References
- Australian Clinical Trials Alliance .(ACTA). (2018). Consumer involvement and engagement toolkit. https://involvmenttoolkit.clinicaltrialsalliance.org.au/
- Australian Health Practitioners Regulation Agency (AHPRA) .(2020). Guidelines: mandatory notifications about registered health practitioners. Retrieved January 19,2022 from https://www.ahpra.gov.au/Notifications/mandatorynotifications/Mandatory-notifications.aspx
- Bashir, N. (2020). The qualitative researcher: the flip side of the research encounter with vulnerable people. Qualitative Research, 20 (5), 667-683. https://doi.org/10.1177/1468794119884805
- Berger, R. (2015). Now I see it, now I don’t: researcher’s position and reflexivity in qualitative research. Qualitative Research,15(2), 219-234. https://doi.org/10.1177/1468794112468475
- Berthelsen, C. B., & Hølge-Hazelton, B. (2018). Caught between a rock and a hard place: An intrinsic single case study of nurse researchers’ experiences of the presence of a nursing research culture in clinical practice. Journal of Clinical Nursing, 27(7-8), 1572-1580. https://doi.org/10.1111/jocn.14209
- Bowen, G.A. (2009). Supporting a grounded theory with an audit trail: an illustration. International Journal of Social Research Methodology, 12(4), 305-316. https://doi.org/10.1080/13645570802156196
- Brett, J., Staniszewska, S., Mockford, C., Herron‐Marx, S., Hughes, J., Tysall, C., & Suleman, R. (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations, 17(5), 637-650. https://doi.org/10.1111/j.1369-7625.2012.00795.x
- Chiang, V. C., Keatinge, D., & Williams, A. K. (2001). Challenges of recruiting a vulnerable population in a grounded theory study. Nursing & Health Sciences, 3(4), 205-211. https://doi.org/10.1046/j.1442-2018.2001.00090.x
- Charmaz, K. (2014). Constructing grounded theory (2nd ed.). London: Sage.
- Conlon, C., Carney, G., Timonen, V., & Scharf, T. (2015). “Emergent reconstruction” in grounded theory: learning from team-based interview research. Qualitative Research, 15(1), 39– 56. https://doi.org/10.1177/1468794113495038
- Davis,D. (2020). Presenting research reflexivity in your PhD thesis. Nurse Researcher, 28(3), 37-43. https://doi.org/10.7748/nr.2020.e1644
- DeJonckheere, M., & Vaughn, L. M. (2019). Semistructured interviewing in primary care research: a balance of relationship and rigour. Family Medicine and Community Health, 7(2), e000057–e000057. https://doi.org/10.1136/fmch-2018-000057
- Diaz-Arrastia, R., Dreier, J. P., Duhaime, A.-C., Ercole, A., Giacino, J., Laureys, S., … Parizel, P. M. (2017). Traumatic brain injury: integrated approaches to improve prevention, clinical care, and research. Lancet Neurology, 16(12), 987–1048. https://doi.org/10.1016/S1474-4422(17)30371-X
- DiCicco-Bloom, B., & Crabtree, B. F. (2006). The qualitative research interview. Medical Education, 40(4), 314-321. https://doi.org/10.1111/j.1365-2929.2006.02418.x
- Eide, P., & Kahn, D. (2008). Ethical issues in the qualitative researcher-participant relationship. Nursing Ethics, 15(2), 199-207. https://doi.org/10.1177/0969733007086018
- English, W., Gott, M., & Robinson, J. (2022). Being reflexive in research and clinical practice: a practical example. Nurse Researcher, 30(2), 30-35. https://doi.org/10.7748/nr.2022.e1833
- Fletcher, J. R. (2019). Negotiating tensions between methodology and procedural ethics. Journal of Gerontological Social Work, 62(4), 384-391. https://doi.org/10.1080/01634372.2018.1564718
- Foucault, M. (1980). Power/Knowledge: Selected Interviews and Other Writings 1972-1977. Colin Gordon, ed. Brighton: Harvester
- Franco, P., & Yang, Y. N. (2021). Exiting fieldwork “with grace”: reflections on the unintended consequences of participant observation and researcher-participant relationships. Qualitative Market Research, 24(3), 358–374. https://doi.org/10.1108/QMR-07-2020-0094
- Gorgoraptis, N., Zaw-Linn, J., Feeney, C., Tenorio-Jimenez, C., Niemi, M., Malik, A., … Sharp, D. J. (2019). Cognitive impairment and health-related quality of life following traumatic brain injury. Neuro Rehabilitation, 44(3), 321–331. https://doi.org/10.3233/NRE182618
- Glaser, B. G. (1978). Theoretical sensitivity : advances in the methodology of grounded theory. Mill Valley, California: Sociology Press.
- Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory; strategies for qualitative research. Chicago: Aldine Pub. Co.
- Gould, Hicks, A. J., Hopwood, M., Kenardy, J., Krivonos, I., Warren, N., & Ponsford, J. L. (2019). The lived experience of behaviours of concern: A qualitative study of men with traumatic brain injury. Neuropsychological Rehabilitation, 29(3), 376–394. https://doi.org/10.1080/09602011.2017.1307767
- Guba, E. G., & Lincoln, Y. S. (1994). Competing paradigms in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 105-117). London, England: Sage.
- Gullick, J. (2017). Participant observation: A method to evaluate a nursing research community of practice. SAGE Research Method Cases. http://dx.doi.org/10.4135/9781473997875
- Haarbauer-Krupa, J., Pugh, M. J., Prager, E. M., Harmon, N., Wolfe, J., & Yaffe, K. (2021). Epidemiology of Chronic Effects of Traumatic Brain Injury. Journal of Neurotrauma, 38(23), 3235–3247. https://doi.org/10.1089/neu.2021.0062
- Hay-Smith, E. J. C., Brown, M., Anderson, L., & Treharne, G. J. (2016). Once a clinician, always a clinician: a systematic review to develop a typology of clinician-researcher dual-role experiences in health research with patient-participants. BMC medical research methodology, 16(1), 95-95. doi:10.1186/s12874-016-0203-6
- Howes, L.M. (2017). Developing the methodology for an applied, interdisciplinary research project: documenting the journey toward philosophical clarity. Journal of Mixed Methods Research, 11(4), 450–468. https://doi.org/10.1177/1558689815622018
- Josselson, R. (2013). Interviewing for Qualitative Inquiry: A Relational Approach (1st ed.). New York: Guilford Publications.
- Authors Blinded (2018). Journal of Clinical Nursing
- Kivunja, S., River, J., & Gullick, J. (2018). Experiences of giving and receiving care in traumatic brain injury: An integrative review. Journal of Clinical Nursing, 27 (7-8),pp 1304-1328. https:doi.org/10.1111/jocn.14283
- Koch, T. (1994). Establishing rigour in qualitative research: the decision trail. Journal of Advanced Nursing, 19(5), 976-986. https://doi.org/10.1111/j.1365-2648.1994.tb01177.x
- Kraft, S. A., Duenas, D. M., Lewis, H., & Shah, S. K. (2020a). Bridging the researcher-participant gap: A research agenda to build effective research relationships. American Journal of Bioethics, 20(5), 31-33. https://doi.org/10.1080/15265161.2020.1745936
- Kraft, S. A., Rothwell, E., Shah, S. K., Duenas, D. M., Lewis, H., Muessig, K., … Wilfond, B. S. (2020b). Demonstrating “respect for persons” in clinical research: findings from qualitative interviews with diverse genomics research participants. Journal of Medical Ethics, 47(12), e8–e8. https://doi.org/10.1136/medethics-2020-106440
- Lapid, M. I., Clarke, B. L., Ho, J. B., Ouellette, Y., Armbrust, T. L., & Wright, R. S. (2021). Research involving participants with impaired consent capacity. Mayo Clinic Proceedings, 96(11), 2806-2822. https://doi.org/10.1016/j.mayocp.2021.04.029
- Mauthner, N. S. (2019). Toward a posthumanist ethics of qualitative research in a big data era. The American Behavioral Scientist, 63(6), 669-698. https://doi.org/10.1177/0002764218792701
- McGhee,G., Marland, G. R., & Atkinson, J. (2007). Grounded theory research: literature reviewing and reflexivity. Journal of Advanced Nursing, 60(3), 334-342. https://doi.org/10.1111/j.1365-2648.2007.04436.x
- McGrath, C., Palmgren, P. J., & Liljedahl, M. (2019). Twelve tips for conducting qualitative research interviews. Medical Teacher, 41(9), 1002–1006. https://doi.org/10.1080/0142159X.2018.1497149
- Miller, C. L., Mott, K., Cousins, M., Miller, S., Johnson, A., Lawson, T., & Wesselingh, S. (2017). Integrating consumer engagement in health and medical research - an Australian framework. Health Research Policy and Systems, 15(1), 9–9. https://doi.org/10.1186/s12961-017-0171-2
