References
- Almasri, N. A., An, M., & Palisano, R. J. (2018). Parents' Perception of Receiving Family-Centered Care for Their Children with Physical Disabilities: A Meta-Analysis. Physical & Occupational Therapy In Pediatrics, 38(4), 427–443.
https://doi.org/10.1080/01942638.2017.1337664 - Arfa, S., Solvang, P. K., Berg, B., & Jahnsen, R. (2022). Participation in a rehabilitation program based on adapted physical activities in Norway: A qualitative study of experiences of immigrant parents and their children with disabilities. Disability and Rehabilitation, 44(9), 1642–1649.
https://doi.org/10.1080/09638288.2021.1907454 - Bamm, E. L., Rosenbaum, P., Wilkins, S., Stratford, P., & Mahlberg, N. (2015). Exploring Client-Centered Care Experiences in In-Patient Rehabilitation Settings. Global Qualitative Nursing Research, 2.
https://doi.org/10.1177/2333393615582036 - Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: A systematic review. Journal of Pediatric Psychology, 38(8), 809–828.
https://doi.org/10.1093/jpepsy/jst049 - Coyne, I. (2015). Families and health-care professionals' perspectives and expectations of family-centred care: Hidden expectations and unclear roles. Health Expectations, 18(5), 796–808.
https://doi.org/10.1111/hex.12104 - Cunningham, B. J., & Rosenbaum, P. L. (2014). Measure of processes of care: A review of 20 years of research. Developmental Medicine and Child Neurology, 56(5), 445–452.
https://doi.org/10.1111/dmcn.12347 - Darrah, J., Wiart, L., Magill-Evans, J., Ray, L., & Andersen, J. (2012). Are family-centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy? Child: Care, Health and Development, 38(1), 41–47.
https://doi.org/10.1111/j.1365-2214.2010.01160.x - Deutsche Rentenversicherung Bund (ed.). Rehabilitation 2019. Statistik der Deutschen Rentenversicherung. Band 219. 2020. ISSN 1862-9962
- Deutsche Rentenversicherung. (2021, November). Eckpunktepapier Begleitpersonen.
- Forsingdal, S., St John, W., Miller, V., Harvey, A., & Wearne, P. (2014). Goal setting with mothers in child development services. Child: Care, Health and Development, 40(4), 587–596.
https://doi.org/10.1111/cch.12075 - Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology, 13(1), 117.
https://doi.org/10.1186/1471-2288-13-117 - Goffman, E. (2013). Encounters: Two Studies in the Sociology of Interaction. Martino Fine Books.
- Halkowski, T. (1990). «Role» as an Interactional Device. Social Problems, 37(4), 564–577.
https://doi.org/10.2307/800582 - World Health Organization. International Classification of Functioning, Disability and Health (ICF).
https://www.who.int/standards/classifications/international-classification-of-functioning-disability-and-health [Accessed 18th February 2024] - James, C., & Chard, G. (2010). A Qualitative Study of Parental Experiences of Participation and Partnership in an Early Intervention Service. Infants & Young Children, 23, 275–285.
https://doi.org/10.1097/IYC.0b013e3181f2264f - Jürgensen, M., Großmann, N., & Thyen, U. (2017). „Das würde ich gar nicht erst beantragen!“ – Barrieren der Inanspruchnahme einer Kinder- und Jugend-Rehabilitations-Maßnahme aus Sicht der Familien. Die Rehabilitation, 56(2), 109–118.
https://doi.org/10.1055/s-0043-103063 - King, G., Chiarello, L. A., McLarnon, M. J. W., Ziviani, J., Pinto, M., Wright, F. V., & Phoenix, M. (2022). A measure of parent engagement: Plan appropriateness, partnering, and positive outcome expectancy in pediatric rehabilitation sessions. Disability and Rehabilitation, 44(14), 3459–3468.
https://doi.org/10.1080/09638288.2020.1864036 - Koerber, M. I., Mack, J. T., Seefeld, L., Kopp, M., Weise, V., Starke, K. R., & Garthus-Niegel, S. (2023). Psychosocial work stress and parent-child bonding during the COVID-19 pandemic: Clarifying the role of parental symptoms of depression and aggressiveness. BMC Public Health, 23(1), 113.
https://doi.org/10.1186/s12889-022-14759-5 - Kruijsen-Terpstra, A. J. A., Verschuren, O., Ketelaar, M., Riedijk, L., Gorter, J. W., Jongmans, M. J., & Boeije, H. (2016). Parents' experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy. Research in Developmental Disabilities, 53–54, 314–322.
https://doi.org/10.1016/j.ridd.2016.02.012 - Leidig, E., & Maier, S. (2021, Mai). Positionspapier zur familienorientrierten Rehabilitaion bei krebskranken Kindern.
