
Barriers and Facilitators to Cultural Participation by People with Disabilities: A Narrative Literature Review
By: Ann Leahy and Delia Ferri
References
- Agostiano, Maria. 2016.
“The ‘Compensatory Solutions’ for an Alternative Accessibility of Cultural Heritage Sites.” In Accessibility as a Key Enabling Knowledge for Enhancement of Cultural Heritage, edited by Alberto Arenghi, Ilaria Garofolo and Oddbjørn Sørmoen, 131–47. Milano: Franco Angeli. - Argyropoulos, Vassilios S., and Charikleia Kanari. 2015. “Re-imagining the museum through ‘touch’: Reflections of individuals with visual disability on their experience of museum-visiting in Greece.” Alter 9(2): 130–143. DOI: 10.1016/j.alter.2014.12.005
- Arts Council England. 2016. Grant-in-Aid and National Lottery Distribution Annual Report and Accounts 2015/2016. Manchester: Arts Council England.
- Arts Council England. 2017. Making a Shift Report: Disabled people and the Arts and Cultural Sector Workforce in England: Understanding trends, barriers and opportunities. Manchester: Arts Council England.
- Arts Council England. 2020. Grant-in-Aid and National Lottery Distribution 2019/20: Annual Report and Accounts for the Year Ended 31 March 2020. Manchester: Arts Council England.
- Aujla, Imogen J., and Emma Redding. 2013. “Barriers to dance training for young people with disabilities.” British Journal of Special Education 40(2): 80–85. DOI: 10.1111/1467-8578.12021
- Bang, Gui Hee, and Kyung Mee Kim. 2015. “Korean disabled artists’ experiences of creativity and the environmental barriers they face.” Disability & Society 30(4): 543–555. DOI: 10.1080/09687599.2015.1030065
- Bonfils, Inge Storgaard, Henrik Hansen, Helle Stentoft Dalum, and Lene Falgaard Eplov. 2017. “Implementation of the individual placement and support approach – facilitators and barriers.” Scandinavian Journal of Disability Research 19(4): 318–333. DOI: 10.1080/15017419.2016.1222306
- BritainThinks. 2018. Arts Council England: The Conversation. A report by BritainThinks.
- British Council. 2021. Time to Act: How lack of knowledge in the cultural sector creates barriers for disabled artists and audiences. Initial findings.
- Byrne, Bronagh, Colin M. Harper, Rebecca Shea Irvine, Hannah Russell, and Barry Fitzpatrick. 2014. Shortfalls in public policy and programme delivery in Northern Ireland relative to the Articles of the UNCRPD. Final Report. Northern Ireland: Equality Commission for Northern Ireland (ECNI).
- Byrne, Jennifer A. 2016. “Improving the peer review of narrative literature reviews.” Research Integrity and Peer Review 1(1): 1–4. DOI: 10.1186/s41073-016-0019-2
- Caust, Josephine. 2019. “Cultural Rights as Human Rights and the Impact on the Expression of Arts Practices.” Journal of Citizenship and Globalisation Studies 3(1): 17–30. DOI: 10.2478/jcgs-2019-0004
- Cho, Hyojung, and Anna Jolley. 2016. “Museum Education for Children with Disabilities: Development of the Nature Senses Traveling Trunk.” Journal of Museum Education 41(3): 220–229. DOI: 10.1080/10598650.2016.1193313
- Collins, John A., and Bart C. J. M. Fauser. 2005. “Editorial: Balancing the strengths of systematic and narrative reviews.” Human Reproduction Update 11(2): 103–104. DOI: 10.1093/humupd/dmh058
- Constantinou, Vaso, Fernando Loizides, and Andri Ioannou. 2016. “A personal tour of cultural heritage for deaf museum visitors.” Euro-Mediterranean Conference. DOI: 10.1007/978-3-319-48974-2_24
- Department for Culture Media & Sport. 2016. Taking Part 2015/16 Quarter 4 Statistical Release, July. Department for Culture, Media and Sport.
- Eardley, Alison F., Clara Mineiro, Joselia Neves, and Peter Ride. 2016. “Redefining Access: Embracing multimodality, memorability and shared experience in Museums.” Curator: The Museum Journal 59(3): 263–86. DOI: 10.1111/cura.12163
- European Audiovisual Observatory (Council of Europe). 2021. Yearbook 2020/2021: Key Trends. Strasbourg.