- Mortari. (2015). Reflectivity in Research Practice: An overview of different perspectives. International Journal of Qualitative Methods, 14(5), 160940691561804. https://doi.org/10.1177/1609406915618045
- National Health and Medical Research Council (2018b). The Australian Code for the Responsible Conduct of Research 2018. Retrieved from https://www.nhmrc.gov.au/about-us/publications/australian-code-responsible-conduct-research-2018#block-views-block-file-attachments-content-block-1
- National Health and Medical Research Council (2018a). The National Statement on Ethical Conduct in Human Research (2007). Retrieved from https://www.nhmrc.gov.au/about-us/publications/national-statement-ethical-conduct-human-research-2007-updated-2018#toc__95
- Oyesanya, T. O., & Thomas, M. A. (2019). Strategies nurses use when caring for patients with moderate‐to‐severe traumatic brain injury who have cognitive impairments. Journal of Clinical Nursing, 28(21-22), 4098-4109. https://doi.org/10.1111/jocn.14958
- Peddle, M. (2021). Maintaining reflexivity in qualitative nursing research. Nursing Open. https://doi.org/10.1002/nop2.999
- Salas, C. E., Casassus, M., Rowlands, L., Pimm, S., & Flanagan, D. A. J. (2018). “Relating through sameness”: a qualitative study of friendship and social isolation in chronic traumatic brain injury. Neuropsychological Rehabilitation, 28(7), 1161–1178. https://doi.org/10.1080/09602011.2016.1247730
- Sander, A. M., Maestas, K. L., Clark, A. N., & Havins, W. N. (2013). Predictors of emotional distress in family caregivers of persons with traumatic brain injury: A systematic review. Brain Impairment, 14(1), 113-129. https://doi.org/10.1017/BrImp.2013.12
- Sigstad, H. M. H. (2014). Characteristic interviews, different strategies: Methodological challenges in qualitative interviewing among respondents with mild intellectual disabilities. Journal of Intellectual Disabilities, 18(2), 188-202. https://doi.org/10.1177/1744629514523159
- Stenberg, M., Stålnacke, B.-M., & Saveman, B.-I. (2022). Family experiences up to seven years after a severe traumatic brain injury-family interviews. Disability and Rehabilitation, 44(4), 608–616. https://doi.org/10.1080/09638288.2020.1774668
- Smith,S., Gullick, J., Ballard, J., & Perry, L. (2018). Clinician researcher career pathway for registered nurses and midwives: a proposal. International Journal of Nursing Practice, 24(3), e12640–n/a. https://doi.org/10.1111/ijn.12640
- Stålnacke, B.-M., Saveman, B.-I., & Stenberg, M. (2019). Long-term follow-up of disability, cognitive, and emotional impairments after severe traumatic brain injury. Behavioural Neurology, 2019, 9216931– 9216937. https://doi.org/10.1155/2019/9216931
- Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349-357. https://doi.org/10.1093/intqhc/mzm042
- Weaver, K., & Olson, J. K. (2006). Understanding paradigms used for nursing research. Journal of Advanced Nursing, 53(4), 459-469. https://doi.org/10.1111/j.1365-2648.2006.03740.x
- Webster, J., Taylor, A., & Balchin, R. (2015). Traumatic brain injury, the hidden pandemic: A focused response to family and patient experiences and needs. South African Medical Journal, 105, 195-198. https://doi.org/10.7196/SAMJ.9014
- World Medical Association (WMA). (2018). WMA Declaration of Helsinki -ethical principles for medical research involving human subjects. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/
- Xu, A., Baysari, M. T., Stocker, S. L., Leow, L. J., Day, R. O., & Carland, J. E. (2020). Researchers’ views on, and experiences with, the requirement to obtain informed consent in research involving human participants: a qualitative study. BMC Medical Ethics, 21(1), 2808-2822. https://doi.org/10.1186/s12910-020-00538-7