug 9, 2023
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year

© 2023 Naja Skouw-Rasmussen, Laura Savini, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.