Staff as Advocates, Moral Guardians and Enablers – Using ICT for Independence and Participation in Disability Services
By: Camilla Ramsten and Helena Blomberg
References
- Andrews, Molly, Corinne Squire, and Maria Tamboukou. 2008.
“What is Narrative Research?” In Doing Narrative Research, edited by Molly Andrews, Corinne Squire, and Maria Tamboukou, 1–17. Thousand Oaks, CA: Sage. DOI: 10.4135/9780857024992 - Arvidsson, Patrik. 2013. Assessment of participation in people with a mild intellectual disability. Örebro: Örebro University.
- Bamberg, Michael. 2004. “Form and Functions of ‘Slut Bashing’ in Male Identity Constructions in 15-Year-Olds.” Human Development 47(6): 333–53. DOI: 10.1159/000081036
- Bamberg, Michael. 2011. “Who Am I? Narration and Its Contribution to Self and Identity.” Theory & Psychology 21(1): 3–24. DOI: 10.1177/0959354309355852
- Batorowizc, Beata, Gillian King, Lipi Mishra, and Cheryl Missiuna. 2016. “An Integrated Model of Social Environment and Social Context for Pediatric Rehabilitation.” Disability and Rehabilitation 38(12): 1204–15. DOI: 10.3109/09638288.2015.1076070
- Bigby, Christine, and Ilan Wiesel. 2015. “Mediating Community Participation: Practice of Support Workers in Initiating, Facilitating or Disrupting Encounters Between People With and Without Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities 28(4): 307–18. DOI: 10.1111/jar.12140
- Boulianne, Shelley. 2015. “Social Media Use and Participation: A Meta-Analysis of Current Research.” Information, Communication & Society 18(5): 524–38. DOI: 10.1080/1369118X.2015.1008542
- Bruner, Jerome. 1991. “The Narrative Construction of Reality.” Critical Inquiry 18(1): 1–21. DOI: 10.1086/448619
- Burr, Vivian. 2003. Social constructionism. 2nd ed. New York: Routledge. DOI: 10.4324/9780203694992
- Caton, Sue, and Melanie Chapman. 2016. “The Use of Social Media and People with Intellectual Disability: A Systematic Review and Thematic Analysis.” Journal of Intellectual & Developmental Disability 41(2): 125–39. DOI: 10.3109/13668250.2016.1153052
- Chadwick, Darren, Caroline Wesson, and Chris Fullwood. 2013. “Internet Access by People with Intellectual Disabilities: Inequalities and Opportunities.” Future Internet 5(3): 376–97. DOI: 10.3390/fi5030376
- Clifford Simplican, Stacy, Carolyn Shivers, June Chen, and Geraldine Leader. 2018. “‘With A Touch of a Button’: Staff Perceptions on Integrating Technology in an Irish Service Provider for People with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 31(1): e130–9. DOI: 10.1111/jar.12350
- Coffey, Amanda, and Paul Atkinson. 1996.
“Narratives and Stories.” In: Making Sense of Qualitative Data: Complementary Research Strategies, 54–82. Thousand Oaks, CA: Sage. - Findahl, Olle, and Pamela Davidsson. 2015. Svenskarna och internet. 2015 års undersökning av svenska folkets internetvanor. [The Swedes and the Internet. Investigation of the Swedes Internet habits in 2015]. Retrieved from
https://www.iis.se/docs/Svenskarna_och_internet_2015.pdf . - Goffman, Erving. 1961. Encounters: Two Studies in the Sociology of Interactions. Indianapolis, IN: Bobbs-Merrill.
- Goffman, Erving. 1963. Behavior in Public Places: Notes on the Social Organization of Gatherings. New York, NY: The Free Press.
- Goffman, Erving. 1967. Interactional Ritual: Essays on Face-to-Face Behavior. New York, NY: Pantheon Books.
- Goffman, Erving. 1971. Relations in Public: Microstudies of the Public Order. London: Allen Lane.
- Goffman, Erving. 1981. Forms of Talk. Philadelphia, PA: University of Pennsylvania Press.
