References
- Acheson, L. S., Wang, C., Zyzanski, S. J., Lynn, A., Ruffin IV, M. T., Gramling, R., Rubinstein, W., O’Neill, S., & Nease Jr, D. E. (2010). Family history and perceptions about risk and prevention for chronic diseases in primary care: a report from the Family Healthware™ Impact Trial. Genetics in Medicine, 12(4), 212.
- Annis, A. M., Caulder, M. S., Cook, M. L., & Duquette, D. (2005). Family History, Diabetes, and Other Demographic and Risk Factors Among Participants of the National Health and Nutrition Examination Survey 1999–2002. Preventing Chronic Disease, 2(2), A19.
- Ashida, S., Kaphingst, K. A., Goodman, M., & Schafer, E. J. (2013). Family health history communication networks of older adults importance of social relationships and disease perceptions. Health Education & Behavior, 40(5), 612-619.
- Ashida, S., & Schafer, E. J. (2014). Family health information sharing among older adults: reaching more family members. Journal of community genetics, 6(1), 17-27.
- Baptiste-Roberts, K., Gary, T. L., Beckles, G. L., Gregg, E. W., Owens, M., Porterfield, D., & Engelgau, M. M. (2007). Family history of diabetes, awareness of risk factors, and health behaviors among African Americans. American Journal of Public Health, 97(5), 907-912.
- Breastcancer.org. (2018). Family History. from https://www.breastcancer.org/risk/factors/family_history
- Case, D. O. (2008). Collection of family health histories: The link between genealogy and public health. Journal of the American Society for Information Science and Technology, 59(14), 2312-2319.
- Catz, D. S., Green, N. S., Tobin, J. N., Lloyd-Puryear, M. A., Kyler, P., Umemoto, A., … Wolman, F. (2005). Attitudes about genetics in underserved, culturally diverse populations. Community Genet, 8(3), 161-172. doi: 10.1159/000086759
- Chen, L.-S., Li, M., Talwar, D., Xu, L., & Zhao, M. (2016). Chinese Americans’ Views and Use of Family Health History: A Qualitative Study. PloS one, 11(9), e0162706.
- Corona, R., Rodríguez, V., Quillin, J., Gyure, M., & Bodurtha, J. (2013). Talking (or not) about family health history in families of Latino young adults. Health Education & Behavior, 40(5), 571-580.
- Creswell, J. W., & Clark, V. L. P. (2017). Designing and conducting mixed methods research: Sage publications.
- Daelemans, S., Vandevoorde, J., Vansintejan, J., Borgermans, L., & Devroey, D. (2013). The use of family history in primary health care: a qualitative study. Advances in preventive medicine, 2013.
- Dedoose version 8.0.35. (2018). Web application for managing, analyzing, and presenting qualitative and mixed method research data (2013). Los Angeles, CA: SocioCultural Research Consultants, LLC. Retrieved from www.dedoose.com
- Forrest, K., Simpson, S., Wilson, B., Van Teijlingen, E., McKee, L., Haites, N., & Matthews, E. (2003). To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clinical genetics, 64(4), 317-326.
- Goergen, A. F., Ashida, S., Skapinsky, K., de Heer, H. D., Wilkinson, A. V., & Koehly, L. M. (2016). What You Don’t Know: Improving Family Health History Knowledge among Multigenerational Families of Mexican Origin. Public Health Genomics, 19(2), 93-101. doi: 10.1159/000443473
- Halbert, C. H., Welch, B., Lynch, C., Magwood, G., Rice, L., Jefferson, M., & Riley, J. (2016). Social determinants of family health history collection. Journal of community genetics, 7(1), 57-64.
- Hecht, M. L., Jackson, R. L., & Ribeau, S. A. (2003). African American communication: Exploring identity and culture: Routledge.
