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Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency Cover

Short- and longer-term goals for change – A report from the 2nd workshops of the EHC Think Tank Workstreams on Registries, the Hub and Spoke Model and Patient Agency

The Journal of Haemophilia Practice
Volume 10 (2023): Issue 1 (January 2023)
By: Amanda Bok,  Declan Noone and  Naja Skouw-Rasmussen  
Open Access
|Feb 2023

Authors

Amanda Bok

European Haemophilia Consortium, Brussels, Belgium

Declan Noone

European Haemophilia Consortium, Brussels, Belgium

Naja Skouw-Rasmussen

thinktank@ehc.eu

European Haemophilia Consortium, Brussels, Belgium
DOI: https://doi.org/10.2478/jhp-2023-0001 | Journal eISSN: 2055-3390
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Language: English
Page range: 1 - 10
Published on: Feb 23, 2023
Published by: Haemnet Ltd
In partnership with: Paradigm Publishing Services
Publication frequency: 1 issue per year
Keywords:
Bleeding disorders,
Registries,
Hub and spoke model,
Patient agency,
Mapping,
Collaboration,
Education,
Organisational change,
Governance
Related subjects:
Medicine,
Basic medical science,
Basic medical science, other,
Clinical medicine,
Clinical medicine, other,
Pharmacy,
Pharmacology

© 2023 Amanda Bok, Declan Noone, Naja Skouw-Rasmussen, published by Haemnet Ltd
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

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