Skip to main content
Have a personal or library account? Click to login
A Multi-Informant Approach to Exploring Connections, Disruptions, and the Multidimensional Elements of Transition to Adulthood for People with Intellectual Disabilities Cover

A Multi-Informant Approach to Exploring Connections, Disruptions, and the Multidimensional Elements of Transition to Adulthood for People with Intellectual Disabilities

Open Access
|Jun 2025

References

  1. Beresford, Bryony. 2004. “On the Road to Nowhere? Young Disabled People and Transition.” Child: Care, Health and Development 30(6): 581587. DOI: 10.1111/j.1365-2214.2004.00469.x
  2. Booth, Tim, and Wendy Booth. 2003. “In the Frame: Photovoice and Mothers with Learning Difficulties.” Disability & Society 18(4): 431442. DOI: 10.1080/0968759032000080986
  3. Braun, Viriginia, and Victoria Clarke. 2022. Thematic Analysis: A Practical Guide. London: SAGE. DOI: 10.53841/bpsqmip.2022.1.33.46
  4. Burch, Leah Faith. 2018. “Governmentality of Adulthood: A Critical Discourse Analysis of the 2014 Special Educational Needs and Disability Code of Practice.” Disability & Society 33(1): 94114. DOI: 10.1080/09687599.2017.1383231
  5. Care Quality Commission. 2014. “From the Pond into the Sea: Children’s Transition to Adult Health Services.” https://www.cqc.org.uk/sites/default/files/CQC_Transition%20Report.pdf
  6. Caton, Sue, and Carolyn Kagan. 2007. “Comparing Transition Expectations of Young People with Moderate Learning Disabilities with Other Vulnerable Youth and with Their Non-disabled Counterparts.” Disability & Society 22(5): 473488. DOI: 10.1080/09687590701427586
  7. Codd, Jon, and Olivia Hewitt. 2021. “Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective.” British Journal of Learning Disabilities 49(1): 3951. DOI: 10.1111/bld.12327
  8. Cox, James. 2017. Experiences of Transitions to Adult Years and Adult Services. Venlaw Building: The Health and Social Care Alliance Scotland.
  9. Department for Education. 2015. “Special Educational Needs and Disability Code of Practice: 0 to 25 Years.” https://www.gov.uk/government/publications/send-code-of-practice-0-to-25
  10. DeZonia, Krysti R. 2008. “Formulating Their Future: Transition to Adulthood for Students with Profound Disabilities.” PhD diss., University of California.
  11. Dyke, Paula, Jenny Bourke, Llewellyn Gwynnyth, and Helen Leonard. 2013. “The Experiences of Mothers of Young Adults with an Intellectual Disability Transitioning from Secondary School to Adult Life.” Journal of Intellectual and Developmental Disability 38(2): 149162. DOI: 10.3109/13668250.2013.789099
  12. Francis, Grace L., Ashley Stride, and Sascha Reed. 2018. “Transition Strategies and Recommendations: Perspectives of Parents of Young Adults with Disabilities.” British Journal of Special Education 45(3): 278301. DOI: 10.1111/1467-8578.12232
  13. Gauthier-Boudreault, Camille, Frances Gallagher, and Mélanie Couture. 2017. “Specific Needs of Families of Young Adults with Profound Intellectual Disability During and After Transition to Adulthood: What Are We Missing?” Research in Developmental Disabilities 66: 1626. DOI: 10.1016/j.ridd.2017.05.001
  14. Gauthier-Boudreault, Camille, Melanie Couture, and Frances Gallagher. 2021. “Obstacles to the Transition to Adulthood of People with Severe to Profound Intellectual Disability and Potential Solutions: Perspectives of Professionals in One Region of Quebec.” Journal of Intellectual and Developmental Disability 46(3): 239249. DOI: 10.3109/13668250.2021.1873753
  15. Grove, Nicola, Karen Bunning, Jill Porter, and Cecilia Olsson. 1999. “See What I Mean: Interpreting the Meaning of Communication by People with Severe and Profound Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 12(3): 190203. DOI: 10.1111/j.1468-3148.1999.tb00076.x
  16. Hodkinson, Alan, and Leah Burch. 2019. “The 2014 Special Educational Needs and Disability Code of Practice: Old Ideology into New Policy Contexts?” Journal of Education Policy 34(2): 155173. DOI: 10.1080/02680939.2017.1412501
  17. Hudson, Bob. 2006. “Making and Missing Connections: Learning Disability Services and the Transition from Adolescence to Adulthood.” Disability & Society 21(1): 4760. DOI: 10.1080/09687590500375366
  18. Jacobs, Paula, Ethel Quayle, Heather Wilkinson, and Ken MacMahon. 2021. “Relationships Matter! – Utilising Ethics of Care to Understand Transitions in the Lives of Adults with Severe Intellectual Disabilities.” British Journal of Learning Disabilities 49(3): 329340. DOI: 10.1111/bld.12380
