Figure 1.
Figure 2.
Reported pain intensity in different situations (N=60)
| NO PAIN | MILD PAIN | MODERATE PAIN | SEVERE PAIN | WORST PAIN POSSIBLE | |
|---|---|---|---|---|---|
| During bleeding episodes | 4% | 7% | 27% | 37% | 25% |
| During physical efforts | 6% | 14% | 15% | 46% | 19% |
| While walking up and down stairs | 17% | 15% | 29% | 31% | 8% |
| After resting or staying still | 29% | 19% | 21% | 25% | 6% |
| During rest | 35% | 26% | 17% | 15% | 7% |
| After false movements | 6% | 21% | 17% | 31% | 25% |
Participant demographics (N=60)
| NUMBER (N) | |
|---|---|
| Gender | |
| Male | 60 (100%) |
| Female | 0 |
| Age range | |
| 18-30 | 42 (70%) |
| 31-45 | 15 (25%) |
| 45-59 | 2 (3.3%) |
| >60 | 1 (1.6%) |
| Haemophilia type | |
| Haemophilia A | 51 (85%) |
| Haemophilia B | 9 (15%) |
| Haemophilia severity* | |
| Severe | 38 (63%) |
| Moderate | 22 (37%) |
| Mild | 0 |
| Inhibitor status | |
| Inhibitors | 6 (10%) |
| No inhibitors | 54 (90%) |
| Treatment regimen | |
| Low dose prophylaxis | 8 (13%) |
| On-demand treatment | 52 (87%) |
Therapeutic strategies used, with reported response rate (N=60)
| TREATMENT STRATEGY | % OF RESPONDENTS (N) |
|---|---|
| Pain medication (analgesics, creams) | 60% (36) |
| Rest | 40% (24) |
| Elevation/change of position | 20% (12) |
| Ice | 10% (6) |
| Coagulation factor replacement | 50% (30) |
| Prayer | 6 (10%) |