Table 1.
Interview guide.
| No. | Questions |
|---|---|
| 1. | Have you ever heard of treatments that aim to relieve suffering and provide comfort to stroke patients? |
| 2. | What is your understanding of stroke or treatments to relieve suffering in stroke patients? |
| 3. | Where do you get information about providing care for stroke patients at home? |
| 4. | How do you treat complaints or reduce patient problems? |
| 5. | What do you need when caring for patients at home? |
| 6. | What are the costs involved in providing patient care at home? |
| 7. | What do you need to know about dying care for patients? |
Table 2.
Characteristics of participant.
| Characteristics | N | Percentage (%) |
|---|---|---|
| Age | ||
| 30–69 years old | 11 | 100.0 |
| Gender | ||
| Female | 10 | 90.9 |
| Male | 1 | 9.1 |
| Education | ||
| Senior High School | 5 | 45.4 |
| Associate | 1 | 9.1 |
| Bachelor | 2 | 18.2 |
| Graduate | 2 | 18.2 |
| Post Graduate | 1 | 9.1 |
| Work | ||
| Housewife | 5 | 45.4 |
| Retired | 2 | 18.2 |
| Businessman | 1 | 9.1 |
| Doctor | 2 | 18.2 |
| Ethnic group | ||
| Java | 11 | 100.0 |
| Relationship with patients | ||
| Child | 5 | 45.4 |
| Wife | 3 | 27.3 |
| Grandchild | 2 | 18.2 |
| Doctor | 1 | 9.1 |
| Long time of care, years | ||
| <5 | 5 | 45.4 |
| 5–10 | 3 | 27.3 |
| >10 | 2 | 18.2 |
Table 3.
Themes and sub themes.
| Themes | Sub themes |
|---|---|
| Family perceptions of palliative care | Treatment according to patient condition Definition of palliative care Aims of palliative care Principles of palliative care |
| Informational needs | Sources of care information Advanced information needs |
| Financial needs | Financial support Treatment according to financial status |
| Family members as primary care support | Extended family support Child support in caring for parents |
| End of life care needs | ACP Funeral preparation |