Work and Invisible Disabilities: Practices, Experiences and Understandings of (Non)Disclosure
By: Maria Norstedt
References
- Allvin, Michael. 2004.
‘The Individualization of Labour.’ In: Learning to be employable: new agendas on work, responsibility, and learning in a globalizing world, Christina Garsten, and Kerstin Jacobsson (eds.), 23–42. Basingstoke: Palgrave Macmillan. - Beatty, Joe E. 2012. ‘Career Barriers Experienced by People with Chronic Illness: A U.S Study.’ Employ Response Rights Journal 24(2): 91–110. DOI: 10.1007/s10672-011-9177-z
- Bertilsdotter Rosqvist, Hanna, Hisayo Katsui, and Janice McLaughlin. 2009. ‘(Dis)abling practices and theories?: exploring chronic illness in disability studies.’ Scandinavian Journal of Disability Research 19(1): 1–6. DOI: 10.1080/15017419.2016.1269535
- Burnard, Philip. 1991. ‘A method of analysing interview transcripts in qualitative research’. Nurse Education Today 11(6): 461–466. DOI: 10.1016/0260-6917(91)90009-Y
- Campbell, Fiona Kumari. 2009.
Contours of Ableism. The Production of Disability and Abledness . New York: Palgrave Mcmillan. DOI: 10.1057/9780230245181 - Charmaz, Kathy. 1991.
Good Days Bad Days: The Self in Chronic Illness and Time . New Brunswick, N.J.: Rutgers Univ. Press. - Charmaz, Kathy. 2010. ‘Disclosing illness and disability in the workplace.’ Journal of International Education in Business 3(1/2): 6–19. DOI: 10.1108/18363261011106858
- DeVault, Marjorie L., and Liza McCoy. 2006.
‘Institutional Ethnography: Using Interviews to Investigate Ruling Relations’ . In: Institutional Ethnography as Practice, Dorothy E. Smith (ed.), 15–44. Lanham (US): Rowman & Littlefield Publishers, Inc. - Eriksen, John, and Siri Naess. 1998.
Epilepsi og diabetes. Livskvalitet, stigmatisering og mestring . NOVA-rapport 16/98, Oslo. - Esping-Anderson, Gøsta. 2003. ‘Towards the Good Society, Once Again?’ In: Why We Need a New Welfare State. DOI: 10.1093/0199256438.003.0001
- Foster, Deborah, and Victoria Wass. 2013. ‘Disability in the Labour Market: An Exploration of Concepts of the Ideal Worker and Organisational Fit that Disadvantage Employees with Impairments.’ Sociology 47(4): 705–721. DOI: 10.1177/0038038512454245
- Foucault, Michel. 1985.
Discipline and Punish: The Birth of the Prison . Harmondsworth: Penguin. - Foucault, Michel. 1990.
The History of Sexuality . Volume I. The Will to Knowledge. Harmondsworth: Penguin. - Garsten, Christina, and Kerstin Jacobsson. (ed.) 2004.
Learning to be Employable: New Agendas on Work, Responsibility, and Learning in a Globalizing World , Basingstoke: Palgrave Macmillan. - Germundsson, Per, and Ingrid Runesson. 2014.
‘Unga med funktionsnedsättning. Om sysselsättningsvillkoren på den flexibla arbetsmarknaden’ . In: Den långa vägen till arbetsmarknaden. Om unga utanför, Jonas Olofsson (ed.), 255–270. Studentlitteratur: Lund. - Goffman, Erving. 1963/1986.
Stigma: Notes on the Management of Spoiled Identity . New York: Simon & Schuster. - Hazer, John T., and Karen W. Bedell. 2000. ‘Effects of Seeking Accommodation and Disability on Preemployment Evaluations.’ Journal of Applied Social Psychology 30(6): 1201–1223. DOI: 10.1111/j.1559-1816.2000.tb02517.x
- Hughes, Bill, and Kevin Paterson. 1997. ‘The Social Model of Disability and the Disappearing Body: Towards a Sociology of Impairment.’ Disability & Society 12(3): 325–340. DOI: 10.1080/09687599727209
- Jans, Lita, H. Kaye, and Erica Jones. 2012. ‘Getting Hired: Successfully Employed People with Disabilities Offer Advice on Disclosure, Interviewing, and Job Search.’ Journal of Occupational Rehabilitation 22(2): 155–165. DOI: 10.1007/s10926-011-9336-y
- Jones, Amanda. 2011. ‘Disclosure of Mental Illness in the Workplace: A Literature Review.’ American Journal of Psychiatric Rehabilitation 14(3): 212–229. DOI: 10.1080/15487768.2011.598101
- Larsson Tholén, Susanna, and Berth Danermark. 2015.