- Hood, S. M. (2018). Enhancing cultural considerations in networks and health: a commentary on racial differences in family health history knowledge and interpersonal mechanisms. Transl Behav Med, 8(4), 550-553. doi: 10.1093/tbm/iby062
- Hovick, S. R. (2014). Understanding family health information seeking: A test of the theory of motivated information management. Journal of health communication, 19(1), 6-23.
- Hovick, S. R., Yamasaki, J. S., Burton-Chase, A. M., & Peterson, S. K. (2015). Patterns of family health history communication among older African American adults. Journal of health communication, 20(1), 80-87.
- Kaphingst, K. A., Goodman, M., Pandya, C., Garg, P., Stafford, J., & Lachance, C. (2012). Factors affecting frequency of communication about family health history with family members and doctors in a medically underserved population. Patient Educ Couns, 88(2), 291-297. doi: 10.1016/j.pec.2011.11.013
- Kenen, R., & Peters, J. (2001). The colored, eco-genetic relationship map (CEGRM): a conceptual approach and tool for genetic counseling research. J Genet Couns, 10(4), 289-309.
- Koehly, L. M., Peters, J. A., Kenen, R., Hoskins, L. M., Ersig, A. L., Kuhn, N. R., … Greene, M. H. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. American Journal of Public Health, 99(12), 2203-2209.
- Koehly, L. M., Peterson, S. K., Watts, B. G., Kempf, K. K., Vernon, S. W., & Gritz, E. R. (2003). A social network analysis of communication about hereditary nonpolyposis colorectal cancer genetic testing and family functioning. Cancer Epidemiology Biomarkers & Prevention, 12(4), 304-313.
- Lin, J., Marcum, C. S., Myers, M. F., & Koehly, L. M. (2018). Racial differences in family health history knowledge of type 2 diabetes: exploring the role of interpersonal mechanisms. Transl Behav Med. doi: 10.1093/tbm/ibx062
- Mai, P. L., Garceau, A. O., Graubard, B. I., Dunn, M., McNeel, T. S., Gonsalves, L., Wideroff, L. (2011). Confirmation of Family Cancer History Reported in a PopulationBased Survey. JNCI: Journal of the National Cancer Institute, 103(10), 788-797.
- Maradiegue, A., & Edwards, Q. T. (2006). An overview of ethnicity and assessment of family history in primary care settings. Journal of the American Academy of Nurse Practitioners, 18(10), 447-456.
- Moore, P. J., Gratzer, W., Lieber, C., Edelson, V., O’Leary, J., Terry, S. F., … Hikoyeda, N. (2015). Does It Run in the Family? Toolkit: Improving Well-Educated Elders Ability to Facilitate Conversations about Family Health History.
- Newcomb, P., Raudonis, B., Snow, D., & Cauble, D. (2012). Transmission of family health information within families.
- Orom, H., Kiviniemi, M. T., Underwood, W., Ross, L., & Shavers, V. L. (2010). Perceived cancer risk: why is it lower among nonwhites than whites? Cancer Epidemiology and Prevention Biomarkers, 19(3), 746-754.
- Peters, J. A., Hoskins, L., Prindiville, S., Kenen, R., & Greene, M. H. (2006). Evolution of the colored eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families. J Genet Couns, 15(6), 477-489.
- Peters, J. A., Kenen, R., Giusti, R., Loud, J., Weissman, N., & Greene, M. H. (2004). Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. American Journal of Medical Genetics Part A, 130(3), 258-264.
- Peters, J. A., Kenen, R., Hoskins, L. M., Glenn, G. M., Kratz, C., & Greene, M. H. (2012). Close ties: an exploratory Colored Eco-Genetic Relationship Map (CEGRM) study of social connections of men in Familial Testicular Cancer (FTC) families. Hereditary cancer in clinical practice, 10(1), 1.
- Petronio, S. (2010). Communication privacy management theory: What do we know about family privacy regulation? Journal of Family Theory & Review, 2(3), 175-196.
