
‘I Got To Answer the Way I Wanted To’: Intellectual Disabilities and Participation in Technology Design Activities
By: Mugula Chris Safari, Sofie Wass and Elin Thygesen
References
- Arnstein, Sherry R. 1969. “A ladder of citizen participation.” Journal of the American Institute of planners 35(4): 216–224. DOI: 10.1080/01944366908977225
- Arvidsson, Patrik, Mats Granlund, and Mikael Thyberg. 2008. “Factors Related to Self-rated Participation in Adolescents and Adults with Mild Intellectual Disability–A Systematic Literature Review.” Journal of Applied Research in Intellectual Disabilities 21(3): 277–91. DOI: 10.1111/j.1468-3148.2007.00405.x
- Bannon, Liam J., and Pelle Ehn. 2012.
“Design: Design matters in Participatory Design.” In Routledge International Handbook of Participatory Design, 35–63. New York, NY: Routledge. - Bano, Muneera, and Didar Zowghi. 2015. “A Systematic Review on the Relationship between User Involvement and System Success.” Information and Software Technology 58: 148–169. DOI: 10.1016/j.infsof.2014.06.011
- Benton, Laura, and Hilary Johnson. 2014. “Structured Approaches to Participatory Design for Children: Can Targeting the Needs of Children with Autism Provide Benefits for a Broader Child Population?” Instructional Science 42(1): 47–65. DOI: 10.1007/s11251-013-9297-y
- Benton, Laura, and Hilary Johnson. 2015. “Widening Participation in Technology Design: A Review of the Involvement of Children with Special Educational Needs and Disabilities.” International Journal of Child-Computer Interaction 3: 23–40. DOI: 10.1016/j.ijcci.2015.07.001
- Berget, Gerd, and Andrew MacFarlane. 2019. “What Is Known about the Impact of Impairments on Information Seeking and Searching?” Journal of the Association for Information Science and Technology 71(5): 596–611. DOI: 10.1002/asi.24256
- Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3(2): 77–101. DOI: 10.1191/1478088706qp063oa
- Braun, Virginia, and Victoria Clarke. 2013. Successful qualitative research: A practical guide for beginners. New York, USA: SAGE.
- Brereton, Margot, Laurianne Sitbon, Muhammad Haziq Lim Abdullah, Mark Vanderberg, and Stewart Koplick. 2015. “Design after Design to Bridge between People Living with Cognitive or Sensory Impairments, their Friends and Proxies.” CoDesign 11(1): 4–20. DOI: 10.1080/15710882.2015.1009471
- Carulla, Luis Salvador, Geoffrey M. Reed, Leila M. Vaez-Azizi, Sally-Ann Cooper, Rafael Martinez Leal, Marco Bertelli, Colleen Adnams, Sherva Cooray, Shoumitro Deb, and Leyla Akoury Dirani. 2011. “Intellectual Developmental Disorders: Towards a New Name, Definition and Framework for ‘Mental Retardation/Intellectual Disability’ in ICD-11.” World Psychiatry 10(3): 175–80. DOI: 10.1002/j.2051-5545.2011.tb00045.x
- Druin, Allison. 2002. “The Role of Children in the Design of New Technology.” Behaviour and Information Technology 21(1): 1–25. DOI: 10.1080/01449290110108659
- Frauenberger, Christopher, Judith Good, Geraldine Fitzpatrick, and Ole Sejer Iversen. 2015. “In Pursuit of Rigour and Accountability in Participatory Design.” International Journal of Human-Computer Studies 74: 93–106. DOI: 10.1016/j.ijhcs.2014.09.004
- Guha, Mona Leigh, Allison Druin, and Jerry Alan Fails. 2010. “Investigating the Impact of Design Processes on Children.” In IDC ‘10: Proceedings of the 9th International Conference on Interaction Design and Children, Barcelona, Spain,
June 9 – 12, 2010 , 198–201. New York, NY:Association for Computing Machinery . DOI: 10.1145/1810543.1810570 - Hart, Roger A. 1992. Children’s Participation: From Tokenism to Citizenship. New York, NY, USA: Florence; UNICEF International Child Development Centre.
- Hendriks, Niels, Karin Slegers, and Pieter Duysburgh. 2015. “Codesign with people living with cognitive or sensory impairments: A case for method stories and uniqueness.” CoDesign 11(1): 70–82. DOI: 10.1080/15710882.2015.1020316
- Jurkowski, Janine M. 2008. “Photovoice as a Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development.” Intellectual and Developmental Disabilities 46(1): 1–11. DOI: 10.1352/0047-6765(2008)46[1:PAPART]2.0.CO;2
- Kittelsaa, Anna M. 2014. “Self-presentations and Intellectual Disability.” Scandinavian Journal of Disability Research 16(1): 29–44. DOI: 10.1080/15017419.2012.761159
- Kujala, Sari. 2003. “User Involvement: A Review of the Benefits and Challenges.” Behaviour and Information Technology 22(1): 1–16. DOI: 10.1080/01449290301782
- Malinverni, Laura, Joan Mora-Guiard, Vanesa Padillo, Maria Angeles Mairena, Amaia Hervás, and Narcis Pares. 2014. “Participatory Design Strategies to Enhance the Creative Contribution of Children with Special Needs.” In IDC’14: Proceedings of the 2014 Conference on Interaction Design and Children, Aarhus, Denmark,
June 17 – 20, 2014 , 85–94. New York, NY:Association for Computing Machinery . DOI: 10.1145/2593968.2593981 - McNally, Brenna, Matthew Louis Mauriello, Mona Leigh Guha, and Allison Druin. 2017. “Gains from Participatory Design Team Membership as Perceived by Child Alumni and their Parents.” In CHI ‘17 Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems, Colorado, Denver,
May 6–11, 2017 , 5730–5741. New York, NY:Association for Computing Machinery . DOI: 10.1145/3025453.3025622 - Muller, Michael J. 2007.
