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Participant demographics (n=67)
| NUMBER (N) | PERCENTAGE (%) | |
|---|---|---|
| Age | ||
| 12–19 | 31 | 46.27% |
| 20–29 | 25 | 37.31% |
| 30–39 | 8 | 11.94% |
| 40–49 | 3 | 4.48% |
| >50 | 0 | 0 |
| Gender | ||
| Male | 65 | 97.01% |
| Female | 2 | 2.99% |
| Haemophilia type | ||
| Haemophilia A | 57 | 85.07% |
| Haemophilia B | 9 | 13.43% |
| Acquired haemophilia | 1 | 1.49% |
| Haemophilia severity* | ||
| Severe | 38 | 56.72% |
| Haemophilia A | 32 | 47.76% |
| Haemophilia B | 6 | 8.96% |
| Moderate | 11 | 16.42% |
| Haemophilia A | 9 | 13.43% |
| Haemophilia B | 2 | 2.99% |
| Mild | 17 | 25.37% |
| Haemophilia A | 16 | 23.88% |
| Haemophilia B | 1 | 1.49% |
Mean and median values of HEAD-US, Pettersson, FISH and HJHS scores and annual bleed rate (ABR) in study participants with severe, moderate and mild factor deficiency (n=67)
| SEVERE HAEMOPHILIA | MODERATE HAEMOPHILIA | MILD HAEMOPHILIA | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Mean | Median | SD | Range. | Mean | Median | SD | Range. | Mean | Median | SD | Range. | |
| HEAD-US | 7.42 | 6.50 | 5.017 | 0–25 | 3.09 | 2.00 | 2.59 | 0–8 | 1.00 | 1.00 | 1.06 | 0–3 |
| Pettersson | 11.53 | 10.50 | 8.01 | 0–39 | 5.36 | 3.00 | 5.14 | 0–18 | 1.59 | 2.00 | 1.66 | 0–5 |
| FISH | 23.95 | 24.00 | 4.55 | 4–32 | 28.09 | 29.00 | 2.95 | 22–32 | 29.65 | 30.00 | 2.87 | 22–32 |
| HJHS | 18.76 | 16.00 | 11.57 | 0–59 | 10.82 | 6.00 | 12.82 | 0–46 | 3.88 | 2.00 | 6.21 | 0–24 |
| ABR | 18.71 | 15.50 | 11.98 | 2–50 | 6.36 | 6.00 | 4.06 | 0–12 | 5.44 | 5.00 | 3.37 | 1–12 |