Figure 1
Figure 2
Participants reporting activity limitations or mood interference within CPGS clusters
| CPGS CATEGORY | SIG. * | |||
|---|---|---|---|---|
| NO PAIN/LOW DISABILITY (CPGS 0–2) | HIGH DISABILITY (CPGS 3–4) | |||
| Activity limitations from pain | No | 23 | 2 | p=0.081 |
| Yes | 10 | 5 | ||
| Mood interference from pain | No | 21 | 1 | p=0.041 |
| Yes | 14 | 6 | ||
Pain characteristics identified on PTPQ (sample n=42 unless otherwise specified)
| CHARACTERISTIC | SAMPLE MEANS (SD) OR PROPORTIONS |
|---|---|
| Current pain (0–10) | 2.3 (2.0) |
| Lowest pain in past 30 days (0–10) | 1.5 (1.8) |
| Worst pain in past 30 days (0–10) | 5.3 (2.8) |
| Usual pain in past 30 days (0–10) | 2.4 (2.0) |
| Number of pain descriptive words | 3.9 (3.1) |
| Pain typically worse during certain time of day (% “yes”) n=41 | 53.7 % |
| Pain interference with activities (% “yes”) n=40 | 37.5 % |
| Pain interference with mood (% “yes”) | 47.6 % |
| Use pharmaceutical treatments (% selecting at least one treatment) | 85.7 % |
| Use psychological treatments (% selecting at least one treatment) | 47.6 % |
| Use preventative treatments (% selecting at least one treatment) | 69.0 % |
| Use physical treatments (% selecting at least one treatment) | 69.0 % |
| Achieve recommended weekly exercise levels (% of total reporting 150+ minutes/week of any cardiovascular exercise) | 19.0 % |
Clinical feasibility study participant characteristics (n=42)
| CHARACTERISTIC | N (%) |
|---|---|
| Male | 26 (61.9) |
| Female | 16 (38.1) |
| Diagnosis | |
| VWD | 18 (42.9) |
| Haemophilia A | 17 (40.5) |
| Haemophilia B | 7 (16.7) |
| Chronic Pain Grade Scale | |
| Grade 0 = Pain Free | 1 (2.4) |
| Grade 1 = Low disability, low intensity | 27 (64.3) |
| Grade 2 = Low disability, high intensity | 7 (16.7) |
| Grade 3 = High disability, moderately limiting | 3 (7.1) |
| Grade 4 = High disability, severely limiting | 4 (9.5) |