“Participatory Design: The Third Space in HCI.” In The Human-Computer Interaction Handbook, 1087–108. Boca Raton, FL: CRC Press. DOI: 10.1201/9781410615862-68 - Norwegian White Paper. 2016. “På lik linje – Åtte løft for å realisere grunnleggende rettigheter for personer med utviklingshemming” [Like anyone else – Eight boosts to realize basic rights for persons with intellectual disability]. Oslo: Ministry of Children and Equality.
- Parsons, Sarah, and Sue Cobb. 2014. “Reflections on the Role of the ‘Users’: Challenges in a Multi-disciplinary Context of Learner-centred Design for Children on the Autism Spectrum.” International Journal of Research and Method in Education 37(4): 421–41. DOI: 10.1080/1743727X.2014.890584
- Povee, Kate, Brian J. Bishop, and Lynne D. Roberts. 2014. “The Use of Photovoice with People with Intellectual Disabilities: Reflections, Challenges, and Opportunities.” Disability and Society 29(6): 893–907. DOI: 10.1080/09687599.2013.874331
- Raman, Sneha, and Tara French. 2021. “Enabling genuine participation in co-design with young people with learning disabilities.” CoDesign 1–11. DOI: 10.1080/15710882.2021.1877728
- Read, Janet C., and Stuart MacFarlane. 2006. “Using the Fun Toolkit and Other Survey Methods to Gather Opinions in Child-Computer Interaction.” In IDC ‘06: Proceedings of the 2006 conference on Interaction design and children, Tampere, Finland,
June 7 – 9, 2006 , 81–88. New York, NY:Association for Computing Machinery . DOI: 10.1145/1139073.1139096 - Robb, Nigel, Bryan Boyle, Yurgos Politis, Nigel Newbutt, Hug-Jen Kuo, and Connie Sung. 2020.
“Participatory Technology Design for Autism and Cognitive Disabilities: A Narrative Overview of Issues and Techniques.” In Recent Advances in Technologies for Inclusive Well-Being: Virtual Patients, Gamification and Simulation edited by Anthony, Brooks, Sheryl Braham, Bill Kapralos, Amy Nakajima, Jane Tyerman, and Lakhmi C. Jain [Manuscript in preparation]. Dordrecht: Springer. DOI: 10.1007/978-3-030-59608-8_25 - Rogers, Yvonne, and Gary Marsden. 2013. “Does He Take Sugar?: Moving beyond the Rhetoric of Compassion.” Interactions 20(4): 48–57. DOI: 10.1145/2486227.2486238
- Sanders, Elizabeth B.-N., Eva Brandt, and Thomas Binder. 2010. “A Framework for Organizing the Tools and Techniques of Participatory Design.” In PDC ‘10: Proceedings of the 11th Biennial Participatory Design Conference, Sydney, Australia,
November 29 – December 3, 2010 , 195–198. New York, NY:Association for Computing Machinery . DOI: 10.1145/1900441.1900476 - Sanders, Elizabeth B.-N., and Pieter Jan Stappers. 2008. “Co-creation and the New Landscapes of Design.” Co-design 4(1): 5–18. DOI: 10.1080/15710880701875068
- Sein, Maung K., Ola Henfridsson, Sandeep Purao, Matti Rossi, and Rikard Lindgren. 2011. “Action Design Research.” MIS Quarterly 35(1): 37–56. DOI: 10.2307/23043488
- Sigstad, Hanne Marie Høybråten, and Veerle Garrels. 2018. “Facilitating Qualitative Research Interviews for Respondents with Intellectual Disability.” European Journal of Special Needs Education 33(5): 692–706. DOI: 10.1080/08856257.2017.1413802
- Sitbon, Laurianne, and Shanjana Farhin. 2017. “Co-designing Interactive Applications with Adults with Intellectual Disability: A Case Study.” In OZCHI ‘17: Proceedings of the 29th Australian Conference on Computer-Human Interaction, Queensland, Brisbane, Australia,
November 28 – December 1, 2017 , 487–491. New York, NY:Association for Computing Machinery . DOI: 10.1145/3152771.3156163 - Xu, Yuanying, Jinglan Zhang, Roman Yagovkin, Simone Maniero, Phurpa Wangchunk, and Stewart Koplick. 2014. “Rove n’ Rave™ Development: A Partnership between the University and the Disability Service Provider to Build a Social Website for People with an Intellectual Disability.” In OzCHI ‘14: Proceedings of the 26th Australian Computer-Human Interaction Conference on Designing Futures: The Future of Design, New South Wales, Sydney, Australia,
December 2–5, 2014 , 531–534. New York, NY: Association for Computing Machinery. DOI: 10.1145/2686612.2686697
DOI: https://doi.org/10.16993/sjdr.798 | Journal eISSN: 1745-3011
Language: English
Page range: 192 - 203
Submitted on: Feb 16, 2021
Accepted on: Jun 17, 2021
Published on: Jul 7, 2021
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2021 Mugula Chris Safari, Sofie Wass, Elin Thygesen, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.