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Access to Personal Assistance by Parental Education Among Children with Cerebral Palsy in Sweden: A Register Study 2006–2020 Cover

Access to Personal Assistance by Parental Education Among Children with Cerebral Palsy in Sweden: A Register Study 2006–2020

Open Access
|Jun 2026

Figures & Tables

Table 1

Summary statistics of outcome and control variables by parental education.

VARIABLESTOTALCOMPULSORY-EDUCATED PARENTSECONDARY-EDUCATED PARENTONE PARENT TERTIARY EDUCATEDBOTH PARENTS TERTIARY EDUCATEDINDIVIDUALS WITH NO EDUCATION INFORMATION
Proportion who received the benefit22.1626.2523.5521.6820.8312.25
Hours compensated if any compensateda445.58
(207.67)
435.07
(197.66)
436.50
(203.07)
457.02
(212.40)
466.38
(223.84)
385.56
(124.01)
Proportion of girls41.8542.8841.2942.6640.0747.05
Age of child in yearsa8.96
(4.80)
9.65
(4.75)
9.24
(4.84)
8.81
(4.80)
8.25
(4.65)
8.95
(4.66)
Proportion where both parents are born outside Sweden27.1160.1718.2723.8016.1198.08
Age of mother at birth in yearsa30.26
(5.58)
26.59
(6.70)
29.41
(5.47)
31.40
(5.20)
32.52
(4.22)
26.66
(5.77)
Age of father at birth in yearsa33.33
(6.52)
31.21
(8.39)
32.63
(6.54)
34.19
(6.30)
34.65
(5.37)
30.94
(6.78)
GMFCS average level of the child2.332.592.332.292.242.46
Proportions by GMFCS level of the child:
    I47.2337.3346.4648.9451.3944.96
    II14.1917.2414.8113.9312.0413.87
    III10.5512.2210.969.9710.228.79
    IV14.0515.1614.4613.1913.7814.38
    V13.9818.0513.3113.9312.5818.01
Total number of observations50,6214,28620,52013,2089,8972,710
Total number of individuals4,8814581,9451,269931278

[i] GMFCS = Gross Motor Function Classification System, a = standard deviation indicated in parentheses.

Table 2

Parental educational level and receipt of personal assistance compensation for their child with cerebral palsy.

MODEL 1: CRUDE ASSOCIATIONMODEL 2: 1 + ADJUSTED FOR DEMOGRAPHIC VARIABLESMODEL 3: 2 + ADJUSTED FOR GMFCS LEVEL
OR (CI)HOURS (CI)OR (CI)HOURS (CI)OR (CI)HOURS (CI)
Education
    Compulsory (reference)1.00114.201.0087.321.0085.47
    Secondary0.87
(0.69, 1.08)
–11.39
(–31.82, 9.04)
1.21
(0.93, 1.57)
13.60
(–5.26, 32.45)
1.43
(1.03, 1.99)
13.09
(1.19, 25.01)
    One parent tertiary educated0.78
(0.61, 0.98)
–15.10
(–36.56, 9.04)
1.08
(0.82, 1.42)
11.24
(–8.08, 31.29)
1.28
(0.90, 1.81)
14.66
(1.79, 27.52)
    Both parents tertiary educated0.74
(0.58, 0.95)
–17.03
(–39.51, 5.45)
1.16
(0.87, 1.55)
19.39
(–2.60, 41.39)
1.49
(1.03, 2.16)
24.62
(10.46, 38.77)
Observations47,91146,45244,681
Individuals4,6034,4284,265

[i] OR = Odds ratio, Hours = hours of personal assistance compensated per month. 95% confidence intervals are indicated in parenthesis, and significance results at the 5% level are indicated in bold.

Figure 1

Trend in differences in the likelihood of receiving personal assistance compensation between parental educational levels between 2006 and 2020.

Point estimate and 95% confidence intervals for differences between educational groups in odds of receiving personal assistance compensation compared to the compulsory-educated group in each year. Estimates are derived from the fully adjusted model.

Figure 2

Trend in differences in the number of personal assistance hours compensated between parental educational levels between 2006 and 2020.

Point estimate and 95% confidence intervals for differences between educational groups in hours compensated compared to the compulsory-educated group in each year. Estimates are derived from the fully adjusted model.

DOI: https://doi.org/10.16993/sjdr.1333 | Journal eISSN: 1745-3011
Language: English
Page range: 265 - 276
Submitted on: Jul 4, 2025
Accepted on: May 30, 2026
Published on: Jun 22, 2026
In partnership with: Paradigm Publishing Services

© 2026 Bo Nicolai Lichtenberg, Ann I. Alriksson-Schmidt, Johan Jarl, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.