- Government of Sweden. 1993. Lagen om stöd och service till vissa funktionshindrade [The Act Concerning Support and Service for Persons with Certain Functional Impairments], 387. Stockholm: Socialdepartementet.
- Harrysson, Björn, Arne Svensk, and Gerd I. Johansson. 2004. “How People with Developmental Disabilities Navigate the Internet.” British Journal of Special Education 31(3): 138–42. DOI: 10.1111/j.0952-3383.2004.00344.x
- Hasenfeld, Yeheskel. 2010.
“The Attributes of Human Service Organizations.” In Human Services as Complex Organizations, edited by Yeheskel Hasenfeld, 9–32. London: Sage. - Hegarty, John R., and Ann Aspinall. 2006. “The Use of Personal Computers with Adults Who Have Developmental Disability: Outcomes of an Organisation-Wide Initiative.” British Journal of Developmental Disabilities 52(2): 137–54. DOI: 10.1179/096979506799103569
- Holloway, Immy, and Stephanie Wheeler. 2010. Qualitative Research in Nursing and Health Care (3rd ed). Oxford: Wiley-Blackwell.
- Ineland, Jens, Martin Molin, and Lennart Sauer. 2015. “Discursive Tensions in Late Modern Society – On Education and Work for People with Intellectual Disabilities in Sweden.” European Journal of Social Education 26/27: 118–36.
- Kohler-Riessman, Catherine. 1993. Narrative Analysis. London: Sage.
- Krueger, Richard A. 1994. Focus Groups: A Practical Guide for Applied Research. Thousand Oaks, CA: Sage.
- Lieblich, Amia, Rivka Tuval-Mashiach, and Tamar Zilber. 1998. Narrative Research: Reading, Analysis and Interpretation. Thousand Oaks, CA: Sage. DOI: 10.4135/9781412985253
- Manzoor, Mirfa, and Vivian Vimarlund. 2017. “E-Services for the Social Inclusion of People with Disabilities: A Literature Review.” Technology & Disability 29(1/2): 15–33. DOI: 10.3233/TAD-170175
- Mishler, Elliot G. 1999. Storylines: Craftartists’ Narratives of Identity. London: Harvard University Press.
- Molin, Martin. 2004.
“Att vara i särklass -om delaktighet och utanförskap i gymnasiesärskolan.” [To be special –about participation and exklusion in secondary special school]. Doctoral Dissertation. Linköpings Universitet/Örebro universitet. Institute of disability research. - Molin, Martin, Emma Sorbring, and Lotta Löfgren-Mårtenson. 2015. “Teachers’ and Parents’ Views on the Internet and Social Media Usage by Pupils with Intellectual Disabilities.” Journal of Intellectual Disabilities 19(1): 22–33. DOI: 10.1177/1744629514563558
- Näslund, Rebecka, and Åsa Gardelli. 2013. “‘I Know, I Can, I Will Try’: Youth and Adults with Intellectual Disabilities in Sweden Using Information and Communication Technology in Their Everyday Life.” Disability & Society 28(1): 28–40. DOI: 10.1080/09687599.2012.695528
- Parsons, Sarah, Harry Daniels, Jill Porter, and Christopher Robertson. 2008. “Resources, Staff Beliefs and Organizational Culture: Factors in the Use of Information and Communication Technology for Adults with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 21(1): 19–33. DOI: 10.1111/j.1468-3148.2007.00361.x
- Patton, Michael Q. 2002. Qualitative Evaluation and Research Methods (3 ed.). Thousand Oaks, CA: Sage.
- Polit, F. Denise, and T. Cheryl Beck. 2010. Nursing Research, Appraising Evidence for Nursing Practice. 7th ed. Philadelphia: Lippincott Williams & Wilkins.
- Potter, Jonathan. 2004.
“Discourse analysis.” In Handbook of Data Analysis, edited by M Hardy, and A Bryman, 607–624. London: Sage. DOI: 10.4135/9781848608184.n27 - Potter, Jonathan, and Margaret Wetherell. 1987. Discourse and Social Psychology: Beyond Attitudes and Behavior. London: Sage.