- Pettey, C. M., McSweeney, J. C., Stewart, K. E., Price, E. T., Cleves, M. A., Heo, S., & Souder, E. (2015). Perceptions of family history and genetic testing and feasibility of pedigree development among African Americans with hypertension. Eur J Cardiovasc Nurs, 14(1), 8-15. doi: 10.1177/1474515114556198
- Progeny Genetics LLC. (2018). Progeny Genetic Pedigree Software. Delray Beach, FL. Retrieved from www.progenygenetics.com
- Rich, E. C., Burke, W., Heaton, C. J., Haga, S., Pinsky, L., Short, M. P., & Acheson, L. (2004). Reconsidering the family history in primary care. Journal of general internal medicine, 19(3), 273-280.
- Saldaña, J. (2015). The coding manual for qualitative researchers: Sage.
- Sivell, S., Elwyn, G., Gaff, C. L., Clarke, A. J., Iredale, R., Shaw, C., Dundon, J., Thornton, H., & Edwards, A. (2008). How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of genetic counseling, 17(1), 30-63.
- Solomon, B. L., Whitman, T., & Wood, M. E. (2016). Contribution of extended family history in assessment of risk for breast and colon cancer. BMC Family Practice, 17(1), 126. doi:10.1186/s12875-016-0521-0
- Theis, B., Boyd, N., Lockwood, G., & Tritchler, D. (1994). Accuracy of family cancer history in breast cancer patients. Eur J Cancer Prev, 3(4), 321-327.
- Thompson, T., Seo, J., Griffith, J., Baxter, M., James, A., & Kaphingst, K. A. (2013). “You don’t have to keep everything on paper”: African American women’s use of family health history tools. Journal of community genetics, 4(2), 251-261.
- Thompson, T., Seo, J., Griffith, J., Baxter, M., James, A., & Kaphingst, K. A. (2015). The context of collecting family health history: examining definitions of family and family communication about health among African American women. Journal of health communication, 20(4), 416-423.
- Wang, C., Gallo, R. E., Fleisher, L., & Miller, S. M. (2011). Literacy assessment of family health history tools for public health prevention. Public Health Genomics, 14(4-5), 222-237. doi: 10.1159/000273689
- Ward, S. H., Lin, K., Meyer, B., Bass, S. B., Parameswaran, L., Gordon, T. F., & Ruzek, S. B. (2008). Increasing colorectal cancer screening among African Americans, linking risk perception to interventions targeting patients, communities and clinicians. Journal of the National Medical Association, 100(6), 748-758.
- Welch, B. M., O’Connell, N., & Schiffman, J. D. (2015). 10 years later: Assessing the impact of public health efforts on the collection of family health history. American Journal of Medical Genetics Part A, 167(9), 2026-2033.
- Wideroff, L., Garceau, A. O., Greene, M. H., Dunn, M., McNeel, T., Mai, P., Graubard, B. I. (2010). Coherence and Completeness of Population-based Family Cancer Reports. Cancer Epidemiology Biomarkers & Prevention, 19(3), 799.
- Wilson, B. J., Forrest, K., van Teijlingen, E. R., McKee, L., Haites, N., Matthews, E., & Simpson, S. A. (2004). Family communication about genetic risk: the little that is known. Public Health Genomics, 7(1), 15-24.
- Yamasaki, J., & Hovick, S. R. (2015). “That Was Grown Folks’ Business”: Narrative Reflection and Response in Older Adults’ Family Health History Communication. Health communication, 30(3), 221-230.
- Yoon, P. W., Scheuner, M. T., & Khoury, M. J. (2003). Research priorities for evaluating family history in the prevention of common chronic diseases. American journal of preventive medicine.
- Yoon, P., Scheuner, M. T., Gwinn, M., Khoury, M. J., & Jorgensen, C. (2004). Awareness of family health history as a risk factor for disease. Morbidity Mortality Weekly Report (MMWR), 53(44), 1044-1047.