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Patient or Citizen? Participation and Accessibility for Deaf and Hard-of-Hearing People in the Context of Interpretation in Sweden Cover

Patient or Citizen? Participation and Accessibility for Deaf and Hard-of-Hearing People in the Context of Interpretation in Sweden

Open Access
|Aug 2021

Figures & Tables

Figure 1

Distribution of responsibilities between county councils and municipalities for hiring interpreters for deaf parents.

Table 1

Demographic background of four cases focused upon in this study.

CaseKimAlexLeeDrew
Age at project startLate 20sMid-30sMid-20sMid-30s
EthnicityWhite ethnic SwedeWhite ethnic SwedePre-teen migrant from the Middle EastWhite ethnic Swede
DeafnessSince birthSince birthAt 5 years of age due to meningitisSince birth
Family backgroundAll deaf familyHearing familyHearing familyAll deaf family
Educational backgroundSigning pre-school
Sign bilingual deaf school
University professional degree
Signing pre-school
Sign bilingual deaf school
University professional degree
Sign bilingual deaf school (on arrival in Sweden)
University professional degree
Sign bilingual deaf school
EmploymentPermanent employment at a governmental agency, stable incomePermanent employment at a deaf school, stable incomeShort-term project assignments, no stable income until recentlyTemporary employment, no stable income; (unsuccessfully) tried to establish a private company
Vignette 1

Positioning deaf applicants as passive patients.

Vignette 2

Activity related skills—a facilitative dimension of STS-IS.

Vignette 3

Enabling multiparty communication—embodied positioning and engagements.

Figure 2

Negotiating interpretation schedules after dinner ‘as soon as possible’ “asap”.

Vignette 4

Responsibilities for ordering interpreters—the circus of interpretation policies in action.

Vignette 5

Investing time for their own participation—Negotiating interpreter scheduling.

Vignette 6

Working to participate—getting the interpreter’s attention.

DOI: https://doi.org/10.16993/sjdr.733 | Journal eISSN: 1745-3011
Language: English
Page range: 209 - 223
Submitted on: May 4, 2020
Accepted on: Aug 6, 2021
Published on: Aug 31, 2021
In partnership with: Paradigm Publishing Services

© 2021 Ingela Holmström, Sangeeta Bagga-Gupta, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.