  19. Jacobs, Paula, Kenneth MacMahon, and Ethel Quayle. 2020. “Who Decides? – Transitions from School to Adult Services for and with Young People with Severe Intellectual Disabilities.” Disability & Society 35(7): 10581084. DOI: 10.1080/09687599.2019.1669435
  20. Jindal-Snape, Divya. 2024. “Re-conceptualising Multiple and Multi-dimensional Transitions of International Students and Significant Others.” In Research with International Students: Critical Conceptual and Methodological Considerations, edited by Jenna Mittelmeier, Sylvie Lomer, and Kalyani Unkule, 165173, Routledge: Oxon. DOI: 10.4324/9781003290803-21
  21. Kittay, Eva F. 2001. “When Caring Is Just and Justice Is Caring: Justice and Mental Retardation.” Public Culture 13(3): 557579. DOI: 10.1215/08992363-13-3-557
  22. Kralik, Debbie, Kate Visentin, and Antonia van Loon. 2006. “Transition: A Literature Review.” Journal of Advanced Nursing 55(3): 320329. DOI: 10.1111/j.1365-2648.2006.03899.x
  23. Midjo, Turid, and Karin E. Aune. 2018. “Identity Construction and Transition to Adulthood for Young People with Mild Intellectual Disabilities.” Journal of Intellectual Disabilities 22(1): 3348. DOI: 10.1177/1744629516674066
  24. Murphy, Elizabeth, Jennifer Clegg, and Kathryn Almack. 2011. “Constructing Adulthood in Discussions About the Futures of Young People with Moderate-Profound Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 24: 6173. DOI: 10.1111/j.1468-3148.2010.00565.x
  25. Murphy, Joan. 1998. “Talking Mats: Speech and Language Research in Practice.” Speech and Language Therapy in Practice Autumn: 1114.
  26. Ribenfors, Francesca S. C. 2021. “Possibilities and Boundaries: Assembling an Understanding of Transition to Adulthood for Young People with Learning Disabilities.” PhD diss., Manchester Metropolitan University. https://e-space.mmu.ac.uk/628904/1/FrancescaRibenforsThesisDecember2021.pdf
  27. Ryan, Sara, and Katherine Runswick-Cole. 2009. “From Advocate to Activist? Mapping the Experiences of Mothers of Children on the Autism Spectrum.” Journal of Applied Research in Intellectual Disabilities 22: 4353. DOI: 10.1111/j.1468-3148.2008.00438.x
  28. Salt, Emily, Craig Melville, and Andrew Jahoda. 2019. “Transitioning to Adulthood with a Mild Intellectual Disability. Young People’s Experiences, Expectations and Aspirations.” Journal of Applied Research in Intellectual Disabilities 32: 901912. DOI: 10.1111/jar.12582
  29. Slater, Jenny. 2015. Youth and Disability: A Challenge to Mr Reasonable. Farnham, UK: Ashgate/New York: Routledge. DOI: 10.4324/9781315546001
  30. Small, Neil, Raghu Raghavan, and Nicole Pawson. 2013. “An Ecological Approach to Seeking and Utilising the Views of Young People with Intellectual Disabilities in Transition Planning.” Journal of Intellectual Disabilities 17(4): 283300. DOI: 10.1177/1744629513500779
  31. Timmons, Jaimie Ciulla, Jean Whitney-Thomas, James P. McIntyre, John Butterworth, and Deborah Allen. 2004. “Managing Service Delivery Systems and the Role of Parents During their Children’s Transitions.” Journal of Rehabilitation 70(2): 1926.
  32. Tyers, Claire, and Alice Sinclair. 2019. “Learning and Development for Family/Unpaid Carers of Children/Young People with a Learning Disability and/or Autism: Rapid Evidence Review and Mapping Study.” https://www.skillsforcare.org.uk/resources/documents/Developing-your-workforce/Care-topics/Learning-disability/Learning-and-development-for-people-with-a-learning-disability-and-or-autism-transition-into-adulthood-research.pdf
  33. Wilkinson, Verity J., Kate Theodore, and Roman Raczka. 2015. “‘As Normal as Possible’: Sexual Identity Development in People with Intellectual Disabilities Transitioning to Adulthood.” Sex and Disability 33: 93105. DOI: 10.1007/s11195-014-9356-6
  34. Winters, L. 2005. “Getting a Life, Council for Disabled Children.” https://www.choiceforum.org/docs/transitiongetlife.pdf
  35. Young-Southward, Genevieve, Sally-Ann Cooper, and Christopher Philo. 2017. “Health and Wellbeing during Transition to Adulthood for Young People with Intellectual Disabilities: A Qualitative Study.” Research in Developmental Disabilities 70: 94103. DOI: 10.1016/j.ridd.2017.09.003
DOI: https://doi.org/10.16993/sjdr.1202 | Journal eISSN: 1745-3011
Language: English
Page range: 330 - 344
Submitted on: Sep 16, 2024
Accepted on: May 29, 2025
Published on: Jun 12, 2025
In partnership with: Paradigm Publishing Services

© 2025 Francesca Ribenfors, Sue Caton, Leanne Rimmer, published by Stockholm University Press
This work is licensed under the Creative Commons Attribution 4.0 License.