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Volume 10 (2023): Issue 1 (January 2023) Cover

Volume 10 (2023): Issue 1 (Jan 2023)

The Journal of Haemophilia Practice
Open Access
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Issue 1 (January 2023)

23 articles
Open Access
|Feb 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency
Amanda Bok,  Declan Noone and  Naja Skouw-Rasmussen  
Open Access
|Jul 2023
Access equity: key questions and challenges - A report from the 1st workshop of the European Haemophilia Consortium (EHC) Think Tank Workstream on Access Equity
Naja Skouw-Rasmussen and  Laura Savini  
Open Access
|Aug 2023
Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
Naja Skouw-Rasmussen and  Laura Savini  
Open Access
|Dec 2023
Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Access Equity and Future Care Pathways
Zita Gacser,  Naja Skouw-Rasmussen,  Steven Bourke,  Renske ten Ham and  Dalma Hosszú  
Open Access
|Feb 2023
Clinical and radiological assessment of joints in people with haemophilia in Assam, Northeast India: a cross-sectional study
Bhabani Sankar Dhal,  Anupam Dutta,  Arijit Das,  Dhrubajyoti Borpatragohain,  Adity Sharma and  Arnav Kashyap  
Open Access
|Jul 2023
Pain assessment and management in the Moroccan haemophilia population: a prospective descriptive study
Sofia Sraidi,  Sara Naim,  Mouna Lamchahab,  Siham Cherkaoui,  Meryem Qachouh,  Mohamed Rachid,  Abdellah Madani and  Nissrine Khoubila  
Open Access
|Oct 2023
Psychological experiences of mothers of children with severe haemophilia in Iranian culture: A phenomenological study
Fatemeh Feizi,  Ali Eshghi,  Manijeh Firoozi,  Zeinab Shormeij,  Behnaz Habib Panah,  Peyman Eshghi and  Javad Alaghband Rad  
Open Access
|Dec 2023
Factors associated with delays in seeking treatment for acute bleeding among persons living with haemophilia in Uganda: a cross-sectional mixed methods study
Agnes Kisakye,  Phillip Gitah Kasirye,  Dan Muramuzi,  Daniel Opuch,  Joan Nampiima,  Grace Ndeezi,  Adoke Yeka and  Horatiu Vultur  
Open Access
|Apr 2023
The impact of the Contaminated Blood Scandal on the next generation: the state of the evidence
Sally-Anne Wherry,  Liz Berragan and  Ros Jennings  
Open Access
|May 2023
The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier
Keiko Nozaki and  Akemi Yamazaki  
eISSN: 2055-3390|Language: English|Publication frequency: 1 time per year
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology
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