Caregivers’ awareness regarding the care of dementia and the coping strategies among the caregivers of people with dementia: a cross-sectional study in Udupi District, Karnataka
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References
- <em>Alzheimer’s Disease and Healthy Aging</em>. Center for Disease Control and Prevention; 2019.
- <em>Dementia Key Facts</em>. World Health Organization; 2022. https://www.who.int/news-room/fact-sheets/detail/dementia. Accessed October 21, 2022.
- Zacharopoulou G, Zacharopoulou V, Lazakidou A. Quality of life for caregivers of elderly patients with dementia and measurement tools: a review. <em>Int J Health Res Innov</em>. 2015;3:49–64.
- Brodaty H, Donkin M. Family caregivers of people with dementia. <em>Dialogues Clin Neurosci</em>. 2009;11:217–228.
- Duggleby W, Williams A, Ghosh S, et al. Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. <em>Health Qual Life Outcomes</em>. 2016;14:81.
- Rodrigues L, Mathias T. Effectiveness of planned teaching program on knowledge regarding Alzheimer’s disease among the family members of elderly in a selected urban community at Mangalore. <em>Indian J Psychiatry</em>. 2016;58:44–48.
- Jorge C, Cetó M, Arias A, et al. Level of understanding of Alzheimer disease among caregivers and the general population. <em>Neurologia (Engl Ed)</em>. 2021;36:426–432.
- Pleasant M, Molinari V, Dobbs D, Meng H, Hyer K. Effectiveness of online dementia caregivers training programs: a systematic review. <em>Geriatr Nurs</em>. 2020;41:921–935.
- Lindeza P, Rodrigues M, Costa J, Guerreiro M, Rosa MM. Impact of dementia on informal care: a systematic review of family caregivers’ perceptions. <em>BMJ Support Palliat Care</em>. 2024;14:38–49.
- Hurzuk S, Farina N, Pattabiraman M, et al. Understanding, experiences and attitudes of dementia in India: a qualitative study. <em>Dementia (London)</em>. 2022;21:2288–2306.
- Teichmann B, Gkioka M, Kruse A, Tsolaki M. Informal caregivers’ attitude toward dementia: the impact of dementia knowledge, confidence in dementia care, and the behavioral and psychological symptoms of the person with dementia. A cross-sectional study. <em>J Alzheimers Dis</em>. 2022;88:971–984.
- Ritchie L, Jack-Waugh A, Devi ES, et al. Understanding family carer experiences of advanced dementia caregiving in India: towards a vision for integrated practice. <em>J Integ Care</em>. 2020;28:337–348.
- Arai Y, Arai A, Zarit SH. What do we know about dementia? A survey on knowledge about dementia in the general public of Japan. <em>Int J Geriatr Psychiatry</em>. 2008;23:433–438.
- Werner P. Correlates of family caregivers’ knowledge about Alzheimer’s disease. <em>Int J Geriatr Psychiatry</em>. 2001;16:32–38.
- Dai Y, Zhao J, Li S, Zhao C, Gao Y, Johnson CE. Caregivers’ dementia knowledge and care approach in residential aged care facilities in China. <em>Am J Alzheimers Dis Other Demen</em>. 2020;35:1–7.
- Eisenmann Y, Golla H, Schmidt H, Voltz R, Perrar KM. Palliative care in advanced dementia. <em>Front Psychiatry</em>. 2020;11:699.
- Amado DK, Brucki SMD. Knowledge about Alzheimer’s disease in the Brazilian population. <em>Arq Neuropsiquiatr</em>. 2018;76:775–782.
- Márquez-González M, Vara-García C, Romero-Moreno R, Losada-Baltar A, del Sequeros Pedroso-Chaparro M, Barrera-Caballero S. Associations of knowledge about Alzheimer’s disease, dysfunctional cognition, and coping with caregiver’s blood pressure. <em>Clínica y Salud</em>. 2021;32:79–87.
