Figure 1.

Figure 2.

Alter characteristics associated with alter being named as a personal health informant by ego
| Odds Ratio | 95% Confidence Interval | p-value | |
|---|---|---|---|
| Alter gender | |||
| Male | [Reference] | ||
| Female | 2.14 | 1.65, 2.77 | 0.0519 |
| Geographic homophily | |||
| Alter and ego lives in different states | [Reference] | ||
| Alter and ego live in same state | 1.55 | 1.45, 3.46 | 0.2873 |
| Gender homophily | |||
| Alter and ego are different genders | [Reference] | ||
| Alter and ego are the same gender | 1.15 | 0.58, 2.27 | 0.6918 |
| Alter generation | |||
| Alter and ego are in the same generation | [Reference] | ||
| Alter is 1 generation above ego | 1.26 | 0.93, 3.19 | 0.6305 |
| Alter is 2 generations above ego | 0.82 | 0.31, 2.16 | 0.6804 |
| Alter family side | |||
| Paternal | [Reference] | ||
| Maternal | 1.12 | 0.48, 2.56 | 0.0006 |
| Alter has ≥1 chronic health condition | 2.41 | 1.32, 4.62 | 0.0041 |
| Alter talks about ego’s health | 16.28 | 6.42, 40.85 | <0.0001 |
| Alter avoids health discussions | 5.00 | 2.51, 16.61 | 0.0969 |
| Alter is a source of family health information | 3.46 | 1.40, 8.50 | 0.0072 |
| Ego monitors and tracks alter’s health | 5.93 | 2.36, 14.88 | 0.0002 |
| Ego helps alter with managing health | 2.77 | 2.18, 16.78 | 0.2663 |
| Alter shares helpful health facts | 1.20 | 2.69, 3.86 | 0.7672 |
Alter and tie descriptive statistics (n = 1,078)
| Percent | Mean | Standard Deviation | Range | |
|---|---|---|---|---|
| Gender | ||||
| Female | 51.8 | |||
| Male | 48.2 | |||
| Age (Years) | 49.6 | 23.5 | 1-97 | |
| Relationship to ego | ||||
| Grandparent | 12.1 | |||
| Parent | 6.5 | |||
| Aunt or uncle | 24.8 | |||
| Sibling | 13.0 | |||
| Cousin | 43.7 | |||
| Lives in same state as ego | 34.3 | |||
| >1 health conditions reported | 25.5 | |||
| Health conditions* | ||||
| Hypertension | 10.8 | |||
| Cancer | 6.9 | |||
| Diabetes | 6.0 | |||
| Heart disease | 5.4 | |||
| Mental illness | 5.3 | |||
| Kidney disease | 2.1 | |||
| Health communication exchanges | ||||
| Alter talks to ego about ego’s health | 11.0 | |||
| Alter talks to ego about alter’s health | 14.5 | |||
| Reciprocal health discussions | 8.5 | |||
| Alter avoids discussions about health | 9.2 | |||
| Alter is a source of family health information | 13.2 | |||
| Ego monitors and tracks alter’s health | 12.3 | |||
| Ego helps alter with managing health | 5.6 | |||
| Alter shares helpful health facts | 7.4 | |||
Network descriptive statistics (n = 37 networks)
| Mean | Standard Deviation | Range | |
|---|---|---|---|
| Network size | 29.14 | 15.54 | 10.00-67.00 |
| Proportion male | 0.48 | 0.07 | 0.39-0.67 |
| Homophily | |||
| Gender | 0.50 | 0.07 | 0.40-0.67 |
| Generation | 0.52 | 0.15 | 0.07-0.72 |
| Same state | 0.34 | 0.29 | 0.00-1.00 |
| Proportion of network by family relationship | |||
| Grandparent | 0.15 | 0.08 | 0.04-0.40 |
| Parent | 0.08 | 0.04 | 0.03-0.20 |
| Aunt or uncle | 0.25 | 0.10 | 0.10-0.71 |
| Sibling | 0.15 | 0.10 | 0.00-0.39 |
| Cousin | 0.36 | 0.19 | 0.00-0.63 |
| Proportion of network reporting >1 health conditions | 0.26 | 0.13 | 0.00-0.58 |
| Proportion of network by health communication role | |||
| Alter talks to ego about alter’s health | 0.17 | 0.11 | 0.00-0.50 |
| Alter talks to ego about ego’s health | 0.13 | 0.12 | 0.00-0.56 |
| Reciprocal health discussions | 0.10 | 0.09 | 0.00-0.40 |
| Alter avoids discussions about health | 0.09 | 0.10 | 0.00-0.50 |
| Alter is a source of family health information | 0.13 | 0.09 | 0.00-0.42 |
| Ego monitors and tracks alter’s health | 0.15 | 0.10 | 0.00-0.40 |
| Ego helps alter with managing health | 0.05 | 0.07 | 0.00-0.30 |
| Alter shares helpful health facts | 0.08 | 0.07 | 0.00-0.27 |
| Proportion of network by generation | |||
| Same generation as ego | 0.52 | 0.15 | 0.07-0.72 |
| 1 generation above ego | 0.33 | 0.11 | 0.22-0.78 |
| 2 generations above ego | 0.15 | 0.08 | 0.04-0.40 |
Emergent themes and exemplary quotes for family health history knowledge prompts
| Theme | Quote |
|---|---|
| Open Communication | “Well growing up, my mother often talked about kidney disease as well as diabetes running in our family. So, we made an effort – on physicals and so forth – that they also check those organs out.” |
| Observation | “So that was known my entire life because…he [my grandfather] always had the syringe and the needle…It was something I saw and it was always a big deal. It was a really big deal… Him having to take insulin.” |
| Caregiving | “I took care of him [my father] for a while, so, I learned a lot of his health issues and concerns because I was the caretaker. I had to know his pill schedule and different little things… then [I] was able to talk to the doctors, because I was the one giving him his care, I learned a lot and did research about what they were telling me that his conditions were.” |
| Post-Death Knowledge | “I actually didn’t know while he [my father] was living that he had diabetes. I didn’t find out until after… when I had to clean out his things and then being the one who he left in charge of everything, I had to speak with the doctors. So, I was finding out a lot more about his health after he had passed.” |
| Speculation* | “I don’t know if she [my cousin] would even take meds, but she definitely is either manic depressant or bipolar or something. Even her mother thinks so…Observing her behavior.” |
Participant demographics and self-reported health status (n = 37)
| Percent | Mean | Standard Deviation | Range | |
|---|---|---|---|---|
| Gender | ||||
| Female | 48.6 | |||
| Male | 51.4 | |||
| Age (Years) | 43.8 | 16.8 | 19-68 | |
| Marital status | ||||
| Single | 47.2 | |||
| Married or in long-term partnership | 47.2 | |||
| Divorced | 2.8 | |||
| Household size | 1.6 | 1.3 | 0-5 | |
| Educational level | ||||
| High school or less | 11.1 | |||
| Some college | 19.4 | |||
| College graduate | 38.9 | |||
| Master’s degree or higher | 27.8 | |||
| History of health issues | ||||
| Hypertension | 35.1 | |||
| High cholesterol | 27.0 | |||
| Asthma | 13.5 | |||
| Diabetes or high blood sugar | 10.8 | |||
| Cancer | 8.1 | |||
| Stroke | 5.4 | |||
| Heart attack | 0.0 | |||
| Other | 18.9 | |||
| Health status | ||||
| Excellent | 13.9 | |||
| Good | 61.1 | |||
| Fair | 19.4 | |||
| Poor or very poor | 5.4 | |||
| Experience working in health care field | 40.5 | |||