- Raghavendra, Parimala, Lareen Newman, Emma Grace, and Denise Wood. 2013. “‘I Could Never Do That Before’: Effectiveness of a Tailored Internet Support Intervention to Increase the Social Participation of Youth with Disabilities: Facilitating Social Participation Using the Internet.” Child Care Health and Development 39(4): 552–561. DOI: 10.1111/cch.12048
- Ramsten, Camilla, Lena Marmstål Hammar, Lene Martin, and Kerstin Göransson. 2017. “ICT and Intellectual Disability: A Survey of Organizational Support at the Municipal Level in Sweden.” Journal of Applied Research in Intellectual Disabilities 30(4): 705–13. DOI: 10.1111/jar.12265
- Ramsten, Camilla, Lene Martin, Munir Dag, and Lena Marmstål Hammar. 2018. “Information and Communication Technology Use in Daily Life Among Young Adults with Mild-to-Moderate Intellectual Disability.” Journal of Intellectual Disability. Epub. July 16, 2018. DOI: 10.1177/1744629518784351
- Ramsten, Camilla, Lene Martin, Munir Dag, and Lena Marmstål Hammar. 2019. “A Balance of Social Inclusion and Risks: Staff Perceptions of Information and Communication technology in the Daily Life of Young Adults with Mild to Moderate Intellectual Disability in a Social Care Context.” Journal of Policy and Practice in Intellectual Disabilities 16(3): 171–197. DOI: 10.1111/jppi.12278
- Sallafranque-St-Louis, Francois, and Claude L. Normand. 2017. “From Solitude to Solicitation: How People with Intellectual Disability or Autism Spectrum Disorder Use the Internet.” Cyberpsychology: Journal of Psychosocial Research on Cyberspace 11(1/7). DOI: 10.5817/CP2017-1-7
- Seale, Jane, and Darren Chadwick. 2017. “How Does Risk Mediate the Ability of Adolescents and Adults with Intellectual and Developmental Disabilities to Live a Normal Life by Using the Internet?” Cyberpsychology: Journal of Psychosocial Research on Cyberspace 11(1/2). DOI: 10.5817/CP2017-1-2
- Stald, Gitte. 2008.
“Mobile Identity: Youth, Identity, and Mobile Communication Media.” In Youth, Identity, and Digital Media, edited by David Buckingham, 143–164. The John D. and Catherine T. MacArthur Foundation Series on Digital Media and Learning. Cambridge, MA: The MIT Press. - Swedish National Board of Health and Welfare. 2009. Swedish Disability Policy: Service and Care for People with Functional Impairments. Stockholm: Socialstyrelsen.
- Thomson, John B. 1995. The Media and Modernity: A Social Theory of the Media. Cambridge, MA: Polity Press.
- Umb-Carlsson, Õie. 2008. Studier om hälsa för personer med utvecklingsstörning. [Studies on health for persons with intellectual disability]. Östersund: Public Health Institute.
- Umb-Carlsson, Õie, and Karin Sonnander. 2005. “Comparison of the Living Conditions of Adults with Intellectual Disabilities in a Swedish County and in the General Population.” Journal of Policy and Practice in Intellectual Disabilities 2(3–4): 240–8. DOI: 10.1111/j.1741-1130.2005.00036.x
- United Nations. 2006. Convention on the rights of people with disabilities. New York: United Nations.
- World Health Organization (WHO). 2001. International Classification of Functioning, Disability and Health: ICF. Geneva: WHO.
- Xinaris, Charis. 2016. The individual in an ICT world. European Journal of Communication 31(1): 58–68. DOI: 10.1177/0267323115614487
DOI: https://doi.org/10.16993/sjdr.608 | Journal eISSN: 1745-3011
Language: English
Page range: 271 - 281
Submitted on: Dec 11, 2018
Accepted on: Oct 15, 2019
Published on: Nov 6, 2019
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2019 Camilla Ramsten, Helena Blomberg, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.