‘Inledning’ . In: Arbetsliv för alla. Funktionsnedsättning och Arbete, Susanna Larsson Tholén, and Berth Danermark (eds.), 9–20. Malmö: Gleerups. - Lingsom, Susan. 2008. ‘Invisible Impairments: Dilemmas of Concealment and Disclosure.’ Scandinavian Journal of Disability Research 10(1): 2–16. DOI: 10.1080/15017410701391567
- Madden, Sue, and Jim Sim. 2006. ‘Creating meaning in fibromyalgia syndrome.’ Social Science & Medicine 63(11): 2962–2973. DOI: 10.1016/j.socscimed.2006.06.020
- Matthews, Cynthia K. 1994. To tell or not to tell: The management of privacy boundaries by the invisibly disabled. Paper presented at the annual meeting of the Western States Communication Association. San Jose, CA.
- Mullins, Laura, and Michelle Preyede. 2012. ‘The Lived Experience of Students with an Invisible Disability at a Canadian University.’ Disability & Society 28(2): 147–160. DOI: 10.1080/09687599.2012.752127
- Munir, Fehmidah, Stavroula Leka, and Amanda Griffiths. 2005. ‘Dealing with self-management of chronic illness at work: predictors for self-closure.’ Social Science and Medicine 60(6): 1397–1407. DOI: 10.1016/j.socscimed.2004.07.012
- Munir, Fehmidah, Joanna Yarker, and Cheryl Haslam. 2008. ‘Sickness absence management: Encouraging attendance or ‘risk-taking’ presenteeism in employees with chronic illness?’ Disability & Rehabilitation 30(19): 1461–1472. DOI: 10.1080/09638280701637380
- Norstedt, Maria. 2015.
Arbeidsliv och funksjonshindre. Institusjonelle paradoxer . In: I hjertet av velferdsstaten. En invitasjon til institusjonell etnografi, Karin Widerberg (ed.), 101–122. Oslo: Cappelen Damm. - Norstedt, Maria. 2017. The (im)possibilities of working again after a stroke WORK. A Journal of Prevention, Assessment, and Rehabilitation 56(4): 637–647. DOI: 10.3233/WOR-172521
- Norstedt, Maria, and Janne Paulsen Breimo. 2016. ‘Moving Beyond Everyday Life in Institutional Ethnographies: Methodological Challenges and Ethical Dilemmas.’ Forum: Qualitative Social Research. Socialforschung 17(2):
Art. 3 . DOI: 10.17169/fqs-17.2.2539 - Priestley, Mark. 1998. ‘Constructions and Creations: Idealism, Materialism and Disability Theory.’ Disability & Society 13(1): 75–94. DOI: 10.1080/09687599826920
- Priestley, Mark. 2003.
Disability. A Life Course Approach . Cambridge, UK: Polity. - Prince, Michael J. 2017. ‘Persons with invisible disabilities and workplace accommodation: Findings from a scoping literature review.’ Journal of Vocational Rehabilitation 46(1): 75–86. DOI: 10.3233/JVR-160844
- Rankin, Janet. 2017. ‘Conducting Analysis in Institutional Ethnography: Analytical Work Prior to Commencing Data Collection.’ International Journal of Qualitative Methods 16(1): 1–9. DOI: 10.1177/1609406917734484
- Roman, Leslie G. 2009. ‘Go Figure’! Public Pedagogies, invisible impairments and the performative paradoxes of visibility as veracity.’ International Journal of Inclusive Education 13(7): 677–698. DOI: 10.1080/13603110903041920
- Samuels, Ellen. 2003. ‘My Body, My Closet: Invisible Disability and the Limits of Coming-Out Discourse.’ GLQ 9(1–2): 233–255. DOI: 10.1215/10642684-9-1-2-233
- Santuzzi, Alecia, et al. 2014. ‘Invisible Disabilities: Unique Challenges for Employees and Organizations.’ Industrial and Organizational Psychology 7(2): 204–219. DOI: 10.1111/iops.12134
- Scambler, Sasha. 2012.
