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Barriers and Facilitators to Cultural Participation by People with Disabilities: A Narrative Literature Review Cover

Barriers and Facilitators to Cultural Participation by People with Disabilities: A Narrative Literature Review

By:  and    
Open Access
|Feb 2022

Figures & Tables

Table 1

Classification of Barriers and Facilitators to Cultural Participation by People with Disabilities (PWD).

CATEGORYTYPES OF BARRIERSFACILITATORS THAT ADDRESS/COUNTERACT THOSE BARRIERS
1. Lack of effective/adequate legislation, policies, and legal standardsMisconception of arts participation in developmental or therapeutic terms by policy and funding agencies.
Lack of:
  • legal standards or existing standards focusing only on certain types of disability;

  • adequate policies that facilitate education and training for (1) persons with disabilities and (2) teachers (including lack of technical training and lack of knowledge or confidence).

Financial disincentives to employment (‘welfare traps’).

Enactment/implementation of legislation on equality that applies to the cultural sector and that, inter alia, supports decision-making by PWD and employment of artists with disabilities.
Consider quota systems to ensure artists with disabilities have opportunities to train and practice creative activities.
Establishment of specific government bureau focused on disability art, as well as a hub for mainstreaming disability in culture.
Policies on education designed to ensure
  • more access to appropriate and skilled training for PWD,

  • access to training and specialised knowledge on disability for trainers/teachers, setting high expectations, and developing recognition that artistic creation of PWDs is equal even if it may be different,

  • high levels of disability awareness in the arts curriculum, including knowledge of practical assistance and IT, accessible environments, and artists with disabilities as role models.

2. Lack of funding and/or of adequate servicesFunding streams linked to medical-model approaches focused on deficit and therapy.
Lack of support (such as provision of personal assistance) to attend cultural events/venues.
Funding issues leading to little/partial engagement by agencies, institutions/venues with barriers to participation, and partial implementation of accessibility strategies.
Cost of transport, tickets, and attendance and lack of access to finances to enable participation.
Funding streams linked to making opportunities (at all levels) accessible and linked with artistic (not medical) aims.
More funding, peer support, and other forms of support (including personal assistance) for engaging in cultural activities and artistic creation.
Special IT and equipment (to facilitate consumption, training, and creation) and more information sharing as to IT solutions (including cost-effective ones).
3. Negative attitudesLack of knowledge and ambition (which can be linked to ideas of disability arts as therapy) and negative attitudes of staff create barriers for audiences/visitors and creators/participants.Development of
  • awareness raising opportunities,

  • supportive networks between organisations, including special and mainstream schools, arts companies, integrated companies, and

  • opportunities for human interaction and of conveying a sense of welcome to participants.

Absence of a sense of welcome or community (especially important for some groups).
Aesthetic barriers in professional contexts (especially in some art forms, such as dance) related to ideas of ideal body types for performers and for leaders.
Showcasing of role models who are PWD.
Virtuous circle in which engagement is understood as potentially transformational for individuals and for societies, leading to re-conceptualisation of disability itself.
4. Lack of accessibilityAccess facilitated only for special exhibitions or parts of an exhibition/venue—not mainstreamed within everyday offerings—and lack of knowledge of staff.
Venues that are accessible (or partly accessible) for audiences but not performers.
Lack of
  • accessible information on websites,

  • support at venues and seating in exhibition spaces,

  • physical access to buildings, including easy identification of entrance/reception and access to all rooms/sections,

  • accessible content (lack of IT solutions, of accessible interpretation encompassing guided tours, brochures, and interpretation panels for a range of disabilities),

  • navigation, orientation, and wayfinding information that is accessible for people with a range of disability types,

  • spaces that are suitable for people with sensory/neurological processing needs.

Accessible front- and back-of-house design. More frequent scheduling and mainstreaming of events/tours/performances that are accessible.
Use of IT supported by consultation with different groups of PWD and by guidelines encompassing different types of disability and promoting awareness of existing IT solutions. Accessible design might include mobile devices, assistive listening systems, and embedding audio-description, information, and way-finding (incorporating audible, tactile, and visual cues and environments that support different cognitive needs).
Requesting feedback from visitors with disabilities about what was difficult to navigate.
Marketing communication and public relations to promote an accessible and welcoming environment for audiences and artists.
Accessible websites, including instructions on accessibility and on getting from nearby public transport.
Participatory approaches and engagement that help build a sense of belonging and community.
5. Lack of consultation with, and involvement of, persons with disabilities in cultural organisationsInsufficient involvement of PWD in cultural industries, including
  • lack of employment,

  • insufficient input into decision-making and into developing policies and evaluating services.

Working cultures (i.e., unpredictability and long hours) that are challenging for PWD.

Input by PWD
  • on decision-making fora,

  • into policies and practices (two-way exchange),

  • into evaluation processes, assessing accessibility on physical and perceptual levels

(all of which may require financial support for representative organisations).
Changes in organisational and employment practices:
  • inclusive recruitment/employment/management/communications practices,

  • access to advice for employers on reasonable accommodation of employees and on how to support them through welfare claims,

  • staff training focusing on attitudes and on handling accessibility issues,

  • building disability-supportive teams, mentorship, and more supportive terms of employment,

  • employment-based apprenticeships and internships for PWD.

[i] Note: ‘Facilitators’ include policies/practices identified as operating in some cases within the studies cited and suggestions made by the authors of those studies.

DOI: https://doi.org/10.16993/sjdr.863 | Journal eISSN: 1745-3011
Language: English
Page range: 68 - 81
Submitted on: Sep 21, 2021
Accepted on: Feb 2, 2022
Published on: Feb 28, 2022
In partnership with: Paradigm Publishing Services

© 2022 Ann Leahy, Delia Ferri, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.