
Support in Law, Control in Practice: Legal Guardianship for Individuals with Intellectual Disabilities and the Fostering of Moral Responsibility
By: Karin Jansson
References
- Altermark, Niklas. 2018. Citizenship Inclusion and Intellectual Disability: Biopolitics Post-Institutionalisation. Abingdon, Oxon: Routledge. DOI: 10.4324/9781315109947
- Arstein-Kerslake, Anna. 2016. “An Empowering Dependency: Exploring Support for the Exercise of Legal Capacity.” Scandinavian Journal of Disability Research 18(1): 77–92. DOI: 10.1080/15017419.2014.941926
- Arstein-Kerslake, Anna. 2017. Restoring Voice to People with Cognitive Disabilities: Realizing the Right to Equal Recognition before the Law. Cambridge Disability Law and Policy. Cambridge: Cambridge University Press. DOI: 10.1017/9781316493526
- Arstein-Kerslake, Anna, Erin O’Donnell, Rosemary Kayess, and Joanne Watson. 2021. “Relational Personhood: A Conception of Legal Personhood with Insights from Disability Rights and Environmental Law.” Griffith Law Review 30(3): 530–55. DOI: 10.1080/10383441.2021.2003744
- Barnes, Colin, and Geoffrey Mercer. 2010. Exploring Disability: A Sociological Introduction. 2nd ed. Cambridge: Polity Press.
- Bigby, C., B. Bowers, and R. Webber. 2011. “Planning and Decision Making about the Future Care of Older Group Home Residents and Transition to Residential Aged Care.” Journal of Intellectual Disability Research 55(8): 777–89. DOI: 10.1111/j.1365-2788.2010.01297.x
- Börjesson, Mats, Eva Palmblad, and Thomas Wahl. 2005. I skötsamhetens utmarker: berättelser om välfärdsstatens sociala optik. Eslöv: B.Östlings bokförlag Symposion.
- Braun, Virginia, and Victoria Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3(2): 77–101. DOI: 10.1191/1478088706qp063oa
- Braun, Virginia, and Victoria Clarke. 2021. “Can I Use TA? Should I Use TA? Should I Not Use TA? Comparing Reflexive Thematic Analysis and Other Pattern-based Qualitative Analytic Approaches.” Counselling and Psychotherapy Research 21(1): 37–47. DOI: 10.1002/capr.12360
- Brosnan, Liz, and Eilionóir Flynn. 2017. “Freedom to Negotiate: A Proposal Extricating “Capacity” from “Consent”.” International Journal of Law in Context 13(1): 58–76. DOI: 10.1017/S1744552316000471
- Broström, Linus, Anna Nilsson, and Therése Fridström Montoya. 2025. “The Purpose of Support in the Exercise of Legal Capacity: Article 12 at a Crossroads.” Scandinavian Journal of Disability Research 27 (1): 607–18. DOI: 10.16993/sjdr.1289
- Carney, Terry, Christine Bigby, Shih-Ning Then, Elizabeth Smith, Ilan Wiesel, and Jacinta Douglas. 2023. “Paternalism to Empowerment: All in the Eye of the Beholder?” Disability & Society 38(3): 503–23. DOI: 10.1080/09687599.2021.1941781
- Clough, Beverley. 2017. “Disability and Vulnerability: Challenging the Capacity/Incapacity Binary.” Social Policy and Society 16(3): 469–81. DOI: 10.1017/S1474746417000069
- Devi, Nandini. 2013. “Supported Decision-Making and Personal Autonomy for Persons with Intellectual Disabilities: Article 12 of the UN Convention on the Rights of Persons with Disabilities.” Journal of Law, Medicine & Ethics 41(4): 792–806. DOI: 10.1111/jlme.12090
- Devi, Nandini, Jerome Bickenbach, and Gerold Stucki. 2011.
“Moving towards Substituted or Supported Decision-Making? Article 12 of the Convention on the Rights of Persons with Disabilities.” Alter (Amsterdam) 5(4): 249–64. DOI: 10.1016/j.alter.2011.07.002 - Doron, Israel. 2002.
“Elder Guardianship Kaleidoscope – A Comparative Perspective.” International Journal of Law, Policy, and the Family (Oxford) 16(3): 368–98. DOI: 10.1093/lawfam/16.3.368 - Drinkwater, Chris. 2005.
“Supported Living and the Production of Individuals.” In Foucault and the Government of Disability, edited by Shelley Tremain. Ann Arbor: University of Michigan Press. - Dunn, Michael., Isabel C. H. Clare, and Anthony Holland. 2010. “Living “a Life like Ours”: Support Workers’ Accounts of Substitute Decision-making in Residential Care Homes for Adults with Intellectual Disabilities.” Journal of Intellectual Disability Research 54(2): 144–60. DOI: 10.1111/j.1365-2788.2009.01228.x
- Elks, Martin A. 2020. “Remarkable Similarities in Four List Theories of a Good Life for People with Intellectual Disability.” Journal of Intellectual Disabilities 24(3): 418–26. DOI: 10.1177/1744629518821792
- Epstein, Laura. 1999.