‘Long-term disabling conditions and disability theory.’ In: Routledge Handbook of Disability Studies Nick Watson, Alan Poulstone, and Carol Thomas (eds.), 136–150. Routledge: New York. - Seing, Ida, et al. 2012. ‘Policy and Practice of Work Ability: A Negotiation of Responsibility in Organizing Return to Work.’ Journal of Occupational Rehabilitation 22(4): 553–564. DOI: 10.1007/s10926-012-9371-3
- Smith, Dorothy E. 1987.
The Everyday World as Problematic: A Feminist Sociology , Boston: Northeastern University Press. - Smith, Dorothy E. 2005.
Institutional Ethnography: A Sociology for People , Walnut Creek, CA: AltaMira Press. - Smith, Dorothy E. 2006.
Institutional Ethnography as Practice . Lanham, MD: Rowman & Littlefield. - Spirito-Dalgin, Rebecca, and James Bellini. 2008. ‘Invisible Disability in an Employment Interview: Impact on Employers’ Hiring Decisions and Views of Employment’. Rehabilitation Counselling Bulletin 52(1): 6–15. DOI: 10.1177/0034355207311311
- Stone, Sharon Dale. 2005. ‘Reactions to Invisible Disability: Experiences of Young Women Survivors of Hemorrhagic Stroke.’ Disability & Rehabilitation 27(2): 293–304. DOI: 10.1080/09638280400008990
- Teghtsoonian, Kathrine. 2016. ‘Methods, Discourse, Activism: Comparing Institutional Ethnography and Governmentality.’ Critical Policy Studies 10(13): 330–347. DOI: 10.1080/19460171.2015.1050426
- Thomas, Carol. 2007.
Sociologies of Disability and Illness. Contested Ideas in Disability Studies and Medical Sociology , New York: Palgrave Macmillan. DOI: 10.1007/978-1-137-02019-2 - Vickers, Margret H. 2003. ‘Expectations of Consistency on Organizational Life: Stories of Inconsistency from People With Unseen Chronic Illness.’ Employee Responsibilities and Rights Journal 15(2): 85–98. DOI: 10.1023/A:1023524714053
- von Schrader, Sarah, Valerie Malzer, and Susanne Bruyère. 2014. ‘Perspectives on Disability Disclosure: The Importance of Employer Practices and Workplace Climate.’ Employee Responsibilities & Rights Journal 26(4): 237–255. DOI: 10.1007/s10672-013-9227-9
- Wendell, Susan. 1989. ‘Toward a Feminist Theory of Disability.’ Hypatia. A journal of Feminist Philosophy 4(2): 104–124. DOI: 10.1111/j.1527-2001.1989.tb00576
- Wendell, Susan. 2001. ‘Unhealthy Disabled: Treating Chronic Illness as Disabilities.’ Hypatia. A Journal of Feminist Philosophy 16(4): 17–33. DOI: 10.1111/j.1527-2001.2001.tb00751.x
- Whitt, Jason, Brian Cawley, Julie Yonker, and Daniella Polage. 2014. ‘The Value of Virtue: An Organizational Approach to the Challenges of Workplace Disabilities.’ Industrial and Organizational Psychology 7(2): 265–269. DOI: 10.1111/iops.12146
- Wilson-Kovacs, Dana, Michelle Ryan, S. Alexander Haslam, and Anna Rabinovich. 2008. ‘Just because You Can Get a Wheelchair in the Building doesn’t Necessarily Mean that You Can Still Participate’: Barriers to the Career Advancement of Disabled Professionals.’ Disability & Society 23(7): 705–717. DOI: 10.1080/09687590802469198
- Wilton, Robert D. 2006. ‘Disability disclosure in the workplace.’ Just Labour 8: 24–39. Accessed 2018 May 17.
http://www.justlabour.yorku.ca/volume8/pdfs/02%20Wilton.pdf . - Åsbring, Pia and Anna-Liisa Närvänen. 2002. ‘Women’s experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia.’ Qualitative Health Research 12(2): 148–160. DOI: 10.1177/104973230201200202
DOI: https://doi.org/10.16993/sjdr.550 | Journal eISSN: 1745-3011
Language: English
Page range: 14 - 24
Submitted on: Dec 21, 2017
Accepted on: Nov 14, 2018
Published on: Jan 11, 2019
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2019 Maria Norstedt, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.