- European Blind Union. 2012. Summary Report: EBU Access to Culture Survey 2012, Mapping current levels of accessibility to cultural venues and activities in Europe.
- European Parliament. 2018. Report on structural and financial barriers in the access to culture A8-0169/2018. European Parliament Plenary sitting 14.5.2018.
- European Parliament Research Service (EPRS). 2017. Access to Culture in the European Union (Author: Magdalena Pasikowska-Schnass).
- European Union. 2019. From Social Inclusion to Social Cohesion – The Role of Cultural Policy: Guidelines for Policy-Makers and Cultural Institutions, by the 2017–2019 Working Group of EU Member States’ Experts on Fostering the Contribution of Culture to Social Inclusion. Luxembourg: Publications Office of the European Union.
- Gentry, Alister. 2021. UK Disability Arts Alliance 2021 Survey Report: The Impact of the Pandemic on Disabled People and organisations in Arts & Culture #WeShallNotBeRemoved.
- Goodley, Dan. 2013. “Dis/entangling critical disability studies.” Disability & Society 28(5): 631–644. DOI: 10.1080/09687599.2012.717884
- Gratton, Nicola. 2020. “People with learning disabilities and access to mainstream arts and culture: A participatory action research approach.” British Journal of Learning Disabilities 48(2): 106–114. DOI: 10.1111/bld.12303
- Greenhalgh, Trisha, Sally Thorne, and Kirsti Malterud. 2018. “Time to challenge the spurious hierarchy of systematic over narrative reviews?” European Journal of Clinical Investigation 48(6). DOI: 10.1111/eci.12931
- Guffey, Elizabeth. 2015. “The Disabling Art Museum.” Journal of Visual Culture 14(1): 61–73. DOI: 10.1177/1470412914565965
- Hästbacka, Elisabeth, Mikael Nygård, and Fredrica Nyqvist. 2016. “Barriers and facilitators to societal participation of people with disabilities: A scoping review of studies concerning European countries.” Alter 10: 201–20. DOI: 10.1016/j.alter.2016.02.002
- Hoyt-O’Brien, Bridget. 2013. “Emphasizing Observation in a Gallery Program for Blind and Low-Vision Visitors: Art Beyond Sight at the Museum of Fine Arts, Houston.” Disability Studies Quarterly 33(3). DOI: 10.18061/dsq.v33i3.3737
- IDEA Consult, Goethe-Institut., Sylvia Amann, and Joost Heinsius. 2021. Research for CULT Committee – Cultural and creative sectors in post-Covid-19 Europe: crisis effects and policy recommendations, Brussels: European Parliament, Policy Department for Structural and Cohesion Policies.
- ISTAT. 2019. Conoscere Il Mondo della Disabilità: Persone, Relazioni e Istituzioni. Roma: Istituto Nazionale di Statistica.
- Jakubowicz, Andrew, and Helen Meekosha. 2003.
“Can multiculturalism encompass disability?” In Disability, culture and identity, edited by Sheila Riddell and Nick Watson, 180–199. UK: Pearson - Johnson, Kelley. 2020.
“Recognising Cultural Diversity: Implications for Persons with Disabilities.” In Recognising Human Rights in Different Cultural Contexts, edited by Emily J. Kakoullis and Kelley Johnson, 63–78. Singapore: Palgrave. DOI: 10.1007/978-981-15-0786-1_4 - Jongerius, Maaike, Nienke Bilo, Maartje Gielen, and Nikki Scholten. 2020. Onbeperkt Cultuur Beleven. Eindrapport.
- Lazar, Jonathan, Daniel F. Goldstein, and Anne Taylor. 2015. Ensuring digital accessibility through process and policy. Waltham: Morgan Kaufmann.
