Have a personal or library account? Click to login

Home-based palliative care needs among caregivers of stroke patients in Yogyakarta, Indonesia: a qualitative phenomenology

Open Access
|Sep 2025

Figures & Tables

Characteristics of participant_

CharacteristicsNPercentage (%)
Age
  30–69 years old11100.0
Gender
  Female1090.9
  Male19.1
Education
  Senior High School545.4
  Associate19.1
  Bachelor218.2
  Graduate218.2
  Post Graduate19.1
Work
  Housewife545.4
  Retired218.2
  Businessman19.1
  Doctor218.2
Ethnic group
  Java11100.0
Relationship with patients
  Child545.4
  Wife327.3
  Grandchild218.2
  Doctor19.1
Long time of care, years
  <5545.4
  5–10327.3
  >10218.2

Themes and sub themes_

ThemesSub themes
Family perceptions of palliative careTreatment according to patient conditionDefinition of palliative careAims of palliative carePrinciples of palliative care
Informational needsSources of care informationAdvanced information needs
Financial needsFinancial supportTreatment according to financial status
Family members as primary care supportExtended family supportChild support in caring for parents
End of life care needsACPFuneral preparation

Interview guide_

No.Questions
1.Have you ever heard of treatments that aim to relieve suffering and provide comfort to stroke patients?
2.What is your understanding of stroke or treatments to relieve suffering in stroke patients?
3.Where do you get information about providing care for stroke patients at home?
4.How do you treat complaints or reduce patient problems?
5.What do you need when caring for patients at home?
6.What are the costs involved in providing patient care at home?
7.What do you need to know about dying care for patients?
DOI: https://doi.org/10.2478/fon-2025-0042 | Journal eISSN: 2544-8994 | Journal ISSN: 2097-5368
Language: English
Page range: 383 - 391
Submitted on: Apr 28, 2024
Accepted on: Nov 4, 2024
Published on: Sep 25, 2025
Published by: Shanxi Medical Periodical Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 issues per year

© 2025 Raditya Bagus Septian, Bertha Tesma Wulandari, published by Shanxi Medical Periodical Press
This work is licensed under the Creative Commons Attribution 4.0 License.