Home-based palliative care needs among caregivers of stroke patients in Yogyakarta, Indonesia: a qualitative phenomenology
Abstract
Objective
A stroke with the consequence of permanent disability leaves the sufferer dependent on the family to fulfil basic needs. Palliative care is essential for patients and their families, as caregivers, to optimize the care process and quality of life. Therefore, it is crucial to identify palliative needs for families during care. Palliative care is still limited in Indonesia. This study aimed to explore the palliative care needs of families caring for stroke patients in a home care setting in Indonesia.
Methods
This qualitative study employed a descriptive phenomenological approach and was conducted between October and November 2023 through in-depth interviews. Interviews were conducted with 10 family caregivers of stroke patients selected through purposive sampling. Interviews were also conducted with the doctor provider of homecare service as triangulation participants. The Colaizzi method was used for data analysis.
Results
Palliative care needs of family caregivers classified into five themes: (1) family perception of palliative care, (2) informational needs, (3) financial needs, (4) family members as primary care support, and (5) end of life care needs.
Conclusions
This study identified caregivers’ palliative needs during patient care. The extended family and children are main care support in palliative care for family caregiver. This finding suggests that nurses should provide informational support by educating and collaborating with them regarding the provision of palliative care at home.
© 2025 Raditya Bagus Septian, Bertha Tesma Wulandari, published by Shanxi Medical Periodical Press
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