- Lazar, Jonathan, and Irene Briggs. 2015. “Improving Services for Patrons with Print Disabilities at Public Libraries: Moving Forward to Become More Inclusive.” Library Quarterly: Information, Community, Policy 85(2): 172–184. DOI: 10.1086/680155
- Levent, Nina, Georgina Kleege, and Joan M. Pursley. 2013. “Museum Experience and Blindness.” Disability Studies Quarterly 33(3). DOI: 10.18061/dsq.v33i3.3751
- Levent, Nina, and Joan M. Pursley. 2013. “Sustainable museum access: A two-way street.” Disability Studies Quarterly 33(3). DOI: 10.18061/dsq.v33i3.3742
- Levy, Susan A, Anna. J. Robb, and Divya Jindal-Snape. 2017. “Disability, personalisation and community arts: Exploring the spatial dynamics of children with disabilities participating in inclusive music classes.” Disability & Society 32(2): 254–268. DOI: 10.1080/09687599.2016.1276433
- Levy, Susan, and Hannah Young. 2020. “Arts, Disability and Crip Theory: Temporal Re-imagining in Social Care for People with Profound and Multiple Learning Disabilities.” Scandinavian Journal of Disability Research 22(1): 68–79. DOI: 10.16993/sjdr.620
- Lid, Inge Marie. 2016.
“Access to Cultural Heritage: A Multiscaled Approach.” In Accessibility as a key enabling knowledge for enhancement of cultural heritage, edited by Alberto. Arenghi, Ilaria Garofolo and Oddbjørn Sørmoen, 77–89. Milano: Franco Angeli. - Ludwig, Erin. 2012. “Stigma in the arts: How perceptual barriers influence individuals’ with disabilities participation in arts organizations.” The Journal of Arts Management, Law, and Society 42(3): 141–151. DOI: 10.1080/10632921.2012.729498
- Maitland, Heather. 2017. Audiences-in-waiting? How do people with disabilities engage with culture? Dublin: Arts & Disability Ireland.
- Marsh, Kate. 2016.
“Taking Charge – Dance, Disability and Leadership: Exploring the Shifting Role of the Disabled Dance Artist.” PhD diss., Arts and Humanities, Coventry University. - Martínez Amador, Elise. 2016. “Deaf People do not Go to the Movies: Accessibility for People with Hearing Disabilities in the Spanish Cinema.” Journal of Communication 12(12): 133–147.
- Mastrogiuseppe, Marilina, Stefania Span, and Elena Bortolotti. 2020. “Improving accessibility to cultural heritage for people with Intellectual Disabilities: A tool for observing the obstacles and facilitators for the access to knowledge.” Alter 15(2): 113–123. DOI: 10.1016/j.alter.2020.06.016
- Mesquita, Susana, and Maria João Carneiro. 2016. “Accessibility of European museums to visitors with visual impairments.” Disability & Society 31(3): 373–388. DOI: 10.1080/09687599.2016.1167671
- Muscarà, Marinella, and Chiara Sani. 2019. “Accessibility to Cultural Heritage, some project outcomes.” Education Sciences & Society-Open Access 10(1). DOI: 10.3280/ess1-2019oa7701
- National Education Centre Slovak Republic. 2020. A Culture without Barriers/Kultúra bez bariér. Bratislava.
- Ott, Katherine. 2010.
“Collective bodies: What museums do for disability studies.” In Re-Presenting Disability: Activism and Agency in the Museum, edited by Richard Sandell, Jocelyn Dodds and Rosemarie Garland-Thomson, 289–99. Abingdon: Routledge. - Penketh, Claire, Anne James, Sam Wade, and Richard Nutter. 2019.
“DaDaFest Ensemble: Leadership, Voice, and Collaboration in the Arts.” In Contemporary Art and Disability Studies, edited by A. Wexler and J. Derby, 76–86. NY and Oxon: Routledge. DOI: 10.4324/9780429260902-6 - Primorac, Jaka, Nina Obuljen Koržinek, and Aleksandra Uzelac. 2017. “Access to culture in Croatian cultural policy: Moving towards explicit policies.” International Journal of Cultural Policy 23: 562–580. DOI: 10.1080/10286632.2015.1102906
- Quinn, Gerard. 2009.
“Resisting the ‘temptation of elegance’: Can the convention on rights of persons with disabilities socialise states to right behaviour?” In The UN convention on rights of persons with disabilities. European and Scandinavian perspectives, edited by Oddný M. Arnardóttir & Gerard Quinn. 215–56. Leiden and Boston, MA: Martinus Nijhoff. DOI: 10.1163/ej.9789004169715.i-320.70 - Rappolt-Schlichtmann, Gabrielle, and Samantha G. Daley. 2013. “Providing access to engagement in learning: The potential of Universal Design for Learning in museum design.” Curator: The Museum Journal 56(3): 307–21. DOI: 10.1111/cura.12030
- Renel, William. 2019. “Sonic accessibility: Increasing social equity through the inclusive design of sound in museums and heritage sites.” Curator: The Museum Journal 62(3): 377–402. DOI: 10.1111/cura.12311
- Richards, Michael, Rebecca Lawthom, and Katherine Runswick-Cole. 2019. “Community-based arts research for people with learning disabilities: Challenging misconceptions about learning disabilities.” Disability & Society 34(2): 204–227. DOI: 10.1080/09687599.2018.1522243
- Riddell, Sheila, and Nick Watson. 2003.