- Suriastini NW, Turana Y, Witoelar F, Sikoki B, Wicaksono T, Dwi ME. The prevalence, risk factors of dementia and caregiver knowledge of the early symptoms: evidence from a large-scale survey in Yogyakarta. <em>Aging Med Healthc</em>. 2020;11:60–66.
- Samy Atta N. Caregivers’ burden and needed support for the care of dementia patients attending Ain Shams University hospitals. <em>Egypt J Geriatr Gerontol</em>. 2021;8:30–36.
- Ahmad Basri MA, Subramaniam P, Ghazali SE, Singh DK. A review of knowledge and attitudes towards dementia among college and university students. <em>J Clin Diagn Res</em>. 2017;11:1–7.
- Annear MJ, Eccleston CE, McInerney FJ, et al. A new standard in dementia knowledge measurement: comparative validation of the dementia knowledge assessment scale and the Alzheimer’s disease knowledge scale. <em>J Am Geriatr Soc</em>. 2016;64:1329–1334.
- Alzahrani MM, Alghamdi AA, Alghamdi SA, Alotaibi RK. Knowledge and attitude of dentists towards obstructive sleep apnea. <em>Int Dent J</em>. 2022;72:315–321.
- Carver CS. You want to measure coping but your protocol’s too long: consider the brief COPE. <em>Int J Behav Med</em>. 1997;4:92–100.
- Cooper C, Katona C, Livingston G. Validity and reliability of the brief COPE in carers of people with dementia: the LASER-AD Study. <em>J Nerv Ment Dis</em>. 2008;196:838–843.
- Jennings LA, Reuben DB, Evertson LC, et al. Unmet needs of caregivers of individuals referred to a dementia care program. <em>J Am Geriatr Soc</em>. 2015;63:282–289.
- Gurukartick J, Dongre AR, Shah D. Social determinants of dementia and caregivers’ perspectives in the field practice villages of rural health training centre, Thiruvennainallur. <em>Indian J Palliat Care</em>. 2016;22:25.
- Mondal S, Tandon R, Dasgupta J. An exploratory study of caregiver burden amongst urban upper class adults in India during COVID-19. <em>Alzheimers Dement</em>. 2021;17:e052800.
- Huang WC, Chang MC, Wang WF, Jhang KM. A comparison of caregiver burden for different types of dementia: an 18-month retrospective cohort study. <em>Front Psychol</em>. 2022;12:798315.
- Silva MVF, Loures CMG, Alves LCV, de Souza LC, Borges KBG, Carvalho MDG. Alzheimer’s disease: risk factors and potentially protective measures. <em>J Biomed Sci</em>. 2019;26:33.
- Bruinsma J, Peetoom K, Bakker C, Boots L, Verhey F, de Vugt M. ‘They simply do not understand’: a focus group study exploring the lived experiences of family caregivers of people with frontotemporal dementia. <em>Aging Ment Health</em>. 2022;26:277–285.
- Stokes LA, Combes H, Stokes G. Understanding the dementia diagnosis: the impact on the caregiving experience. <em>Dementia (London)</em>. 2014;13:59–78.
- Proctor R, Martin C, Hewison J. When a little knowledge is a dangerous thing…: a study of carers’ knowledge about dementia, preferred coping style and psychological distress. <em>Int J Geriatr Psychiatry</em>. 2002;17:1133–1139.
- Long NX, Ngoc NB, Phung TT, et al. Coping strategies and social support among caregivers of patients with cancer: a cross-sectional study in Vietnam. <em>AIMS Public Health</em>. 2020;8:1–14.
Language: English
Page range: 447 - 455
Submitted on: Mar 7, 2024
Accepted on: Mar 25, 2024
Published on: Dec 16, 2024
Published by: Shanxi Medical Periodical Press
In partnership with: Paradigm Publishing Services
Publication frequency: 4 times per year
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© 2024 Clarita Shynal Martis, Ramesh Chandrababu, Vani Lakshmi R, Rajeshkrishna Panambur Bhandary, Debbie Tolson, Panambur Venkataraya Bhandary, Elsa Sanatombi Devi, published by Shanxi Medical Periodical Press
This work is licensed under the Creative Commons Attribution 4.0 License.