“The Culture of Social Work.” In Reading Foucault for Social Work, edited by Adrienne S. Chambon, Allan Irving, and Laura Epstein. New York: Columbia University Press. - Fernqvist, Stina. 2018. “‘One Does One’s Best’: Performing Deservingness in Income Support Case Records.” Critical and Radical Social Work 6(3): 329–43. DOI: 10.1332/204986018X15321001889969
- Foucault, Michel. 1982.
“The Subject and Power.” Critical Inquiry (Chicago) 8(4): 777–95. DOI: 10.1086/448181 - Foucault, Michel. 1990. The History of Sexuality Vol. 1 An Introduction. Harmondsworth: Penguin.
- Foucault, Michel. 1995. Discipline and Punish: The Birth of the Prison. 2nd Vintage Books ed. New York: Vintage Books.
- Foucault, Michel. 2003. The Essential Foucault: Selections from Essential Works of Foucault, 1954–1984. In Michel Foucault, Paul Rabinow, and Nikolas S. Rose. New York: New Press.
- Fridström Montoya, Therése. 2015. “Leva som andra genom ställföreträdare: en rättslig och faktisk paradox.” PhD diss. Uppsala University. Uppsala: Iustus förlag.
- Giertz, Lottie. 2012. “Erkännande, makt och möten: En studie av inflytande och självbestämmande med LSS.” PhD diss. Linneus University. Växjö, Kalmar: Linneus University Press.
- Giertz, Lottie. 2018. “Guardianship for Adults with Intellectual Disabilities: Accountant, Advocate or “Family” Member?” Scandinavian Journal of Disability Research 20(1): 256–65. DOI: 10.16993/sjdr.40
- Gooding, Piers. 2015.
“Psychiatrists’ Perceptions of Supported Decision-Making: A Victorian Empirical Study.” Psychiatry, Psychology, and Law (Melbourne) 22(5): 701–22. DOI: 10.1080/13218719.2014.983217 - Government bill. 2008/09:28. Mänskliga rättigheter för personer med funktionsnedsättning (Human rights for persons with disabilities).
- Hall, Christopher. 2003. Constructing Clienthood in Social Work and Human Services: Interaction, Identities, and Practices. 1st ed. London: Jessica Kingsley Publishers.
- Harding, Rosie. 2020.
“Challenging Capacity: Shifting Paradigms of Intellectual Disability across Law, Medicine and Society.” In Research Handbook on Socio-Legal Studies of Medicine and Health, edited by Marie-Andrée Jacob and Anna Kirkland. Research Handbooks in Law and Society Series. Edward Elgar Publishing. DOI: 10.4337/9781786437983.00011 - Holler, Roni, and Shirli Werner. 2022.
“Between the Convention and Conventional Practice: Israeli Social Workers’ Recommendations Regarding the Legal Capacity of People with Disabilities.” Journal of Applied Research in Intellectual Disabilities (Oxford, UK) 35(3): 826–33. DOI: 10.1111/jar.12986 - Holmqvist, Anna, Maria Eriksson, and Magnus Tideman. 2023. “Being Represented by Others Due to Diminished Decision Capacity – a Review of Research Literature.” Nordic Social Work Research 13(3): 445–59. DOI: 10.1080/2156857X.2022.2029549
- Holness, Willene. 2014.
“Equal Recognition and Legal Capacity for Persons with Disabilities: Incorporating the Principle of Proportionality.” South African Journal on Human Rights (Cape Town) 30(2): 313–44. DOI: 10.1080/19962126.2014.11865111 - Hultman, Lill, Magnus Tideman, and Maria Eriksson. 2022. “‘A Limited Guardian Should First and Foremost Get to Know the Person He Helps’—Experiences of Having a Limited Guardian from the Perspective of Adults with Intellectual Disability.” Scandinavian Journal of Disability Research 24(1): 288–301. DOI: 10.16993/sjdr.949
- Ibrahim, Joseph E., and Marie-Claire Davis. 2013.
“Impediments to Applying the “dignity of Risk” Principle in Residential Aged Care Services.” Australasian Journal on Ageing (Australia) 32(3): 188–93. DOI: 10.1111/ajag.12014 - Jayes, Mark, Rebecca Palmer, Pamela Enderby, and Anthea Sutton. 2020.
“How Do Health and Social Care Professionals in England and Wales Assess Mental Capacity? A Literature Review.” Disability and Rehabilitation (England) 42(19): 2797–808. DOI: 10.1080/09638288.2019.1572793 - Juhila, Kirsi. 2003.
“Creating a “Bad” Client: Disalignment of Institutional Identities in Social Work Interaction.” In Constructing Clienthood in Social Work and Human Services, edited by Chris Hall. London: Jessica Kingsley Publishers. - Kaminskiy, Emma. 2015. “The Elephant in the Room: A Theoretical Examination of Power for Shared Decision Making in Psychiatric Medication Management.” Intersectionalities: A Global Journal of Social Work Analysis Research (June): 19–38. DOI: 10.1111/hex.12392
- Kohn, Nina A., and Jeremy A. Blumenthal. 2014.