“Disability, culture and identity: Introduction.” In Disability, culture and identity, edited by S. Riddell and N. Watson, 1–18. Essex, UK: Pearson. - Rix, Jonathan, Ticky Lowe, and The Heritage Forum. 2010. “Including people with learning difficulties in cultural and heritage sites.” International Journal of Heritage Studies 16(3): 207–224. DOI: 10.1080/13527251003620743
- RNIB (Royal National Institute of Blind People). 2011. Availability of Accessible Publications, 2011 Update.
- Sandell, Richard, and Jocelyn Dodd. 2010.
“Activist Practice.” In Re-Presenting Disability: Activism and Agency in the Museum, edited by Richard Sandell, Jocelyn Dodd and Rosemarie Garland-Thomson. London and New York: Routledge. - Saur, Ellen, and Oddbjørn Johansen. 2013. “Stepping into the unknown – welfare, disability, culture and theatre as an opportunity for equality?” Research in Drama Education: The Journal of Applied Theatre and Performance 18(3): 246–260. DOI: 10.1080/13569783.2013.810930
- Seale, Jane, Helena Garcia Carrizosa, Jonathan Rix, Kieron Sheehy, and Simon Hayhoe. 2021. “A participatory approach to the evaluation of participatory museum research projects.” International Journal of Research & Method in Education 44(1). DOI: 10.1080/1743727X.2019.1706468
- Shape. 2013. Understanding Disabled People as Audiences 2012–13. London: Shape, supported by Arts Council England.
- Solvang, Per Koren. 2012. “From identity politics to dismodernism? Changes in the social meaning of disability art.” Alter 6(3): 178–187. DOI: 10.1016/j.alter.2012.05.002
- Swedish Authority for Participation. 2016. Utvärdering och analys av funktionshinderspolitiken 2011–2016 Redovisning av regeringsuppdrag om ett samlat uppföljningssystem för funktionshinderspolitiken. Myndigheten för delaktighet serie A 2016:14 (diarienummer 2015/0228).
- Taylor, Margaret. 2005. “Self-identity and the arts education of disabled young people.” Disability & Society 20: 763–778. DOI: 10.1080/09687590500335782
- UNESCO. 2021. Cultural and Creative Industries in the Face of COVID-19 An Economic Impact Outlook.
- Waldschmidt, Anne. 2018. “Disability–Culture–Society: Strengths and weaknesses of a cultural model of dis/ability.” Alter 12(2): 65–78. DOI: 10.1016/j.alter.2018.04.003
- Waltz, Mitzi, and Alice Schippers. 2020. “Politically disabled: barriers and facilitating factors affecting people with disabilities in political life within the European Union.” Disability & Society 36(4): 517–540. DOI: 10.1080/09687599.2020.1751075
- Watts, Michael, and Barbara Ridley. 2012. “Identities of dis/ability and music.” British Educational Research Journal 38(3): 353–372. DOI: 10.1080/01411926.2010.548546
- Weisen, Marcus. 2012. “Digital access to culture.” Journal of Assistive Technologies, 6(2): 163–166. DOI: 10.1108/17549451211235028
- World Health Organization and The World Bank. 2011. World Report on Disability. Geneva: World Health Organization.
- Young, Graham C. 2008. “Autonomy of artistic expression for adult learners with disabilities.” International Journal of Art & Design Education 27(2): 116–123. DOI: 10.1111/j.1476-8070.2008.00567.x
DOI: https://doi.org/10.16993/sjdr.863 | Journal eISSN: 1745-3011
Language: English
Page range: 68 - 81
Submitted on: Sep 21, 2021
Accepted on: Feb 2, 2022
Published on: Feb 28, 2022
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2022 Ann Leahy, Delia Ferri, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.