- Mahabir, D. F., O'Campo, P., Lofters, A., Shankardass, K., Salmon, C., & Muntaner, C. (2021). Classism and Everyday Racism as Experienced by Racialized Health Care Users: A Concept Mapping Study. International Journal of Health Services: Planning, Administration, Evaluation, 51(3), 350–363.
https://doi.org/10.1177/00207314211014782 - Neuhauser, H., & Poethko-Müller, C. (2014). Chronische Erkrankungen und impfpräventable Infektionserkrankungen bei Kindern und Jugendlichen in Deutschland. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 57(07), 779–788.
https://doi.org/10.25646/1816 - Parsons, T. (1991). The Social System (2. Aufl.). Routledge.
https://doi.org/10.4324/9780203992951 - Petermann, F., Hampel, P., & Bengel, J. (2017). Rehabilitation bei Kindern und Jugendlichen. Die Rehabilitation, 56(02), 88–90.
https://doi.org/10.1055/s-0043-105636 - Phoenix, M., Jack, S. M., Rosenbaum, P. L., & Missiuna, C. (2020). Parents' attendance, participation and engagement in children's developmental rehabilitation services: Part 1. Contextualizing the journey to child health and happiness. Disability and Rehabilitation, 42(15), 2141–2150.
https://doi.org/10.1080/09638288.2018.1555617 - Phoenix, M., Smart, E., & King, G. (2020). ‘I Didn't Know What to Expect’: Describing Parents' Expectations in Children's Rehabilitation Services. Physical & Occupational Therapy In Pediatrics, 40(3), 311–329.
https://doi.org/10.1080/01942638.2019.1665155 - Reinhardt, D., & Petermann, F. (2010). Neue Morbiditäten in der Pädiatrie. Monatsschrift Kinderheilkunde, 158(1), 14–14.
https://doi.org/10.1007/s00112-009-2113-8 - Schlack, H. G., & Brockmann, K. (2014). Einfluss sozialer Faktoren auf Gesundheit und Entwicklung von Kindern. In G. F. Hoffmann, M. J. Lentze, J. Spranger, & F. Zepp (Hrsg.), Pädiatrie: Grundlagen und Praxis (S. 152–155). Springer.
https://doi.org/10.1007/978-3-642-41866-2_13 - Smith, K. A., & Samuels, A. E. (2021). A scoping review of parental roles in rehabilitation interventions for children with developmental delay, disability, or long-term health condition. Research in Developmental Disabilities, 111, 103887.
https://doi.org/10.1016/j.ridd.2021.103887 - Stefánsdóttir, S., & Thóra Egilson, S. (2016). Diverging perspectives on children's rehabilitation services: A mixed-methods study. Scandinavian Journal of Occupational Therapy, 23(5), 374–382.
https://doi.org/10.3109/11038128.2015.1105292 - Stumm, J., Fahrenkrog, S., Klüpfel, L., & Spyra, K. (2023). Umsetzung von Rehanachsorgeangeboten bei Kindern und Jugendlichen. Perspektiven aus der Praxis. Physikalische Medizin, Rehabilitationsmedizin, Kurortmedizin.
https://doi.org/10.1055/a-2125-9370 - Thyen, U., Baumann, A., Jürgensen, M., Cytera, C., Berghem, S., & Springer, S. (2021). Habilitation und Rehabilitation bei Kindern und Jugendlichen: Möglichkeiten und Grenzen. Monatsschrift Kinderheilkunde, 169(3), 212–219.
https://doi.org/10.1007/s00112-020-01105-5 - Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357.
https://doi.org/10.1093/intqhc/mzm042 - Vroland-Nordstrand, K., Eliasson, A.-C., Krumlinde-Sundholm, L., & Johansson, U. (2018). Parents' experiences of conducting a goal-directed intervention based on children's self-identified goals, a qualitative study. Scandinavian Journal of Occupational Therapy, 25(4), 243–251.
https://doi.org/10.1080/11038128.2017.1335778 - Warschburger, P., Kamrath, C., Lanzinger, S., Sengler, C., Wiegand, S., Göldel, J. M., Weihrauch-Blüher, S., Holl, R. W., & Minden, K. (2023). A prospective analysis of the long-term impact of the COVID-19 pandemic on well-being and health care among children with a chronic condition and their families: A study protocol of the KICK-COVID study. BMC Pediatrics, 23(1), 130.
https://doi.org/10.1186/s12887-023-03912-7 - Widera, T., Baumgarten, E., Druckenmüller, A., & Niehues, C. (2017). Kinder- und Jugendlichen-Rehabilitation – Stand und Perspektiven aus Sicht der Deutschen Rentenversicherung. Die Rehabilitation, 56(02), 91–102.
https://doi.org/10.1055/s-0043-103065 - Wiegand-Grefe, S., Denecke, J., & Verbund CARE-FAM-NET. (2022). Psychosoziale Versorgung für Kinder mit seltenen Erkrankungen und ihren Eltern und Geschwistern im Verbund CARE-FAM-NET. Monatsschrift Kinderheilkunde, 170(1), 44–51.
https://doi.org/10.1007/s00112-021-01377-5