“A Critical Assessment of Supported Decision-Making for Persons Aging with Intellectual Disabilities.” Disability and Health Journal (United States) 7(1): S40–43. DOI: 10.1016/j.dhjo.2013.03.005 - Moffat, Ken. 1999.
“Surveillance and Government of the Welfare Recipient.” In Reading Foucault for Social Work, edited by Adrienne S. Chambon, Allan Irving, and Laura Epstein. New York: Columbia University Press. DOI: 10.1017/CBO9781139342711 - Nyberg, Greger. 2020.
“Liksom… Att Jag Har En Fri Vilja: Brukares Självbestämmande i Gruppbostad och Personlig Assistans Inom LSS.” PhD diss. Malmö: Malmö University. - Odlöw, Torbjörn. 2005.
“Ställföreträdare för vuxna: kamrer eller handledare?.” PhD diss. Stockholm: Jure. - Power, Andrew, Janet E. Lord, and Allison S. DeFranco. 2013. Active Citizenship and Disability: Implementing the Personalisation of Support. 1st ed. Cambridge: Cambridge University Press. DOI: 10.1017/CBO9781139342711
- Ryrstedt, Eva. 2014. “Får jag inte bestämma något själv? En studie av kvarstående beslutanderätt hos dementa äldre.” Socialvetenskaplig tidskrift 21(3–4): 3–4. DOI: 10.3384/SVT.2014.21.3-4.2409
- SFS. 1949: 381. Föräldrabalken [Parental Code].
- Shakespeare, Tom. 2000.
“The Social Relations of Care.” In Rethinking Social Policy, edited by Sharon Gewirtz, Gail Lewis, and John H. Clarke. London: SAGE Publications Ltd. - Shakespeare, Tom. 2014. Disability Rights and Wrongs Revisited. Second edition. Hoboken: Taylor and Francis. DOI: 10.4324/9781315887456
- Skarstad, Kjersti. 2018. “Ensuring Human Rights for Persons with Intellectual Disabilities?: Self-Determination Policies and the Use of Force in the Case of Norway.” The International Journal of Human Rights 22(6): 774–800. DOI: 10.1080/13642987.2018.1454903
- Skarstad, Kjersti. 2023. “Oppression or Support? Social Policy in the Lives of Persons with Intellectual Disabilities.” Nordic Journal of Human Rights 41(4): 393–409. DOI: 10.1080/18918131.2023.2197721
- SOU. 2021:36. Gode män och förvaltare – en översyn.
- Titterton, Mike. 2005. Risk and Risk Taking in Health and Social Welfare. 1st American pbk. ed. Philadelphia: Jessica Kingsley Publishers.
- Tremain, Shelley. 2005. Foucault and the Government of Disability. Ann Arbor: University of Michigan Press. DOI: 10.3998/mpub.12678
- UNCRPD (United Nations Council on the Rights of Persons with Disability). 2006. Retrieved June 15, 2025.
https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html . - Watson, Joanne. 2016. “Assumptions of Decision-Making Capacity: The Role Supporter Attitudes Play in the Realisation of Article 12 for People with Severe or Profound Intellectual Disability.” Laws 5(1): 6. DOI: 10.3390/laws5010006
- Watson, Sophie. 2000.
“Foucault and the Study of Social Policy.” In Rethinking Social Policy, edited by Sharon Gewirtz, Gail Lewis, and John H. Clarke. London: SAGE Publications Ltd. - Werner, Shirli, and Rachel Chabany. 2016. “Guardianship Law versus Supported Decision-Making Policies: Perceptions of Persons with Intellectual or Psychiatric Disabilities and Parents.” American Journal of Orthopsychiatry 86(5): 486–99. DOI: 10.1037/ort0000125
- Wiesel, Ilan, Elizabeth Smith, Christine Bigby, Shih-Ning Then, Jacinta Douglas, and Terry Carney. 2022. “The Temporalities of Supported Decision-Making by People with Cognitive Disability.” Social & Cultural Geography 23(7): 934–52. DOI: 10.1080/14649365.2020.1829689
- Wyllie, Aaron, and Bernadette J. Saunders. 2018. “‘Everyone Has an Agenda”: Professionals’ Understanding and Negotiation of Risk within the Guardianship System of Victoria, Australia.” Health & Social Care in the Community 26(4): 581–89. DOI: 10.1111/hsc.12551
- Yates, Scott. 2005.
“Truth, Power and Ethics in Care Services for People with Learning Difficulties.” In Foucault and the Government of Disability, edited by Shelley Tremain. Ann Arbor: University of Michigan Press.
DOI: https://doi.org/10.16993/sjdr.1391 | Journal eISSN: 1745-3011
Language: English
Page range: 146 - 158
Submitted on: Oct 10, 2025
Accepted on: Mar 17, 2026
Published on: Mar 25, 2026
Published by: Stockholm University Press
In partnership with: Paradigm Publishing Services
Keywords:
© 2026 Karin Jansson, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.